- Last Updated: 13 May 2019 13 May 2019
Boston ME/CFS Protest to Feature Speeches, Display, and Performances
Large crowd expected on Boston Common for #MillionsMissing Demonstration
BOSTON, MA, 5/6/2019---On Saturday, May 11 from 1:00-3:00pm, Massachusetts residents living with ME/CFS, also known as Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS), will rally at the Boston Common Liberty Mall together with caretakers and allies to call for immediate and comprehensive action on the ME/CFS public health crisis. They will join thousands of others demonstrating physically in more than 80 cities worldwide and virtually on social media as part of the fifth global #MillionsMissing protest.
- Last Updated: 17 May 2019 17 May 2019
We had a successful trip to Washington, DC for Advocacy Day and the NIH conference, we are planning a Millions Missing Event on Boston Common on Saturday, May 11 from 1 to 3 pm, Brigham and Women's Hospital is conducting a research study on fibromyalgia pain, and NIH is seeking your input on how to advance research.
- Last Updated: 27 March 2019 27 March 2019
It has been a busy March and we are gearing up for an even busier April with the Washington DC Advocacy Day on April 3rd and the NIH Conference on April 4th and 5th. In this issue, we have an advocacy alert about a Veteran's Administration proposal, an invitation to join a research study at MGH, an arts and culture benefit with EBT cards, and a way for you to help us get free advertising in the Boston Globe.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.