Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

A Jazz Concert for ME/CFS Awareness Month

Enjoy some unique and wonderful music and support Massachusetts ME/CFS & FM Association. Hear the New View Saxophone Quartet in a broadcast on Facebook Live on Saturday, May 15, 2021, at 4 p.m. ET. This is a fund-raising event – donations are encouraged but not required. Register here to receive details about the broadcast.

Read more: A Jazz Concert for ME/CFS Awareness Month

PBS NewsHour: Brief But Spectacular - Rivka Solomon

Watch: PBS NewsHour video (4 min.) on ME/CFS and Long COVID, with MassME’s Rivka Solomon.

Exciting News! Big ME/CFS Research Grant

Massachusetts ME/CFS & FM Association is thrilled to announce that the NIH has awarded a $2.5 million grant to the two-woman UMass Medical School research team of Liisa Selin, MD, PhD, and Anna Gil, PhD, for their work on ME/CFS. 

For more details, read the MassME press release.

MassME is pleased to have supported this research team over the years, including notifying our newsletter recipients that these innovative researchers had received the Ramsey award and needed blood donations. People responded enthusiastically, allowing Drs. Selin and Gil to move this necessary research forward.

Additionally, the UMass Medical School researchers met with our Research Club and shared their cutting-edge findings. You can view a video excerpt of that meeting, and the research is summarized on this poster. It is also exciting to us that this money is coming to a Massachusetts institution. After all, Massachusetts is a medical hub for the world, and it should also be that for ME/CFS. This grant builds on the research this team did with a seed grant from the Solve ME/CFS Initiative's Ramsay Program.

Thanks, Liisa Selin and Anna Gil, for all your hard work for our community!

 

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.