- Last Updated: 29 April 2022 29 April 2022
A monthly speaker series
3rd Sunday of each month at 4 p.m. ET
Free and open to everyone
“Sunday Conversations with MassME” is a monthly speaker series with discussion on a wide variety of topics. These sessions are appropriate for patients, family members/caregivers, and health care professionals. Sunday Conversations take place via Zoom on the 3rd Sunday of each month at 4 p.m. ET, and are free and open to anyone. Presentations are recorded for later viewing. Registration is required.
Working with Your Healthcare Provider was the topic for April. Featured speaker was Alba Azola, M.D., Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine and Co-director of the PMR Post-Acute COVID-19 Team (JH PACT) Program.
Full program: https://youtu.be/c7sACMrqsY0
Part 1 - Physician Perspective: https://youtu.be/5m1YadySvwA
Part 2 - Family Perspective: https://youtu.be/IFWMVNchb4g
Part 3 - Q&A: https://youtu.be/ZG3y_cBoVro
May 15 program is "Fibromyalgia." Featured speaker is Dr. Paul Monach,.Chief of the Rheumatology Section in the Boston VA Healthcare System, and an Associate Professor at Harvard Medical School. Dr. Monach will present an overview of symptoms, risk factors, diagnosis, overlap with other syndromes (CFS/ME, IBS, small fiber neuropathy, and others), and treatment, as well as some about pathophysiology, and a discussion of the emerging literature on biomarkers and brain imaging.
Links to recordings, slides, and other resources from past events:
"Working with Your Healthcare Provider" April 24, 2022
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.