Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Volunteers needed for Website Committee

Would you like to help with the MassCFIDS website? Work from home and by conference call with a wonderful group of dedicated volunteers! You can “start small” and decide if you would like to do more as you learn more. All new volunteers may participate in our monthly website conference call.

The following positions are open:

Writer(s): Start by writing up short news items – background information/links will be provided. Progress to longer pieces and working with Editorial Committee to help with other needed work. Work closely with our Editorial Committee and participate as desired in monthly website Editorial conference calls.
Qualifications: good writing skills, background in ME/CFS/FM content (research, issues, blogs and commentary).

Book reviewer(s): Read and write reviews of books relating to CFIDS/ME/CFS or FM, and appropriate for patients and families. Books for review will be provided and will become part of our library. Reviews will be submitted to our Editorial Committee for editing/approval, are copyright MassCFIDS, and may be posted on masscfids.org. In some cases, reviewer may recommend not posting a review.
Qualifications: Good judgment and general knowledge of published books on this topic. Excellent writing skills.

Photo Editor: Suggest/select photos for possible use on the website and printed materials, subject to review by the Website and Communications committees. Photos may appear on web pages, within articles/newsletters, and on marketing materials. Start by creating “lightboxes” on stock photo sites and downloading and sizing proofs, and advising on placement. Progress to purchasing the appropriate photos, managing the photo budget, downloading and preparing photos for use. May progress to helping design and format marketing materials, such as brochures and take-ones, for commercial printing online.
Qualifications: Ability to select appropriate images, understanding their potential use on the website or in other materials. Basic knowledge of graphics editing and web/print requirements. Ability to work cooperatively in a group and to meet reasonable deadlines.

Web Analytics: Monitor our web traffic using Google Analytics. Start by looking at Google Analytics standard reports and creating summaries for the Web Committee. Set up a system we can use going forward to track site usage. Progress to helping us understand which pages and content are the most useful and where problems exist, and how to make our site more useful to our visitors. Ultimately we would like to be able to use Google Analytics code to “tag” links to PDF’s and videos.
Qualifications: Analytical bent, curiosity, willingness to ask questions, find answers and learn from documentation. Some experience with web analytics or Google analytics would be helpful. A one-year commitment is requested.

Content posting: Use our content management system to post/update content. Since this requires some training, we ask for a one-year commitment. Work on updating content on MassCFIDS.org, working with graphics, and suggesting improvements to page layouts.
Qualifications: No coding or technical knowledge is needed. Most important qualification is attention to detail. Second is good writing/editing skills (grammar and punctuation) and familiarity with word processing. Some understanding of how websites work would be helpful. Ability to learn new concepts and comfort with computers can substitute for direct experience.

Needs are on-going.

Contact us to volunteer.

New ME/CFS Primer for Clinical Practitioners

Date: 5/15/2012

Dear Members, Colleagues and All who are interested in Chronic Fatigue Syndrome,
On behalf of the board of directors of the International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME), I am pleased to announce the release of the ME/CFS Primer for Clinical Practitioners. (ME/CFS and CFS/ME are equivalent terms.) The goal of the Primer is to provide the information necessary for clinicians to understand, diagnose, and manage the symptoms of ME/CFS. The text was developed over two years by the 11-member Primer Committee and externally reviewed by a number of international ME/CFS specialists and advocates.

Highlights of the Primer include:

  • A summary of the pathophysiological effects of ME/CFS to date
  • A user-friendly diagnostic worksheet utilizing the Canadian Consensus Criteria
  • Straightforward treatment suggestions covering an array of ME/CFS symptoms
  • Emphasis on post-exertional malaise and activity management
  • Sections on special populations/ problems (e.g. severely affected, pediatric ME/CFS, pregnancy)

The full Primer document is available on the IACFS/ME website (Link to Primer) in a printer-friendly format with a requested donation of $15 to help continue the work of IACFS/ME. We hope you find the Primer to be a useful adjunct to your practice and a worthy companion to your reference library.

With best regards,
Fred

Fred Friedberg, PhD
Chairperson
Primer Committee

President
IACFS/ME
www.iacfsme.org

Link to Primer

Driving Directions to UMass-Hinton State Laboratory

Detailed driving directions to

UMass-Hinton State Laboratory Auditorium, Massachusetts Department of Public Health
305 South St, Jamaica Plain, MA 02130

From the South
From the Southwest
From Brighton
From Brookline
From Mass Pike (west of Rt. 128) and 95/128 coming from the North

From the South

Get on Rt 28 North towards Milton

  • Head North on Rt 3. Pass the exit for Union Street, Braintree. Watch the signs for 93 South/128. You will keep to your left. DO NOT take 93N towards Boston.  Rt 93 South becomes Rt 95North /128. Take Rt 28 North towards Milton.
  • From Randolph- take Rt 28 North, Main Street, towards Milton.
  • An option: from the South, take 128 N to Rt 28N exit 5B. If you choose this option, you will not be going as far on Rt 128/93South

Rt 28 becomes Randolph Rd. Go until the end.

At the end, make a short right turn onto Canton Ave.
It is not even a car length and you again will have to go right or left. Go left onto Adams Street. Again a short distance,
At the light, make a left onto Washington St.
You'll see a Y in the road pretty quickly. At the Y, bear Left onto Morton St. stay straight
You'll cross Blue Hill Ave. There is a Mobil station on the left after the light at Blue Hill Ave.
Go through the light at Harvard St. (New development of town houses on left). Stay straight

After the light at Harvard St, you go through 2 more lights. When you come to the rotary, you’ll be coming in at 6 O’Clock.
You’ll want to exit at 1 O’Clock. It is the 3rd right off the rotary. Do not go up on the bridge.  (1st right goes to Franklin Park, 2nd right goes to Center St in Jamaica Plain, 3rd right goes to Washington St, Jamaica Plain and the 4th right is right next to the 3rd right and goes up over a bridge)

As you come down the ramp of that 3rd turn, you'll come to a light. That is Washington St. Go through that light to the next light.

Make a left at the light onto South Street.

Go straight under the overpass.

At the next light, go Right at South St. For some reason, South Street doesn't go in a straight line.

The building is the 2nd major driveway on the right and the sign will say Dept of Public Health, UMass Medical. The Hinton building is dead ahead.

From the Southwest

Head north on Rt 95 to where it intersects with Rt 128. Follow the signs to Rt 95 North/128. (Rt 128 South/93N is the wrong way)

From Rt 24 North, the road will fork at the end with the intersection of Rt 24 and Rt 128. Bear to the left onto 95 North/128.
While on Rt 95 N/128, you will pass an exit for EAST St.

The next exit is exit 15A, Dedham.
Take exit 15A Dedham, Rt 1 NORTH, Providence Highway. You will pass Legacy Place shopping Center on your right. Keep going.

There is a light at the corner of Eastern and Rt 1. There is a Staples on your right. The next light is the intersection with Washington St.
Bear right onto Washington St. go 4.6 m

When you pass the Forest Hills T station on your right, watch for South St on your left.  South Street is at a light just BEFORE the overpass and the intersection with Rt 203. There is an earlier left onto South Street, but continue until you see the T on your right. At that light, take a left onto South St go .1 m. 
Make a right into the 2nd driveway on your right which is the UMass Medical School, Hinton State Laboratory. Park.

From Brighton

Take Washington Street towards Brookline. You will cross Beacon Street. Washington Street merges with Harvard Street a block before it ends.  At the end, Brookline Bank is on your right. That light is the intersection of Rt 9, Huntington Ave and considered to be Brookline Village but there is no sign saying that. Make a left (south, heading into Boston)) onto Rt 9, Huntington Ave.

The next light is in front of Brook House apartments. Stay straight a very short distance.

Just before the overpass, make a RIGHT onto the Jamaica Way. (on the entrance ramp, there is a right off of it. Keep to the left and enter the Jamaica Way. The road curves a bit, keep to the left and stay on the Jamaica Way.

When you come to the rotary, you will enter at 6 o’clock and you’ll get off at 12 o’clock. Basically, you want to go straight ahead. FYI- Rt 1 is a right turn at 3 o’clock and you will see a sign for the Faulkner Hospital.  Once around the rotary, the name changes at some point from the Jamaica Way to the Aborway.
You will pass the Arnold Aboretum on your right. Shortly afterwards, there will be a small sign for Forest Hills. Bear RIGHT and take that exit. Do not go over the bridge.

At the end of the exit, there is a light. Make a RIGHT onto South Street. At the next light, make another RIGHT onto South Street. The building is the 2nd major driveway on the right and the sign will say Dept of Public Health, UMass Medical School. The Hinton Auditorium Building is dead ahead. Park.

(If you do miss the exit off the Aborway, do not panic. At the end of the bridge is another rotary. Go around it and come back but DO NOT OVER the bridge. Keep to the right of the bridge follow signs for Forest Hills (frontage road). Cross Washington St (a light). At the 2nd light go left onto South St, at the 2nd light, go right onto South St. go right into 2nd driveway)

From Brookline

Go east on Rt 9 heading into Boston.  Go through the intersection at Brookline Village (Brookline Bank on the left corner, Dunkin Donuts on your right) Rt 9 becomes Huntington Ave. Stay in the right lane. The next light is in front of Brook House apartments. Stay straight a very short distance.

Just before the overpass, make a RIGHT onto the Jamaica Way. (on the entrance ramp, there is a right off of it. Keep to the left and enter the Jamaica Way. The road curves a bit, keep to the left and stay on the Jamaica Way.

When you come to the rotary, you will enter at 6 o’clock and you’ll get off at 12 o’clock. Basically, you want to go straight ahead. FYI- Rt 1 is a right turn at 3 o’clock and you will see a sign for the Faulkner Hospital.  Once around the rotary, the name changes at some point from the Jamaica Way to the Aborway.
You will pass the Arnold Aboretum on your right. Shortly afterwards, there will be a small sign for Forest Hills. Bear RIGHT and take that exit. Do not go over the bridge.

At the end of the exit, there is a light. Make a RIGHT onto South Street. At the next light, make another RIGHT onto South Street. The building is the 2nd major driveway on the right and the sign will say Dept of Public Health, UMass Medical School. The Hinton Auditorium Building is dead ahead. Park.

(If you do miss the exit off the aborway, do not panic. At the end of the bridge is another rotary. Go around it and come back but DO NOT OVER the bridge. Keep to the right of the bridge follow signs for Forest Hills (frontage road). Cross Washington St (a light). At the 2nd light go left onto South St, at the 2nd light, go right onto South St. go right into 2nd driveway)

From Mass Pike (west of Rt. 128) and 95/128 coming from the North

Take exit 14 from the Mass Pike (Rt. 95/128).  Get on 95/128 going South (Providence/Cape Cod).

Take Exit 20B - Rt. 9 East heading towards Boston.

Stay on Rt. 9 (Boylston St.) for 6-7 miles.  You will get to Brookline Village (see directions above).  Follow "From Brookline" directions from there.

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.