The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
2020-10 October Newsletter
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- Last Updated: 18 October 2020 18 October 2020
Dear Friend,
In this month's newsletter: our annual event, a reminder to contact your US Representative about H.R. 7057, information about voting, and our upcoming support groups. Read on for details.
Annual Event 10/24. Register Now!
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- Last Updated: 18 October 2020 18 October 2020
Contact Us to register for this special event on Saturday October 24th from 1 - 4 pm, “Research Update 2020 – Accomplishments, Goals & Clinical Connections,” presented in partnership with the Open Medicine Foundation, featuring researchers and clinicians from the Harvard ME/CFS Collaboration. Learn about the Harvard ME/CFS Collaboration’s promising research going on right here in the Boston area!
This virtual event will include an update on MassME Association activities, followed by brief presentations by three prominent researchers and clinicians from the Harvard ME/CFS Collaboration. A Question & Answer discussion will follow the presentations. You may submit questions in advance or during the meeting via Zoom’s chat feature. Registered attendees will receive a private link to the event a few days before the October 24th event. Download the flyer. If you are unable to attend the event itself, you may register for a recording.
We hope to “see” you soon!
2020-09 September Newsletter
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- Last Updated: 14 September 2020 14 September 2020
Dear Friend,
In this month's newsletter: announcing our annual event, two research studies, a CDC stakeholder call, a reminder to contact your US Representative about H.R. 7057, a volunteer spotlight, and support groups. Read on for details.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.