- Last Updated: 19 February 2021 19 February 2021
In this month's newsletter: a new publication, the January/February Art Share, video from the book event, announcements about the Interagency Working Group on ME/CFS meeting and Advocacy Day, three research studies seeking participants, and support groups. Read on for details.
- Last Updated: 25 February 2021 25 February 2021
What is Long COVID?
Over 23 million cases of COVID-19 have been reported in the U.S., with well over 380,000 deaths.
About 10 – 20% of people who have COVID-19, including people who have only mild symptoms, do not fully recover. Many of these people experience a variety of symptoms for many months. This is being called “Long COVID.”
Two million or more people in the U.S. may develop Long COVID. In Massachusetts 44,000 - 88,000 people may have Long COVID.
Long COVID is a “post-viral” illness.
- Last Updated: 07 February 2021 07 February 2021
In this month's newsletter: our new volunteer coordinator, our new webpage for Covid long haulers, a save the date for an event for Ron Davis' new book, two new research studies, and upcoming support groups. Read on for details.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.