Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Videos of our many Massachusetts events and panels, 2017 & 2018

Boston University, College of Health and Rehabilitation Sciences: Sargent College, October 2018. Introductory remarks and panel discussion. View the video.

Cooley Dickinson Hospital, Northampton MA, May 2018. Introductory remarks and panel discussion. View the video.

Massachusetts State House, April 2018. Introductory remarks and panel discussion. View the video.

Massachusetts Department of Public Health, Boston, March 2018. Introductory remarks and panel discussion. View the video.

Regent Theatre, Arlington MA, Nov. 2017. Introductory remarks and panel discussion. View the video.

Videos of our organization’s members, ME/CFS Alert interviews with Llewellyn King

Screen_Shot_2022-01-14_at_5.51.53_PM.png

NEW! Interview with Rivka Solomon | ME/CFS Alert Episode 130, January 2, 2022
Rivka Solomon discusses exciting ME/CFS advocacy successes, how advocacy can impact the health of ME/CFS advocates, shortcomings of the NIH, and more.

 

The work of the Massachusetts ME/CFS & FM Association | ME/CFS Alert Episode 114, June 1, 2020
Charmian Proskauer talks about our association's efforts to help people with ME/CFS & FM during the COVID-19 pandemic.
This interview was originally broadcast on White House Chronicle, Llewellyn King's syndicated public affairs program, on PBS on April 23, 2020

 

 bobr

Disability and Social Security with ME/CFS, Interview with Robert Robitaille | ME/CFS Alert Episode 100, September 13, 2018
Robert Robitaille discusses his personal experience fighting for disability benefits for his daughter, Robie who has ME.

 

 Robie

Living with ME/CFS: Robie's Story | ME/CFS Alert Episode 99, August 26, 2018
Robie talks about her daily life with ME.

 

Llewellyn King talks with members of our Association in his ME/CFS Alert video series, recorded on March 24, 2017.

Libby's experience with ME | ME/CFS Alert Episode 90, published on June 1, 2017

In this conversation, Libby tells of her long journey from being bedridden with ME to being able to function, albeit at a reduced level from when she got ill. She says that a series of holistic therapies, including a special diet, have been working for her.

 

The work of the Massachusetts CFIDS/ME & FM Association | Episode 86, published on March 29, 2017 

 

ME/CFS Diagnosis, children with ME, and the medical community with Alan Gurwitt, M.D. (Episode 87), published on April 12, 2017

 

Children with ME, Being an Advocate and Advice for Parents | ME/CFS Alert Episode 88, published on April 23, 2017

More to come...

Videos from our annual lecture series with ME/CFS leaders and researchers, 2010 to the present

View the videos of our 2021 lecture event, featuring presentations from NIH-funded ME/CFS researchers, including Vicky Whittemore (NIH), Avi Nath (NIH), Ian Lipkin (Columbia), Derya Unutmaz (Jackson Laboratory), Maureen Hanson (Cornell), and Cindy Bateman (Bateman-Horne Center). Also includes a Q&A panel discussion.

View the videos of our 2020 lecture event with the Open Medicine Foundation, including Dr. Ron Tompkins, Dr. David Systrom, Dr. Donna Felsenstein, and a panel discussion.

View the video of Dr. Michael VanElzakker's 2019 lecture, "Investigating ME/CFS at the intersection of the nervous and immune systems," and the video of the question and answer session.

View the video of David Tuller's 2018 lecture, "How Investigative Journalism Succeeds In a Hostile Medical Environment"

View the video of Linda Tannenbaum's 2017 Open Medicine Foundation lecture, "ME/CFS Research Update"

View the video of Dr. Anthony Komaroff's 2016 lecture, "ME/CFS: A Surge of Interest and Knowledge"

View the video of Dr. Khosro Farhad's 2015 lecture, "Fibromyalgia and Small Fiber Polyneuropathy"

View the video of Dr. Anthony Komaroff's 2013 lecture, "The Latest Research on CFS"

View the video of Dr. Jo Solet's 2013 lecture, “The Science of Sleep”

View the video of Dr. Byron Hyde 's 2012 lecture, “Why Doctors Can’t Diagnose and What Tests Should be Considered”

View the video of Dr. David Bell's 2011 lecture, "25 Year Follow-up in Chronic Fatigue Syndrome: Rising Incapacity"

View the video of Dr. Anthony Komaroff's 2010 lecture, "The Latest Research on CFS"

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.