News
Breaking News: Letter to Congress about Long COVID and Need for Research
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- Last Updated: 05 December 2020 05 December 2020
MassME joined the Solve ME/CFS Initiative and 18 other leading chronic disease stakeholders in sending a powerful letter urging Congress to fund millions of dollars in new National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC) research into the post-viral health complications for long-term COVID-19 (Long COVID) survivors. According to Dr. Anthony Fauci, roughly 2.6 million Americans could be temporarily or permanently disabled by Long COVID symptoms. Congress must act now and fund new research into the health needs of this rapidly growing patient population.
'Tis the Season!
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- Last Updated: 03 December 2020 03 December 2020
Dear Friend,
It is time for our annual funds appeal. We need your donations to continue supporting people with ME/CFS and FM in Massachusetts and beyond. We had a busy 2020 building our support group program and improving our provider referral process, among other projects, and we have big plans for 2021. Please support us by becoming a member or donating now! Read on for more details about our 2020 activities, our 2021 plans, and why you should give today.
Annual Event 10/24. Register Now!
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- Last Updated: 18 October 2020 18 October 2020
Contact Us to register for this special event on Saturday October 24th from 1 - 4 pm, “Research Update 2020 – Accomplishments, Goals & Clinical Connections,” presented in partnership with the Open Medicine Foundation, featuring researchers and clinicians from the Harvard ME/CFS Collaboration. Learn about the Harvard ME/CFS Collaboration’s promising research going on right here in the Boston area!
This virtual event will include an update on MassME Association activities, followed by brief presentations by three prominent researchers and clinicians from the Harvard ME/CFS Collaboration. A Question & Answer discussion will follow the presentations. You may submit questions in advance or during the meeting via Zoom’s chat feature. Registered attendees will receive a private link to the event a few days before the October 24th event. Download the flyer. If you are unable to attend the event itself, you may register for a recording.
We hope to “see” you soon!
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.