The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 21 October 2019 21 October 2019
In this month's newsletter, an invitation to our annual event on October 26th at Newton-Wellesley Hospital, a thank you to everyone who donated to the Half Marathon Fundraiser, an award for the film Unrest, a course for parent caregivers, exciting news about the IACFS/ME conference, and a reminder to download papers from the ME/CFS special issue. Read on for all the details.
- Last Updated: 19 October 2019 19 October 2019
Registration is now open for our Annual Event on Saturday, October 26th, 2019 from 1 to 4 pm at Newton-Wellesley Hospital, featuring Dr. Michael VanElzakker of MGH/Harvard Medical School. Please join us for a brief business meeting, a research presentation by Dr. VanElzakker, an update on the Harvard ME/CFS Collaboration, and a chance to meet fellow members of the Association. We look forward to seeing you! Register here.
Investigating ME/CFS at the intersection of the nervous and immune systems
Dr. Michael VanElzakker of MGH/Harvard Medical School
When: Saturday, October 26th, 2019 1:00 PM to 4:00 PM
Doors open at 12:30 p.m. for check-in
Shipley Auditorium, Bowles Conference Center
Newton Wellesley Hospital
2014 Washington St.
Newton, MA 02462
Park in the lot near the West (Main) Entrance. Directions from the parking areas to the Auditorium can be found here.
Join or renew your membership at the event! This program is open to the public and free to members of the Association, journalists, researchers and health care professionals; $15 voluntary donation for non-members.
Michael VanElzakker, PhD is a research fellow in the neurotherapeutics division of Massachusetts General Hospital / Harvard Medical School.
Dr. VanElzakker will discuss some challenges and opportunities in using brain scans to study communication between the immune and nervous systems. He will describe two ongoing studies that seek to elucidate autonomic dysfunction and possible neuroinflammation in ME/CFS. He will also give an update on the OMF-funded Harvard ME/CFS Collaboration.
Download the event flyer here! Please distribute widely.
- Last Updated: 21 August 2019 21 August 2019
In this month's newsletter, a new course for school nurses (and social workers and counselors), a chance to help our community win a $100,000 prize to fund a research conference, and a chance to contribute to a journal article, plus some reminders about upcoming events. Read on for all the details.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.