Video Available: Advances in our Understanding of ME/CFS
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- Last Updated: 21 November 2021 21 November 2021
We have posted the video of our 2021 Annual Meeting, Advances in our Understanding of ME/CFS and the Effects of Long COVID, featuring presentations from NIH-funded ME/CFS researchers, including Vicky Whittemore (NIH), Avi Nath (NIH), Ian Lipkin (Columbia), Derya Unutmaz (Jackson Laboratory), Maureen Hanson (Cornell), and Cindy Bateman (Bateman-Horne Center). The event drew 560 registrants from 20 countries. If you missed it live, watch it here. The 3 and a half hour event is broken into 12 segments within a video playlist to enable targeted viewing by speaker. Make sure to watch the Q&A section, as well as the 10 minute breaks which are full of relaxing music and interesting facts about ME/CFS.
2021-11 November Newsletter
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- Last Updated: 17 November 2021 17 November 2021
Dear Friend,
In this month's newsletter:
- Video Available of MassME Annual Meeting with NIH Researchers
- E-book by Elizabeth Glixman
- ME/CFS Treatment Trials Coming Soon
- Our Friends in the News
- Mark Your Calendar
- More Videos
- Support Groups
Invisible Disabilities: Long COVID and Other Post-Infectious Chronic Illnesses -- Videos
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- Last Updated: 27 October 2021 27 October 2021
View the videos for this event!.
Imagine getting sick with a common cold or flu, or even an insect bite, and then never getting better. We present a diverse panel of people with post-infectious chronic illnesses, including Long COVID and Post-Lyme Disease, joined by a person with ME/CFS. Their personal stories are followed by a presentation from the former Medical Director of the Bureau of Infectious Disease and Laboratory Sciences, at the Massachusetts Department of Public Health: Alfred DeMaria, M.D. addresses the similarities between Long COVID, Post-Lyme, and ME/CFS.
This program was originally presented on September 15th, 2021, by the Health and Disability Partnership at the Massachusetts Department of Public Health, with the Massachusetts ME/CFS & FM Association.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.