Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Welcome to our website

The Massachusetts CFIDS/ME & FM Association Website Committee members have experienced CFIDS/ME and FM in their lives for an aggregate of about 125 patient-years. I think that vast patient knowledge, wisdom, and experience are reflected on this site. We have tried to construct the site to be very comprehensive, especially in the areas of Diagnosis, Treatment and Disability. We feel that the illnesses described by the 2003 Canadian Definition, the 1988 CDC Definition, and the London Criteria for ME established by Ramsay and Dowsett are all the same illness. We are using CFS/CFIDS/ME as the name of the illness to reflect that belief. We also think this is not the same as the illnesses described by the flawed CDC 1994 Definition of CFS or the even more deeply flawed Oxford Criteria for CFS. Anyone who wishes to evaluate the validity of the research carried out on CFS/CFIDS/ME needs to know the difference in the various definitions of the illness, their flaws, and which was used in a given study. So we have devoted a unique amount of space on our site to that topic.

In closing, I'd like to give special thanks to our Website Committee members and our professional website designer Karan Parkin of Parkin Design. Without their expertise, this website definitely wouldn't exist.

We have tried to design our site to have something for everyone. We hope you enjoy browsing here and that you come back often!

Lucy Dechéne
Website Committee Chairperson

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Volunteer

The Massachusetts ME/CFS & FM Association is made up entirely of patient volunteers and their families and friends. We need your help to keep the Massachusetts ME/CFS & FM Association running smoothly and to accomplish our mission. Please consider volunteering to help with this work.

Massachusetts ME/CFS Association provides training and on-going supervision to allow volunteers to offer support to patients/families, or to help keep our Association running. Most volunteer work is done from home, and time commitments/hours are flexible.

Volunteer for one-time commitment or longer.

  • Coordinator of Volunteers —our most urgent need! Recruit and manage the volunteers who power our Association. Learn more.
  • Patient Services - respond to requests for service and information from patients, using our website and database.
  • IT Manager —oversee and support our use of technology. Immediate need to help us rebuild our website. Learn more.
  • Help with our website! Specific opportunities are listed; needs are on-going.

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    Opportunities are available in many other areas such as: telephone support and other direct services to patients, membership support, advertising/public relations (outreach, mailings, distribution etc.) and help with events.

If you would like to help in these or other areas, please contact us

If you are a healthy family member or friend, we also need your help. We will talk with you about your interests, skills, and how you can contribute. Remember, even a little time, put together with the efforts of others, can accomplish a great deal.

Contact us to volunteer 

Thank you for your support!

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.