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Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Spring Session
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- Last Updated: 01 March 2023 01 March 2023
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Spring Session
Join us on Zoom the second and fourth Wednesday of the month at 3:30 P.M. ET.
In an effort to streamline the registration process, we are offering one registration for the entire Spring Session. Once registered, you are welcome to attend as many meetings as you like.
Spring Session Dates:
March 8th, 22nd
April 12th, 26th
May 10th, 24th
Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group.
| REGISTER FOR THE YOUNG ADULT GROUP - SPRING SESSION |
Sunday Conversations - March 19, 2023
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- Last Updated: 15 March 2023 15 March 2023
"The Broken Mishkan: Performance and Community Conversation with Sara Nesson"
Sunday, March 19, 2023, 4 p.m. EST
Mishkan is Hebrew for “sacred space.” The Broken Mishkan is a 23-minute theatrical work that follows author Sara Nesson’s compelling journey toward wholeness after being diagnosed with ME/CFS. From swimming New Hampshire lakes to chanting psalms with nuns in a California forest, in a story spiced with humor and Jewish mysticism, Sara celebrates the poignant connections between art, healing, wilderness, and blessing.
Register for the March 19 Sunday Conversations
Read more: Sunday Conversations - March 19, 2023
Sunday Conversations - February 19, 2023
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- Last Updated: 28 February 2023 28 February 2023
Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life
Sunday, February 19, 2023, 4 p.m. EST
Amy Mooney, MS OTR/L
Sallie Rediske, MPT
Melinda Maxwell, PT
Amy Mooney, MS OTR/L, joined us to present an occupational therapist's perspective of pacing for PEM. Amy described the essential strategies of pacing for PEM and created a framework to analyze activity and tasks within the limitations of PEM. Offering the physical therapist perspective, Melinda Maxwell and Sallie Rediske discussed physiological biofeedback strategies of pacing. This OT/PT team offered examples of how the pacing for PEM framework can support pwME and Long COVID as they engage in redefined meaningful and purposeful activities of daily living.
Following the discussion, the panelists responded to questions from the audience. The entire program lasted about 90 minutes.
Materials from the presentation:
- Amy Mooney slides: Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life
- Sallie Rediske and Melinda Maxwell slides: Whispers vs. Screams: Listening with Heart Rate Biofeedback Pacing for ME/CFS
- Full video: https://www.youtube.com/watch?v=62mIuvabII0 (This version contains chapter headings for easier viewing)
Read more: Sunday Conversations - February 19, 2023
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.