- Last Updated: 21 January 2016 21 January 2016
The patient's experience
The Sound of a Wild Snail Eating by Elisabeth Tova Bailey
Other books of interest
Cure Unknown: Inside the Lyme Disease Epidemic by Pamela Weintraub
How Doctors Think by Jerome Groopman, M.D.
Full Catastrophe Living—Using the Wisdom of your Body and Mind to Face Stress, Pain and Illness by Jon Kabat-Zinn Ph.D.
The Truth About Getting Sick in America by Dr. Tim Johnson
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.