2023-2 February Newsletter
- Details
- Last Updated: 03 February 2023 03 February 2023
In this month's newsletter:
- Board Member News
- Upcoming Events
- Looking ahead to Advocacy Week
- Newsworthy Events and Links
- Member Spotlight
Sunday Conversations - February 19, 2023
- Details
- Last Updated: 02 February 2023 02 February 2023
Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life
Sunday, February 19, 2023, 4 p.m. EST
Amy Mooney, MS OTR/L
Sallie Rediske, MPT
Melinda Maxwell, PT
Please join us as Amy Mooney, MS OTR/L, presents an occupational therapist's perspective of pacing for PEM. Amy will describe the essential strategies of pacing for PEM and create a framework to analyze activity and tasks within the limitations of PEM. Offering the physical therapist perspective, Melinda Maxwell and Sallie Rediske will discuss physiological biofeedback strategies of pacing. This OT/PT team will offer examples of how the pacing for PEM framework can support pwME and Long COVID as they engage in redefined meaningful and purposeful activities of daily living.
Following the discussion, the panel will respond to questions from the audience. The entire program is expected to last about 75 minutes. A recording of the presentation will be available on the Mass ME website after the event.
February Young Adult Support Groups
- Details
- Last Updated: 27 January 2023 27 January 2023
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness
Tuesday, February 7th, at 3:30 P.M. ET
Saturday, February 18th, at 10:30 A.M. ET
Please Note: The meeting on Saturday, January 28th has been rescheduled to Saturday, February 4th at 10:30 A.M. ET.
If you are already registered, there is no need to take action, we will send you the updated Zoom link.
If you would like to join the meeting on February 4th, click here.
These drop-in Zoom Support Groups are interactive and provide a safe space for patients to share stories and experiences, ask questions, and offer one another support.
The groups are run by Kerry Lang, LMHC. Kerry is a MA licensed mental health counselor with experience leading groups and workshops for those with chronic illness, specifically those with Lyme disease, and more recently Long COVID and ME/CFS.
Please Note: Due to professional licensing requirements, we are only able to offer this program to Massachusetts residents.
What age is considered Young Adult?
Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.
You are welcome to register for one or both sessions. These groups are free for members, with any donations to offset costs welcome. We ask non-members to contribute a $10 fee for each session. A contribution of $25 or more will include annual membership.
REGISTER FOR THE FEBRUARY 7th YOUNG ADULT GROUP
REGISTER FOR THE FEBRUARY 18th YOUNG ADULT GROUP
More Articles ...
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.