Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Resource Library

Then: A Conversation With Myself by Elizabeth Glixman

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Last Updated: 17 November 2022 17 November 2022

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Click here to read the e-book Then: A Conversation With Myself by Elizabeth Glixman


Videos of our many Massachusetts events and panels, 2017 & 2018

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Last Updated: 06 December 2018 06 December 2018

Boston University, College of Health and Rehabilitation Sciences: Sargent College, October 2018. Introductory remarks and panel discussion. View the video.

Cooley Dickinson Hospital, Northampton MA, May 2018. Introductory remarks and panel discussion. View the video.

Massachusetts State House, April 2018. Introductory remarks and panel discussion. View the video.

Massachusetts Department of Public Health, Boston, March 2018. Introductory remarks and panel discussion. View the video.

Regent Theatre, Arlington MA, Nov. 2017. Introductory remarks and panel discussion. View the video.

President's Letter - Why Advocacy?

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Last Updated: 03 September 2017 03 September 2017

A support group member in another state, herself a long-time ME/CFS advocate, recently remarked that no one in her support group seemed interested to hear about advocacy activities. Their concerns were with sharing their symptoms and getting ideas from others on how to treat them, where to find knowledgeable doctors, and finding support in the group – all legitimate and powerful concerns, totally appropriate for members of a support group. Still, she wondered, why aren’t more ME/CFS patients interested in what other patients and family members (advocates) are doing to bring more public and government awareness and funding to their disease?

Read more: President's Letter - Why Advocacy?


More Articles ...

  1. May 12th 2017 - Awareness and Action!!
  2. Advocates meet members of congress
  3. Videos of our organization’s members, ME/CFS Alert interviews with Llewellyn King
  4. CFSAC Public Comment - Charmian Proskauer, January 2017
  5. CFSAC Public Comment - Robie (Kristen) Robitaille, January 2017

Subcategories

Health Care Reform 2

Advocacy 38

Congress2016 1

Documents used in Congress visits March 2016

Research 5

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.