- Last Updated: 13 November 2021 13 November 2021
- Last Updated: 06 December 2018 06 December 2018
Boston University, College of Health and Rehabilitation Sciences: Sargent College, October 2018. Introductory remarks and panel discussion. View the video.
Cooley Dickinson Hospital, Northampton MA, May 2018. Introductory remarks and panel discussion. View the video.
Massachusetts State House, April 2018. Introductory remarks and panel discussion. View the video.
Massachusetts Department of Public Health, Boston, March 2018. Introductory remarks and panel discussion. View the video.
Regent Theatre, Arlington MA, Nov. 2017. Introductory remarks and panel discussion. View the video.
- Last Updated: 03 September 2017 03 September 2017
A support group member in another state, herself a long-time ME/CFS advocate, recently remarked that no one in her support group seemed interested to hear about advocacy activities. Their concerns were with sharing their symptoms and getting ideas from others on how to treat them, where to find knowledgeable doctors, and finding support in the group – all legitimate and powerful concerns, totally appropriate for members of a support group. Still, she wondered, why aren’t more ME/CFS patients interested in what other patients and family members (advocates) are doing to bring more public and government awareness and funding to their disease?
More Articles ...
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.