Sunday Conversations - May 19, 2024
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- Last Updated: 03 June 2024 03 June 2024
"Are You M.A.D.? An axis awry of Mast cell activation disease, Autonomic neuropathy, and Disorders of connective tissue"
Sunday, May 19, 2024, 4 p.m. Eastern Time
Dr. Anne Maitland
A growing body of evidence is linking heritable disorders of connective tissue, such as Ehlers Danlos Variants, with dysautonomia and mast cell dysfunction, which lead to chronic fatigue, brain fog, irritable bowel symptoms and pain syndromes. Dr. Maitland presented a brief review of the diagnosis and relationships of this clinical triad, MCAD, Autonomic dysfunction, and Disorders of connective tissue or hEDS. A better understanding of these relationships should lead to multi-disciplinary clinical therapies to help right this trio of modern day epidemics.
Run/Walk/Roll for ME and the Long Haul with Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9
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- Last Updated: 10 April 2024 10 April 2024
Run/walk/roll for ME and the Long Haul!
Join Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9
Run for ME! Run for the Long Haul! Help us to raise awareness of ME/CFS and Long COVID, and to fund MassME's ongoing information and support programs.
Register as a participant
We know that 5K is a marathon — or beyond — for many with ME or LC. Ask healthy friends or family members to run on your behalf with Team MassME using this link. The 5K course will be accessible to wheelchairs, including motorized devices, and anyone needing assistance to participate can be accompanied by up to two support members who do not need to register.
The registration process is simple. The fee to register is $40 (plus a $4 processing fee).* Each participant will have their own fundraising page associated with Team MassME.
Support our team
You can donate at our main team page, or choose one of our team members to support their efforts! All donations will help us continue to bring you information and support programs. Together, we are stronger!
If you have any questions, please contact Susan Buckley.
*If the fee is a financial hardship, please let us know..
You can support Team MassME by clicking here. No amount is too small!
2024-04 April Newsletter
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- Last Updated: 08 April 2024 08 April 2024
April 2024
In this month's newsletter:
- April Events
- Sunday Conversations
- Young Adult Support Group - Spring Session
- Special Summer Event
- New Member Benefit
- ME/CFS Sleep Study
- Newsworthy Events and Links
More Articles ...
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.