2021-09 September Newsletter
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- Last Updated: 11 September 2021 11 September 2021
Dear Friend,
In this month's newsletter:
- Invisible Disabilities Panel Discussion, September 15, 12 noon
- MassME Annual Meeting: NIH Research Update, October 23, 12:30 PM
- Research Studies Need You!
- Mayo Clinic Proceedings Article on ME/CFS
- Beyond the Symptom: The Biology of Fatigue Conference, September 27-28
- Solve ME/CFS Initiative Lecture Series on Long COVID, Part 2, September 20
- NIH Seeks Public Comments on Gaps in Women's Health Research
2021-07 July Newsletter
- Details
- Last Updated: 20 July 2021 20 July 2021
Dear Friend,
In this month's newsletter:
- MassME Annual Meeting, October 23
- COVID-19 Vaccination for the Homebound
- New England Journal of Medicine: ME/CFS and Long COVID
- Medical Board of California Article on ME/CFS and Long COVID
- Be One in a Million: Join NIH All of Us Project
- Nurse Patti's Blog!
- Post-Pandemic Considerations for Forward Thinking Congregations: Resources
- Long COVID News
- Summer break in August for support groups and this newsletter
Announcing Nurse Patti's Blog!
- Details
- Last Updated: 19 July 2021 19 July 2021
We are delighted to announce that Patti Purcell, M.Ed. BSN, RN, will be writing a blog for our website on children and ME/CFS. She brings 30 years of experience, 26 years as a school nurse, to the topic. Check out her latest posts.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.