2021-01 January Newsletter
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- Last Updated: 16 January 2021 16 January 2021
Dear Friend,
In this month's newsletter: our new volunteer coordinator, our new webpage for Covid long haulers, a save the date for an event for Ron Davis' new book, two new research studies, and upcoming support groups. Read on for details.
2020-12 December Newsletter
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- Last Updated: 19 December 2020 19 December 2020
Dear Friend,
In this month's newsletter: our annual funds appeal, a holiday concert, the Art Share Event Gallery, a new writing group, a new research organization, a reminder of where to find the videos from our annual event, and our upcoming support groups. Read on for details.
Breaking News: Letter to Congress about Long COVID and Need for Research
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- Last Updated: 05 December 2020 05 December 2020
MassME joined the Solve ME/CFS Initiative and 18 other leading chronic disease stakeholders in sending a powerful letter urging Congress to fund millions of dollars in new National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC) research into the post-viral health complications for long-term COVID-19 (Long COVID) survivors. According to Dr. Anthony Fauci, roughly 2.6 million Americans could be temporarily or permanently disabled by Long COVID symptoms. Congress must act now and fund new research into the health needs of this rapidly growing patient population.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.