- Last Updated: 05 December 2020 05 December 2020
MassME joined the Solve ME/CFS Initiative and 18 other leading chronic disease stakeholders in sending a powerful letter urging Congress to fund millions of dollars in new National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC) research into the post-viral health complications for long-term COVID-19 (Long COVID) survivors. According to Dr. Anthony Fauci, roughly 2.6 million Americans could be temporarily or permanently disabled by Long COVID symptoms. Congress must act now and fund new research into the health needs of this rapidly growing patient population.
- Last Updated: 03 December 2020 03 December 2020
It is time for our annual funds appeal. We need your donations to continue supporting people with ME/CFS and FM in Massachusetts and beyond. We had a busy 2020 building our support group program and improving our provider referral process, among other projects, and we have big plans for 2021. Please support us by becoming a member or donating now! Read on for more details about our 2020 activities, our 2021 plans, and why you should give today.
- Last Updated: 19 December 2020 19 December 2020
In this month's newsletter: our first ever Art Share Event, a presentation on NIH research, new continuing medical education courses to share with your providers, links to the videos of our annual meeting, a reminder to contact your US Representative about HR7057, and our upcoming support groups. Read on for details.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.