Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Sunday Conversations - February 18, 2024

 

 

Sunday Conversation for February:

Small Group Discussions

"Living with co-morbidities or other serious illnesses"

Sunday, February 18, 2024, 4 p.m. Eastern Time

Please join us for small group discussions on living with ME/CFS and common co-morbidities or other serious illnesses. We will divide into groups based on age/stage of life: Young Adult, Adult, Seniors/Aging, or Ally/Caregiver, wherever you think you fit! 

This topic was suggested by several respondents in our recent survey!

**Registration closes one hour before the event begins, so register now!**

Read more: Sunday Conversations - February 18, 2024


Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Winter 2024

FINAL Young Adult Support Group Fall 2023 Ongoing Registration Instagram Post Instagram Post

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness

*Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group

 

Join us on Thursday nights @ 7:00 pm and Tuesday afternoons @ 3:30 pm ET.

This drop-in Virtual Support Group is interactive and provides a safe space for patients to share stories and experiences, ask questions, and offer one another support.

There is one registration for the entire session.  Once registered, you are welcome to attend as many meetings as you like.

Winter Session Dates:

Thurs.  Jan 18th at 7pm
Tues.  Jan 30th at 3:30pm
January monthly Topic: Communicating about disability and chronic illness 


Thurs. Feb. 15th 7pm
Tues. Feb. 27th 3:30pm
February monthly topic: Navigating dating/romantic relationships 

Thurs. March 7th 7pm
Tues. March 19th at 3:30pm
March monthly topic: Self advocacy/accommodations for disability 

 

This group is free for members, with any donations to offset costs welcome. A contribution of $25 or more will include annual membership.  

 

What age is Young Adult?

Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.

To Register, please fill in the form or confirm your pre-filled information below, and then click the Register button.

REGISTER FOR THE YOUNG ADULT GROUP - WINTER 2024

 

 

Sunday Conversations - January 21, 2024

"It's not 'All In Your Head' "
Multi-Modal Healing with Judy Tsafrir

Sunday, January 21, 2024, 4 p.m. Eastern Time


Judy Tsafrir, MD

When a patient consults a physician and reports symptoms that refer to multiple unrelated organ systems which do not fit with known patterns or conditions, and when the laboratory tests that are conventionally run do not reveal any abnormalities, the conclusion is reached that they should see a psychiatrist. They are told that they are suffering from stress; that they are depressed or anxious. The implication is that their condition is psychosomatic; meaning that their emotions are manifesting as physical symptoms. This is a very invalidating experience that adds insult to injury.

Read more: Sunday Conversations - January 21, 2024


Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.