The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
2019-07 July Newsletter
- Details
- Last Updated: 23 July 2019 23 July 2019
Dear Friend,
In this month's newsletter -- a new fundraiser, a new service to help people with ME/CFS (and allies) help each other, an article about ME/CFS in JAMA, two new clinical trials seeking participants, and announcements about an NIH telebriefing and Fibromyalgia Advocacy Day. Read on for all the details.
2019-06 June Newsletter
- Details
- Last Updated: 23 July 2019 23 July 2019
Dear Friend,
This month's newsletter brings you news about the collaborative research center in Boston, an invitation to an online mindfulness seminar, the availability of a print version of the Pediatric Primer, and links to videos of recent interviews with members of the ME/CFS community.
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.