Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

New videos are posted!

Not able to attend recent screenings of Unrest in Massachusetts?

Videos (opening remarks and panel discussion) from these events are now posted.

Video from Boston University (Boston, October 2018)

Video from Cooley Dickinson Hospital (Northampton, May 2018)

Video from Massachusetts State House (Boston, April 2018)

Video from Massachusetts Department of Public Health (Boston, March 2018)

Video from Regent Theatre (Arlington MA, Nov. 2017)


 

2018 Fall conference - A Conversation with David Tuller

How Investigative Journalism Succeeds in a Hostile Medical Environment: A Conversation with David Tuller

DrPH and investigative journalist

David Tuller has been writing since 2015 about the controversial PACE study, which purported to "prove" that Graded Exercise Therapy and Cognitive Behavioral Therapy could cure ME/CFS. Top researchers who have reviewed the study say it is fraught with indefensible methodological problems. Building on the work of ME/CFS advocates and researchers, Tuller exposed these flaws in a series of carefully researched articles. In addition to his work on PACE, he has written articles about ME/CFS for the New York Times and other publications.

Learn first-hand how journalism can advance science and public awareness of a devastating disease.

Saturday, Nov. 3, 2018, 1 - 3:30 p.m.

Newton Wellesley Hospital, Newton MA

 Download the flyer

 


 

ME/CFS educational events - Fall 2018

Get details of all ME/CFS educational events Fall 2018 in Massachusetts.

  • September 12 – Massachusetts General Hospital, Boston, MA. Sponsored by the Russell Museum.
  • October 10 – Tsai Performance Center, Boston University, Boston, MA. Sponsored by Sargent College Alumni Association. Video.
  • October 16 – Geisel School of Medicine at Dartmouth, Hanover, NH.
  • October 30 – Northeastern University School Health Academy, N.U. School of Nursing, Burlington, MA. Contact hours credit for nurses and Professional Development Points for school professionals. More information.
  • November 3 – "How Investigative Journalism Succeeds in a Hostile Medical Environment: A Conversation with David Tuller," Mass ME/CFS Annual Meeting and Conference, Newton Wellesley Hospital, Newton, MA.

 

ME/CFS educational events in Massachusetts, Fall 2018

Jen Brea’s film Unrest has made a big splash and has greatly advanced public awareness of ME/CFS! We at MassME/CFS decided to build on this momentum by arranging a series of screenings of Unrest throughout Massachusetts this year, to follow on from our very successful public screening at the Regent Theatre in Arlington last fall. These new events will reach diverse audiences, and most will include an educational program in the form of a post-film panel with our MassME/CFS volunteers sitting on the panels. Some of these events are open to the public, and you are welcome to attend if you can. Two of these post-film panels will be professionally videotaped and made available online so all can watch.

In addition to raising public awareness with these events, MassME/CFS is also focusing on bringing information to patients, health care providers, and researchers. Our goal to improve access to treatment for patients by creating a wider pool of knowledgeable providers, and to establish a community of researchers in Massachusetts.

Here’s the list of the 2018 fall events MassME/CFS is organizing/sponsoring:

Read more: ME/CFS educational events in Massachusetts, Fall 2018

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.