The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 24 June 2019 24 June 2019
This month's newsletter brings you news about the collaborative research center in Boston, an invitation to an online mindfulness seminar, the availability of a print version of the Pediatric Primer, and links to videos of recent interviews with members of the ME/CFS community.
- Last Updated: 31 May 2019 31 May 2019
US Senate Resolution in Support of ME/CFS Awareness Passes!
The bi-partisan Senate Resolution (SR) 225 “Supporting the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day” passed unanimously on May 23rd! Developing this resolution was a multi-year collaborative effort between Solve ME, #MEAction and our association. In fact, the process started more than two years ago when our very own Rivka Solomon stood up in one of Senator Ed Markey's town hall meetings and asked him to be our champion. He said yes! Since then, he and his staff have worked hard to support the ME/CFS community, including speaking at a Capitol Hill briefing in 2017 and introducing Senate Resolutions in 2018 (which did not pass before the end of the year) and this year.
- Last Updated: 17 May 2019 17 May 2019
In this issue, we have an invitation to an Open Medicine Foundation event on June 8th, a summary of our successful Boston Millions Missing event, exciting news about the US Senate Resolution in support of ME/CFS awareness, and two dates to mark on your calendar (a CDC ME/CFS stakeholder call on June 3rd and our annual event on October 26th).
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.