The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
2019-03 March Newsletter
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- Last Updated: 27 March 2019 27 March 2019
Dear Friend,
It has been a busy March and we are gearing up for an even busier April with the Washington DC Advocacy Day on April 3rd and the NIH Conference on April 4th and 5th. In this issue, we have an advocacy alert about a Veteran's Administration proposal, an invitation to join a research study at MGH, an arts and culture benefit with EBT cards, and a way for you to help us get free advertising in the Boston Globe.
2019-02 February Newsletter
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- Last Updated: 03 March 2019 03 March 2019
Dear Friends,
In this newsletter, we cover a reminder about National Advocacy Day (April 3) and the NIH Conference on ME/CFS (April 4/5), two new continuing medical education (CME) resources for health care providers, a summary of our successful event at Hampshire College on February 21, and activities at the Centers for Disease Control and Prevention (CDC).
2019-01 January Newsletter
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- Last Updated: 06 February 2019 06 February 2019
Dear Friends,
Our year is off to a good start. We held a highly successful educational event for healthcare graduate students, healthcare professionals, and the public at the MGH Institute of Health Professions (IHP), our former President was a coauthor on a scientific paper, and we are gearing up for advocacy efforts in early April.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.