Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Advances in our Understanding of ME/CFS and the Effects of Long COVID

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Last Updated: 18 September 2021 18 September 2021

Information and Registration

Annual Event Flyer 2021. Advances in our Understanding of ME/CFS and the Effects of Long COVID with NIH Researchers, Saturday, October 23 from 12:30 pm to 4 pm.

2021-09 September Newsletter

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Last Updated: 11 September 2021 11 September 2021

Dear Friend,

In this month's newsletter:

  • Invisible Disabilities Panel Discussion, September 15, 12 noon
  • MassME Annual Meeting: NIH Research Update, October 23, 12:30 PM
  • Research Studies Need You!
  • Mayo Clinic Proceedings Article on ME/CFS
  • Beyond the Symptom: The Biology of Fatigue Conference, September 27-28
  • Solve ME/CFS Initiative Lecture Series on Long COVID, Part 2, September 20
  • NIH Seeks Public Comments on Gaps in Women's Health Research

Read more: 2021-09 September Newsletter

Invisible Disabilities: Long COVID and Other Post-Infectious Chronic Illnesses -- Panel on SEPT. 15, 12 noon ET

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Last Updated: 01 September 2021 01 September 2021

 Registration and more information found under the flyer and videos.

This is an event flyer. It has a blue background. The text reads: September 15th, 12 Noon Eastern Time. Zoom. "Invisible Disabilities, Long Covid and Other Post-infectious Chronic Illnesses.” Registration and Zoom are found at www dot B-I-T dot L-Y, slash, three, capital A, lowercase q, capital M, lowercase r, lowercase i, capital T. Presented by the Health and Disability Partnership at the Massachusetts Department of Public Health, with the Massachusetts ME/CFS and FM Association. Included on the flyer are images of five panelists. The first is Cynthia Adinig, Long Covid advocate. The second is Claudia Carrera, MA, ME/CFS activist. The third image is Alfred DeMaria Jr. M.D., Massachusetts Department of Public Health. The fourth image is Rodrigo Monterrey MPA, Massachusetts Department of Public Health. And the fifth image is Kayla Scheiner, Lyme advocate.

Register Now. Link opens in a new window. 

Read more: Invisible Disabilities: Long COVID and Other Post-Infectious Chronic Illnesses -- Panel on SEPT....

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Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.