- Last Updated: 18 August 2019 18 August 2019
In this issue, we have an invitation to an Open Medicine Foundation event on June 8th, a summary of our successful Boston Millions Missing event, exciting news about the US Senate Resolution in support of ME/CFS awareness, and two dates to mark on your calendar (a CDC ME/CFS stakeholder call on June 3rd and our annual event on October 26th).
- Last Updated: 13 May 2019 13 May 2019
Boston ME/CFS Protest to Feature Speeches, Display, and Performances
Large crowd expected on Boston Common for #MillionsMissing Demonstration
BOSTON, MA, 5/6/2019---On Saturday, May 11 from 1:00-3:00pm, Massachusetts residents living with ME/CFS, also known as Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS), will rally at the Boston Common Liberty Mall together with caretakers and allies to call for immediate and comprehensive action on the ME/CFS public health crisis. They will join thousands of others demonstrating physically in more than 80 cities worldwide and virtually on social media as part of the fifth global #MillionsMissing protest.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.