- Last Updated: 18 July 2020 18 July 2020
|Massachusetts ME/CFS & FM Association Stands Against Racism|
The Massachusetts ME/CFS & FM Association unequivocally asserts our commitment to standing against racism in all its forms and standing with our black community members. Systemic racism -- and specifically systemic and repeated violence against black Americans -- is an urgent crisis that requires an equally urgent response. We are sickened and heartbroken by the senseless murders of George Floyd, Breonna Taylor, Tony McDade, Ahmaud Arbery, and countless others. We want to be explicitly clear: Black lives matter.
Our champion, Senator Ed Markey (D-MA), submitted a bipartisan letter to the Senate Leadership requesting ME/CFS research funding in future COVID-19 response legislation. You can see the letter here and Senator Markey's press release here. Twelve other Senators signed the letter, including Senators Chris Van Hollen (D-Md.), Cory Booker (D-N.J.), Angus S. King Jr. (I-Maine), Debbie Stabenow (D-Mich.), Kyrsten Sinema (D-Ariz.), Elizabeth Warren (D-Mass.), Jacky Rosen (D-Nev.), Mazie Hirono (D-Hawaii), Kevin Cramer (R-N.D.), Richard Blumenthal (D-Conn.), Michael Bennet (D-Col.), and Dianne Feinstein (D-Calif.).
If you contacted your Senators and they signed, please send them a thank you through Facebook or Twitter. If you contacted your Senators and they did not sign, please contact them again and ask why not. They will have another opportunity to support the ME/CFS community as early as next week when Senator Markey will introduce a Senate Resolution to raise awareness. And keep your eye out for our next action alert.
Press Release: Researchers Expect COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out.
Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME - also known as chronic fatigue syndrome or ME/CFS), a debilitating illness that affects more than 1 million Americans.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.