The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
2020-07 July Newsletter
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- Last Updated: 18 July 2020 18 July 2020
Dear Friend,
In this month's newsletter: a call to action, SMCI's new ME/CFS registry and biobank, the IACFS/ME 2020 Conference returns (virtually), a volunteer appreciation, and support groups. Read on for details.
New Strategic Plan!
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- Last Updated: 18 July 2020 18 July 2020
We are excited to announce a new strategic plan for the Massachusetts ME/CFS & FM Association! We have spent the last year crafting a bold, ambitious and inclusive plan to guide our work in supporting people with ME/CFS and FM and their families, educating health care providers, advocating for social services and building a sustainable future for MassME. A big thank you to those who were introduced to, and who helped refine, the strategic plan during the small group meetings we held this past spring. And a big "Welcome!" to some of our new members who are already benefiting from initiatives described in the plan, such as our expanded support group program. A summary of the plan is included below. For those of you with the energy and interest to delve into the details, please find the full strategic plan here. Let us know what you think!
Massachusetts ME/CFS & FM Association Stands Against Racism
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- Last Updated: 18 July 2020 18 July 2020
| Massachusetts ME/CFS & FM Association Stands Against Racism |
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The Massachusetts ME/CFS & FM Association unequivocally asserts our commitment to standing against racism in all its forms and standing with our black community members. Systemic racism -- and specifically systemic and repeated violence against black Americans -- is an urgent crisis that requires an equally urgent response. We are sickened and heartbroken by the senseless murders of George Floyd, Breonna Taylor, Tony McDade, Ahmaud Arbery, and countless others. We want to be explicitly clear: Black lives matter. Read more: Massachusetts ME/CFS & FM Association Stands Against Racism More Articles ...Notice about namesThe Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus. |