- Last Updated: 28 April 2021 28 April 2021
Watch: PBS NewsHour video (4 min.) on ME/CFS and Long COVID, with MassME’s Rivka Solomon.
- Last Updated: 17 April 2021 17 April 2021
In this month's newsletter:
- Community Appreciation Event, April 29, 7 PM (ET)
- US ME/CFS Clinician Coalition Recommendations
- International ME/CFS Awareness Day, May 12
- CDC Stakeholder Call, May 13, 3 PM (ET)
- MGH Research Study Seeking Participants
- Volunteer Spotlight
- Support Groups in April
- Last Updated: 18 April 2021 18 April 2021
What is Long COVID?
Over 31 million cases of COVID-19 have been reported in the U.S., with well over 566,000 deaths.
About 10 – 20% of people who have COVID-19, including people who have only mild symptoms, do not fully recover. Many of these people experience a variety of symptoms for many months. This is being called “Long COVID.”
Three million or more people in the U.S. may develop Long COVID. In Massachusetts 60,000 - 100,000 people may have Long COVID.
Long COVID is a “post-viral” illness.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.