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The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

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Link to specific section of article with page breaks (About Fibromyalgia - Who Treats Fibromyalgia?)

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Executive Summary

The H.H.S. Chronic Fatigue Syndrome Advisory Committee (CFSAC) acknowledges the positive intent underlying the commission of reports from the Institute of Medicine (IOM) and the NIH Pathways to Prevention Workshop (P2P) and appreciates this opportunity to provide advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health (ASH).

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Coordinator of Volunteers

About this opportunity

Massachusetts CFIDS/ME & FM Association is seeking a Coordinator of Volunteers to recruit, orient, guide and appreciate the volunteers who power the Association. The Coordinator will work closely with selected Board members to develop recruiting plans, establish relationships, orient and guide new volunteers, set up a system to track volunteer activities, and plan an annual Volunteer Appreciation event. This position requires a 12-month commitment. Time is flexible (approximately 20 hours/month) and work will be done from home with occasional in-person meetings in the greater Boston area. This position is a great opportunity to showcase your skill at team-building and achieving desired outcomes.

Qualifications:

  • Self-starter; outgoing personality; strong communication skills.
  • Previous experience working with groups of volunteers.
  • Intermediate computer skills, including familiarity with using databases and the internet; must have own up-to-date equipment.
  • Commitment and enthusiasm for volunteering; sensitivity to circumstances of individual volunteers.
  • Focus on successful outcomes.
  • Willing to learn about CFIDS/ME and Fibromyalgia.

You don't have to be a patient to help in this way! This is perfect for a healthy friend or family member who has experience managing groups of volunteers, and a great resume-builder. If you are interested, please Contact Us.

Assistance for Physician Referral Feedback Letter

Dear Massachusetts CFIDS/ME & FM Association Member and Donor: 

We are in the process of updating our referral data base and hope that you may be able to lend some assistance.

One of our most important services to patients and their families is to provide referrals to knowledgeable and caring physicians and other health care providers. You know how important it is to find a health care provider who actually knows about and validates these illnesses. We have been providing referrals for over 25 years.

Our primary source of referrals is from fellow patients and their families.

Here's how you might help. If you have experience with a doctor/practitioner, specialist or non-specialist, and are willing to provide us with their information and your recommendation, you would really be helping other patients.

The information you provide us is kept strictly confidential and is entered into our referral data base without patients' names attached. We do not make our data base public, and we are careful not to refer too many patients to any one doctor.

You can help in one of two ways:

1. Fill-out a simple online Provider Recommendation Form. After we receive it, with your permission, we will call you to get a few more details on your recommendation.

Or

2. Fill-out our Health Care Provider Recommendation Questionnaire. This gives us the more complete information we need. If you can find the time and energy, just print-out the form, fill it out, and put it in the mail.

Either way, your effort and caring will be of real assistance. We would also like to take this opportunity to wish you a new year filled with peace, prosperity and many good things – Happy 2014!

With our appreciation,

The Massachusetts CFIDS/ME & FM Association

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.