News
Half Marathon Fundraiser
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- Last Updated: 20 July 2019 20 July 2019
Support the MassMECFS Half Marathon Team!
Leah (your Association President) and her friends, Liz and Holly, are running the Boston Athletic Association Half Marathon on Sunday, October 13th, 2019 as a fundraiser for the Massachusetts ME/CFS & FM Association. Please support our team and give now! Your donations enable our work to improve health care and support services for people affected by ME/CFS in Massachusetts.
Are you a healthy ally who likes to run? Join our team! You'll get camaraderie, training runs along the Charles River, and a free T-shirt. You can register for the BAA Half Marathon here. Then use the Contact Us form to let us know.
Boston Millions Missing 2019
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- Last Updated: 17 May 2019 17 May 2019
Read more: Boston Millions Missing 2019
Press Release: Boston Millions Missing Event May 11th!
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- Last Updated: 13 May 2019 13 May 2019
Boston ME/CFS Protest to Feature Speeches, Display, and Performances
Large crowd expected on Boston Common for #MillionsMissing Demonstration
BOSTON, MA, 5/6/2019---On Saturday, May 11 from 1:00-3:00pm, Massachusetts residents living with ME/CFS, also known as Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS), will rally at the Boston Common Liberty Mall together with caretakers and allies to call for immediate and comprehensive action on the ME/CFS public health crisis. They will join thousands of others demonstrating physically in more than 80 cities worldwide and virtually on social media as part of the fifth global #MillionsMissing protest.
Read more: Press Release: Boston Millions Missing Event May 11th!
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.