- Last Updated: 18 May 2020 18 May 2020
In this month's newsletter, a recap of Advocacy Day and Millions Missing, information about support groups (May 24 and 31) and more small group meetings, and Charmian Proskauer featured on White House Chronicle. Read on for all the details.
Press Release: Researchers Expect COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out.
- Last Updated: 12 May 2020 12 May 2020
Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME - also known as chronic fatigue syndrome or ME/CFS), a debilitating illness that affects more than 1 million Americans.
- Last Updated: 19 April 2020 19 April 2020
In this month's newsletter, information about Advocacy Day (April 21), new support groups (April 25 and 26) and Millions Missing (May 12), links to support services, and an ME/CFS specific request for proposals from NIH. Read on for all the details.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.