Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Press Release: Boston Millions Missing Event May 11th!

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Last Updated: 13 May 2019 13 May 2019

Boston ME/CFS Protest to Feature Speeches, Display, and Performances

Large crowd expected on Boston Common for #MillionsMissing Demonstration

BOSTON, MA, 5/6/2019---On Saturday, May 11 from 1:00-3:00pm, Massachusetts residents living with ME/CFS, also known as Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS), will rally at the Boston Common Liberty Mall together with caretakers and allies to call for immediate and comprehensive action on the ME/CFS public health crisis. They will join thousands of others demonstrating physically in more than 80 cities worldwide and virtually on social media as part of the fifth global #MillionsMissing protest.

Read more: Press Release: Boston Millions Missing Event May 11th!

2019-04 April Newsletter

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Last Updated: 17 May 2019 17 May 2019

2019-03 March Newsletter

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Last Updated: 27 March 2019 27 March 2019

Dear Friend,

It has been a busy March and we are gearing up for an even busier April with the Washington DC Advocacy Day on April 3rd and the NIH Conference on April 4th and 5th. In this issue, we have an advocacy alert about a Veteran's Administration proposal, an invitation to join a research study at MGH, an arts and culture benefit with EBT cards, and a way for you to help us get free advertising in the Boston Globe.

Read more: 2019-03 March Newsletter

More Articles ...

  1. 2019-02 February Newsletter
  2. 2019-01 January Newsletter
  3. Resources for the MGH Institute (and anyone else)
  4. Videos of MassMECFS & FM Unrest events
  5. “My Medical Insurance Story” Survey – summary of results

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.