The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
2019-06 June Newsletter
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- Last Updated: 23 July 2019 23 July 2019
Dear Friend,
This month's newsletter brings you news about the collaborative research center in Boston, an invitation to an online mindfulness seminar, the availability of a print version of the Pediatric Primer, and links to videos of recent interviews with members of the ME/CFS community.
Good News!
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- Last Updated: 23 July 2019 23 July 2019
2019-05 May Newsletter
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- Last Updated: 18 August 2019 18 August 2019
Dear Friend,
In this issue, we have an invitation to an Open Medicine Foundation event on June 8th, a summary of our successful Boston Millions Missing event, exciting news about the US Senate Resolution in support of ME/CFS awareness, and two dates to mark on your calendar (a CDC ME/CFS stakeholder call on June 3rd and our annual event on October 26th).
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.