The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
ME/CFS educational events - Fall 2018
- Details
- Last Updated: 19 September 2018 19 September 2018
Get details of all ME/CFS educational events Fall 2018 in Massachusetts.
- September 12 – Massachusetts General Hospital, Boston, MA. Sponsored by the Russell Museum.
- October 10 – Tsai Performance Center, Boston University, Boston, MA. Sponsored by Sargent College Alumni Association.
- October 16 – Geisel School of Medicine at Dartmouth, Hanover, NH.
- October 30 – Northeastern University School Health Institute, N.U. School of Nursing, Burlington, MA. CEU credit for nurses and other professionals.
- November 3 – Mass ME/CFS Annual Meeting and Scientific Conference, Newton Wellesley Hospital, Newton, MA. Plus ME/CFS researcher/clinician forum.
Register now for our Fall conference!
- Details
- Last Updated: 19 September 2018 19 September 2018
Open to the public.
More information to come!
Saturday, Nov. 3, 2018, 1 - 3:30 p.m.
Newton Wellesley Hospital, Newton MA
Researchers and Clinicians: Join the Researcher/Clinician Forum at 11 a.m. to meet colleagues and discuss your work informally. Lunch is provided and the afternoon program is included. Register for the forum
“My Medical Insurance Story” Survey – summary of results
- Details
- Last Updated: 08 June 2018 08 June 2018
We conducted a short 5-question survey during the month of April, 2018, and publicized it within the U.S. ME/CFS community. We asked respondents to briefly describe their experience with their (U.S.) commercial health insurance provider, identify the insurance provider, and rate their overall experience on a scale of 1 to 5 from very positive to very negative. We also asked if they had received a diagnosis of ME, CFS, or ME/CFS. We received 187 responses. Results were tallied by hand. 95% of respondents had a diagnosis of ME/CFS, or ME/CFS. 22% reported very positive or positive experiences, 16% neutral, and 62% negative or very negative.
Read more: “My Medical Insurance Story” Survey – summary of results
New videos are posted!
- Details
- Last Updated: 05 July 2018 05 July 2018
Not able to attend recent screenings of Unrest in Massachusetts?
Videos (opening remarks and panel discussion) from these events are now posted.
Video from Cooley Dickinson Hospital (Northampton, May 2018)
Video from Massachusetts State House (Boston, April 2018)
Video from Massachusetts Department of Public Health (Boston, March 2018)
Video from Regent Theatre (Arlington MA, Nov. 2017)
Unrest Events - Spring 2018
- Details
- Last Updated: 23 April 2018 23 April 2018
Get details of all Unrest events Spring 2018 in Massachusetts.
More Articles ...
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.