Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Summer Session

 

Young Adult Support Group Summer 2023 Ongoing Registration

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Summer Session

NEW TIMES! Join us on Monday nights @ 7pm and Wednesday afternoons @ 3:30pm! 

This drop-in Virtual Support Group is interactive and provides a safe space for patients to share stories and experiences, ask questions, and offer one another support.

In an effort to streamline the registration process, we are offering one registration for the entire Summer Session.  Once registered, you are welcome to attend as many meetings as you like.

Summer Session Dates:

Monday, June 12th, @ 7:00 P.M. ET 

Wednesday, June 28th @ 3:30 P.M. ET

 

Monday, July 10th, @ 7:00 P.M. ET 

Wednesday, July 26th @ 3:30 P.M. ET

 

Monday, August 14th, @ 7:00 P.M. ET 

Wednesday, August 30th @ 3:30 P.M. ET

Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group.

 REGISTER FOR THE YOUNG ADULT GROUP - SUMMER SESSION

 

 

Sunday Conversations - June 18, 2023

"ZOOM through 40 years of ME/CFS with MassME!"

Sunday, June 18, 2023, 4 p.m. Eastern Time



 

In this edition of Sunday Conversations with MassME, members of the association discussed how it has stayed strong and relevant throughout 40 years. An overview was given for each of the past four decades, each bringing important changes for this misunderstood and stigmatized disease. Learn about our unique patient-led organization that has influenced progress and now helps patients more than ever.

This presentation kicked off MassME's 40-year anniversary celebration. Stay tuned for more events to follow!

 

Materials from the presentation:

Read more: Sunday Conversations - June 18, 2023


Sunday Conversations - May 21, 2023

"Using wearable technology to measure and manage Long COVID and ME/CFS"

Sunday, May 21, 2023, 4 p.m. Eastern Time


Harry Leeming
Co-founder and CEO, Visible

A former engineer, Harry Leeming has worked at multiple early-stage start-ups in Silicon Valley as well as in Formula 1. Harry founded the company Visible (https://www.makevisible.com/), an activity tracking platform for Long COVID and ME/CFS, as a result of his own health condition, and aims to use the platform to help increase our understanding of complex chronic illness.

In this edition of Sunday Conversations with MassME, Harry gave a brief overview of the application, with descriptions of the team, their HRV-centered philosophy, and their plans for the rollout of their own wearable device specifically for pacing and symptom tracking. He then took questions from the Zoom audience about the timeline of future releases and features, cost and geographic availability of the premium service, the potential for use in research, various user interface ideas and suggestions, and much more.

View the recording: Sunday Conversations May 2023 - Wearable technology with Harry Leeming of Visible

Slides

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.