- Last Updated: 10 February 2020 10 February 2020
In this month's newsletter, a survey about support groups, an announcement about the Washington DC Lobby Day on April 21, 2020, two research studies that need your participation, and a new, free online course. Read on for all the details.
- Last Updated: 15 January 2020 15 January 2020
We are deeply saddened to bring you news of two deaths in our Massachusetts ME/CFS community: Elizabeth (Libby) Potter and Heather Colman-McGill.
- Last Updated: 26 November 2019 26 November 2019
In this month's newsletter, a review of our annual event, congratulations to our local Ramsay Award winners, an appeal for the AMMES Financial Crisis Fund, a webinar on December 12, 2019, an announcement of the next Washington DC Lobby Day on April 21, 2020, and a reminder to download papers from the ME/CFS special issue. Read on for all the details. We wish you all a lovely Thanksgiving.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.