- Last Updated: 21 December 2021 21 December 2021
In this month's newsletter:
- Matching Donations!
- Mark Your Calendars: CDC Call
- A Very Special Thank You to MassME Past President Leah Williams
- Warm Wishes for a Joyous Holiday Season!
Between now and December 31 our board will match donations, dollar for dollar, up to $5,000.
Contribute now so your gift will be doubled!
Your generous gift will enable us to:
- Hire professional facilitators for our growing on-line support group program;
- Improve our outreach to underserved communities;
- Increase the number of health care, social service and legal professionals that are able and willing to provide services to people with ME/CFS and related illnesses.
Remember that even if you don’t itemize your deductions on your federal taxes, for 2021 you can take a $300 deduction for charitable contributions ($600 if married and filing jointly).
- Last Updated: 02 December 2021 02 December 2021
On Tuesday, December 14, from 5-6:30pm we are launching a new monthly zoom discussion group entitled:
Looking at How ME/CFS Research Might Apply to our Care.
- Last Updated: 21 November 2021 21 November 2021
We have posted the video of our 2021 Annual Meeting, Advances in our Understanding of ME/CFS and the Effects of Long COVID, featuring presentations from NIH-funded ME/CFS researchers, including Vicky Whittemore (NIH), Avi Nath (NIH), Ian Lipkin (Columbia), Derya Unutmaz (Jackson Laboratory), Maureen Hanson (Cornell), and Cindy Bateman (Bateman-Horne Center). The event drew 560 registrants from 20 countries. If you missed it live, watch it here. The 3 and a half hour event is broken into 12 segments within a video playlist to enable targeted viewing by speaker. Make sure to watch the Q&A section, as well as the 10 minute breaks which are full of relaxing music and interesting facts about ME/CFS.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.