- Last Updated: 17 May 2019 17 May 2019
We had a successful trip to Washington, DC for Advocacy Day and the NIH conference, we are planning a Millions Missing Event on Boston Common on Saturday, May 11 from 1 to 3 pm, Brigham and Women's Hospital is conducting a research study on fibromyalgia pain, and NIH is seeking your input on how to advance research.
- Last Updated: 27 March 2019 27 March 2019
It has been a busy March and we are gearing up for an even busier April with the Washington DC Advocacy Day on April 3rd and the NIH Conference on April 4th and 5th. In this issue, we have an advocacy alert about a Veteran's Administration proposal, an invitation to join a research study at MGH, an arts and culture benefit with EBT cards, and a way for you to help us get free advertising in the Boston Globe.
- Last Updated: 03 March 2019 03 March 2019
In this newsletter, we cover a reminder about National Advocacy Day (April 3) and the NIH Conference on ME/CFS (April 4/5), two new continuing medical education (CME) resources for health care providers, a summary of our successful event at Hampshire College on February 21, and activities at the Centers for Disease Control and Prevention (CDC).
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.