The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 23 March 2020 23 March 2020
In this month's newsletter, an announcement about new MassME/CFS & FM groups, information about Advocacy Day (April 21, now virtual) and Millions Missing (May 12, now virtual), a survey on durable medical equipment from BCIL, an opportunity to tell your story to American Portrait 2020, and some information resources about coronavirus. Read on for all the details.
- Last Updated: 10 February 2020 10 February 2020
In this month's newsletter, a survey about support groups, an announcement about the Washington DC Lobby Day on April 21, 2020, two research studies that need your participation, and a new, free online course. Read on for all the details.
- Last Updated: 15 January 2020 15 January 2020
We are deeply saddened to bring you news of two deaths in our Massachusetts ME/CFS community: Elizabeth (Libby) Potter and Heather Colman-McGill.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.