Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Sunday Conversations

A monthly speaker series
3rd Sunday of each month at 4 p.m. ET
Free and open to everyone

“Sunday Conversations with MassME” is a monthly speaker series with discussion on a wide variety of topics. These sessions are appropriate for patients, family members/caregivers, and health care professionals. Sunday Conversations take place via Zoom on the 3rd Sunday of each month at 4 p.m. ET, and are free and open to anyone. Presentations are recorded for later viewing. Registration is required. 

 

Working with Your Healthcare Provider was the topic for April. Featured speaker was Alba Azola, M.D., Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine and Co-director of the PMR Post-Acute COVID-19 Team (JH PACT) Program.

Video links:

Playlist: https://www.youtube.com/playlist?list=PLz31KwoUbYrGjlOUKA5Yz5dTMBKMDdolR
Full program: https://youtu.be/c7sACMrqsY0
Part 1 - Physician Perspective: https://youtu.be/5m1YadySvwA
Part 2 - Family Perspective: https://youtu.be/IFWMVNchb4g
Part 3 - Q&A: https://youtu.be/ZG3y_cBoVro

Slides

Resources for Working with your Healthcare Provider

 

May 15 program is "Fibromyalgia." Featured speaker is Dr. Paul Monach,.Chief of the Rheumatology Section in the Boston VA Healthcare System, and an Associate Professor at Harvard Medical School. Dr. Monach will present an overview of symptoms, risk factors, diagnosis, overlap with other syndromes (CFS/ME, IBS, small fiber neuropathy, and others), and treatment, as well as some about pathophysiology, and a discussion of the emerging literature on biomarkers and brain imaging.
Register here.

 

Links to recordings, slides, and other resources from past events:

"Working with Your Healthcare Provider" April 24, 2022

"A Functional Medicine Approach to Complex Chronic Illnesses" March 20, 2022

"Applying for Social Security Disability if you have ME/CFS or Fibromyalgia" February 20 2022

"Physical and Occupational Therapy for ME/CFS and Similar Chronic Illnesses" January 16, 2022


 

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.