Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

New! Sunday Conversations with MassME

Sunday Conversations

A monthly speaker series
3rd Sunday of each month at 4 p.m. ET
Free and open to everyone

Introducing “Sunday Conversations with MassME,” a monthly speaker series with discussion on a wide variety of topics. These will take place via Zoom on the 3rd Sunday of each month at 4 p.m. ET, and are free and open to anyone. Presentations will be recorded for later viewing. Registration is required. 

The January topic is “Physical and Occupational Therapy for ME/CFS and Similar Chronic Illnesses” (see announcement below). Applying for Disability is the topic for February. Future topics will be announced in this newsletter and on social media. These sessions are appropriate for patients, family members/caregivers, and health care professionals. Please join us!

Register for the January Conversation


 

Sunday Conversation - January 2022

Physical/Occupational Therapy for ME/CFS and Similar Chronic Illnesses

Dr. Kenneth J. Friedman

 

 

 

Sunday, January 16, 4:00 - 5:00 ET via Zoom
Featuring Kenneth J. Friedman, Ph.D.
Adjunct Associate Professor of Medicine,
School of Osteopathic Medicine of Rowan University, Stratford, NJ

 

Dr. Alba AzolaDiscussant: Alba Azola, MD
Assistant Professor
Co-director of the PMR Post-Acute COVID-19 Team (JH PACT) Program
Department of Physical Medicine and Rehabilitation
Johns Hopkins University School of Medicine

Register now

The overlap of symptoms in ME/CFS, long-haul COVID, and other post-infectious illnesses suggests that the symptoms are not unique to the individual conditions. Rather, they represent a common response, most likely with similar underlying pathophysiologies. Guiding principles of patient management are then set forward for all healthcare providers including physical and occupational therapists.

Dr. Friedman has contributed to three nationally-recognized primers on ME/CFS, written numerous articles about the disease in peer-reviewed journals, participated in the U.S. Department of Health’s Chronic Fatigue Syndrome Advisory Committee, and edited three medical journal issues focused on ME/CFS.

His research suggests ME/CFS is one of many post-infectious illnesses with similar symptoms and pathophysiologies, and that advances in one illness could benefit others.

Dr. Azola will offer her perspective as a clinician working with over 900 patients in a Long Covid clinic; 30 - 35% meet the criteria for ME/CFS. Amy Mooney, MS OTR/L, will also offer her comments about the unique perspective and guidance that Occupational Therapy offers.

The Moderator for this event is Kerry Lang, LMHC, an expressive art therapist and the Wellness and Mental Health Program Manager at the Dean Center for Tick Borne Illness at Spaulding Rehabilitation Hospital in Boston, MA. She also leads support groups for Long Covid patients.

Register for this event

 

 

New Monthly Discussion Group: Looking at How ME/CFS Research Might Apply to our Care

Monthly Discussion Group Square No Date Time 002

 On Tuesday, December 14, from 5-6:30pm we are launching a new monthly zoom discussion group entitled: 

Looking at How ME/CFS Research Might Apply to our Care.

Click here for more details!

 

 

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.