Long COVID - Lessons Learned from ME/CFS
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- Last Updated: 18 April 2021 18 April 2021
What is Long COVID?
Over 31 million cases of COVID-19 have been reported in the U.S., with well over 566,000 deaths.
About 10 – 20% of people who have COVID-19, including people who have only mild symptoms, do not fully recover. Many of these people experience a variety of symptoms for many months. This is being called “Long COVID.”
Three million or more people in the U.S. may develop Long COVID. In Massachusetts 60,000 - 100,000 people may have Long COVID.
Long COVID is a “post-viral” illness.
2021-03 March Newsletter
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- Last Updated: 26 March 2021 26 March 2021
Dear Friend,
In this month's newsletter:
- Big NIH ME/CFS Research Grant to UMass Medical School
- Pandemic Resources
- NIH Telebriefing, March 30th
- Advocacy Day, April 20th
- In Memory of Heather Colman-McGill
- Support Groups in March
Exciting News! Big ME/CFS Research Grant
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- Last Updated: 17 March 2021 17 March 2021
Massachusetts ME/CFS & FM Association is thrilled to announce that the NIH has awarded a $2.5 million grant to the two-woman UMass Medical School research team of Liisa Selin, MD, PhD, and Anna Gil, PhD, for their work on ME/CFS.
For more details, read the MassME press release.
MassME is pleased to have supported this research team over the years, including notifying our newsletter recipients that these innovative researchers had received the Ramsey award and needed blood donations. People responded enthusiastically, allowing Drs. Selin and Gil to move this necessary research forward.
Additionally, the UMass Medical School researchers met with our Research Club and shared their cutting-edge findings. You can view a video excerpt of that meeting, and the research is summarized on this poster. It is also exciting to us that this money is coming to a Massachusetts institution. After all, Massachusetts is a medical hub for the world, and it should also be that for ME/CFS. This grant builds on the research this team did with a seed grant from the Solve ME/CFS Initiative's Ramsay Program.
Thanks, Liisa Selin and Anna Gil, for all your hard work for our community!
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.