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Details: Last Updated: 21 September 2023 21 September 2023

September 2023 Links:

👥 Register for MassME Annual Event: "ME/CFS: Changing the Narrative" featuring Ed YongRegister for MassME Annual Event: "ME/CFS: Changing the Narrative" featuring Ed Yong

📄 Read the September Newsletter

📰 Read the Boston Globe article catching up with Massachusetts Long Haulers

✏️ Take the 2023 Massachusetts Dept of Public Health Community Health Equity Survey

👥 Register for "Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Fall Session"

August 2023 Links:

🧪 Learn more about the NIH ME/CFS Research Roadmap webinarLearn more about the NIH ME/CFS Research Roadmap webinar

👥 Register for Sunday Conversations: Living with Chronic Illness - August 20, 2023

👥 Register for "Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Summer Session"

📄 Read the August Newsletter

July 2023 Links:

📄 Read the July Newsletter

👥 Register for "Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Summer Session"

📽️Watch MassME Turns 40! Kickoff event: ZOOM through 40 years of ME/CFS with MassME!" Sunday, June 18, 2023, 4 p.m. Eastern Time

June 2023 Links:

👥 Register for "ZOOM through 40 years of ME/CFS with MassME!" Sunday, June 18, 2023, 4 p.m. Eastern Time

👥 Register for "Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Summer Session"

📄 Read the June Newsletter

May 2023 Links:

📽️ Watch the video from our Sunday Conversation on 'Using wearable technology to measure and manage Long COVID and ME/CFS" with Harry Leeming from #VisibleHealth

📄 Read the May Newsletter

April 2023 Links:

👥 Register for "What Every Provider Should Know About ME/CFS (and how their patients can help them learn)" Sunday, April 16, 2023, 4 p.m. Eastern Time

👥 Register for "Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Spring Session"

📄 Read the April Newsletter

March 2023 Links:

👥 Register for "The Broken Mishkan: Performance and Community Conversation with Sara Nesson", Sunday, March 19, 2023, 4 p.m. EST

👥 Register for "Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Spring Session"

📄 Read the March Newsletter

February 2023 Links:

📽️ Watch the video from our Sunday Conversation on 'Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life"

📰 Read about how Long Covid's affects the ability of patients to work in the New York Times

👥 Register for our young adult support groups on February 7th and February 18th

📄 Read the Februrary newsletter

January 2023 Links:

📽️ Watch the video from our Sunday Conversation on 'The Long Haul' with Ryan Prior and Cynthia Adinig

🩺 Learn more about our need for healthcare provider recommendations

🧑‍⚕️ Recommend a healthcare provider to MassME

📰 Read an article about the practice of pacing in the Boston Globe

📄 Read 'Long COVID: major findings, mechanisms, and recommendations' from Nature Reviews Microbiology

📚 Purchase Ryan Prior's book 'The Long Haul' from Buttonwood Books and Toys for a 15% discount using the code 'BOOK CLUB'

👨‍⚕️ Watch Dr. Anthony Komaroff's grand rounds presentation on ME/CFS

📃 Read an excerpt from Ryan Prior's new book in Newsweek magazine

December 2022 Links:

💵 Support our work with a year-end donation!

👨‍⚕️ Watch Dr. Anthony Komaroff's talk on ME/CFS and Long Covid from our 2022 Annual Meeting

📖 Read about the update to medical coding of ME/CFS in the United States

🚴 Watch Dr. David Systrom discuss the pathophysiology of exercise intolerance in ME/CFS

📄 Read our updated resources on applying for Social Security Disability

🙋 Learn more about volunteer opportunities with MassME!

🏛 Watch the COVID Oversight Committee's hearing on 'Understanding and Addressing Long Covid and its Consequences'

📽 Watch Dr. Khosro Farhad's talk on Small Fiber Polyneuropathy in Fibromyalgia

🦠 Read Time Magazine's article on post-viral illness

⚕️ Read about a new program from the CDC Foundation to create partnerships to address chronic conditions caused by infections

👨‍⚕️ Watch Dr. Anthony Komaroff address questions from the audience during our 2022 Annual Meeting

🗞 Read an article about about Brain Fog in the Washington Post

📰 Read about racial disparities in receiving care for ME/CFS and Long Covid in the Boston Globe

November 2022 Links:

⚓️ Learn more about why our logo is the Sankaty Head Lighthouse

🔬 Read about grants awarded by the Patient-Led Research collaborative to nine projects researching ME/CFS, Long Covid, dysautonomia, and related conditions

💰 Learn more about becoming the MassME treasurer and apply!

📺 Watch ABC News Live's segment on Long Covid

🎙️ Listen to an interview with Ryan Prior on #MEAction's Chronically Complex podcast

📖 Read about Ryan Prior's new book: 'The Long Haul: Solving the Puzzle of the Pandemic's Long Haulers and How They Are Changing Healthcare Forever'

🗂️ Read about new rules regarding free, digital access to your health records

💻 Read a write-up on our annual meeting from Health Rising by Cort Johnson

📽 Watch the videos from our 2022 Annual Meeting on the Emerging Similarities of ME/CFS and Long Covid and Why It Matters featuring Dr. Anthony Komaroff

🔬 Read Yale School of Medicine's article, featuring Rivka Solomon, on how Long Covid can help researchers understand ME/CFS

October 2022 Links:

📰 Read an op-ed in the Boston Globe article on taking action against Long Covid and other post infectious illlnesses

📽 Watch a video on how Traditional Chinese Medicine can help those with ME/CFS and Long Covid

🗞 Read the New York Times op-ed on how MillionsMissing protesters suffer from PEM in the wake of their action

📽 Watch a video on how ME/CFS and Long Covid are viewed in Traditional Chinese Medicine

📕 Read about how mental health practitioners can help people with Long Covid using lessons learned from treating those with ME/CFS

📰 Read the Boston Globe's article on how Long Covid impacts patients financially

🦠 Read the Boston Globe's resource guide for Boston-area Long Haulers

🤝 Explore the patient services we offer

📽 Watch the videos from our September Sunday conversation on Traditional Chinese Medicine

✋ Learn about volunteer opportunities with MassME

📖 Read about the update to medical coding of ME/CFS in the United States

September 2022 Links:

🗞 Read Ed Yong's article on ME/CFS and Long Covid in The Atlantic

💻 See Senator Markey's post about Ed Yong's article on ME/CFS and Long Covid in The Atlantic

👨‍⚕️ Watch Dr. Anthony Komaroff's grand rounds presentation on ME/CFS

🌅 Learn more about the new 5-session course "Coping with ME/CFS," and register

🏛 Read coverage of the #MillionsMissing protest in Washington, D.C. from The Hill

🎥 Watch the video from our event 'Invisible Disabilities: Long COVID and other Post-Infectious Chronic Illnesses' (click here to see a version with ASL interpretation)

🗺 Read the MassME strategic plan

📰 Read Dr. Wes Ely's Boston Globe opinion piece about the effects of Long Covid

📽 Watch Dr. Khosro Farhad's talk on Small Fiber Polyneuropathy in Fibromyalgia

🦠 Read Miriam Tucker's WebMD article on ME/CFS and Long Covid

🧠 Watch Dr. Michael VanElzakker's talk on ME/CFS at the Intersection of the Nervous & Immune Systems

August 2022 Links:

📰 Read the New York Times editorial: 'If You’re Suffering After Being Sick With Covid, It’s Not Just in Your Head'

⚕️ Read Health Rising's dive into Dr. Ian Lipkin's latest research paper

📽 Watch Dr. Ian Lipkin's Talk: 'An Interim Report on Solving the Mysteries of ME/CFS'

🔬 Read an interview with Dr. Avindra Nath about research into Long Covid and ME/CFS

🙋 Express interest in joining the MassME Board

🦸 Learn more about joining the MassME Board

📑 Read about testimony given to the COVID Oversight Committee from Long Covid advocates, as well as health and economic experts

🏛 Watch the COVID Oversight Committee's hearing on 'Understanding and Addressing Long Covid and its Consequences'

📽 Watch a PSA about Long Covid from the Solve ME/CFS Initiative

⏳ Learn more about the 'How Long?' campaign from the Solve ME/CFS Initiative

📆 Read about the history of the Massachusetts ME/CFS & FM Association

🩺 Learn more about the CNE course about ME/CFS for school nurses and register

🖍 Browse our back to school resources for educators and school nurses

📽 Watch a panel discussion of the film 'Unrest' filmed in 2018 at the Mass Dept of Public Health

🧑‍⚕️ Read about how ME/CFS is gaining new respect as researchers realize its similarities to Long Covid

👥 Register for the August Sunday Conversation!

🧠 Watch Dr. Michael VanElzakker discuss the effects of ME/CFS on the nervous system

July 2022 Links:

🚴 Watch Dr. David Systrom discuss the pathophysiology of exercise intolerance in ME/CFS

⚓️ Learn more about why our logo is the Sankaty Head Lighthouse

♿️ Read the Proclamation on the Anniversary of the Americans with Disabilities Act

📽 Watch Dr. Donna Felstenstein give an overview of the clinical aspects of ME/CFS

📑 Read about testimony given to the COVID Oversight Committee from Long Covid advocates, as well as health and economic experts

🏛 Watch the COVID Oversight Committee's hearing on 'Understanding and Addressing Long Covid and its Consequences'

☀️ Watch the CBS Sunday morning segment about Long Covid

📽 Watch Dr. Vera answer questions about whole person health approach to ME/CFS and Long Covid

🎨 Read the Boston Globe review of the 'Invisible Disabilities' exhibit at the Arthaus Gallery in Allston

June 2022 Links:

📽 Watch Dr. Vera's presentation on the whole person health approach to ME/CFS and Long Covid

🚌 Read about the need to plan for students with Long Covid in the coming school year

📽 Watch the videos from our June Sunday conversation about the whole person health approach to ME/CFS and Long Covid

📽 Watch the Empower M.E. Roundtable event with state advocates from the Solve ME/CFS Initiative

📖 Read about the update to medical coding of ME/CFS in the United States

📢 Watch #MEAction's #MillionsMissing 2022 Global Event

📽 Watch the Q&A from our recent Sunday Conversation on fibromyalgia

🏳️‍🌈 Help people with disabilities and chronic illness keep safe during Pride Month

🏫 Read about Congressmen McGovern and Raskin's visit to UMass Chan Medical School

📽 Watch a video of two patients describing their experiences with Fibromyalgia

May 2022 Links:

📽 Watch a video of Dr. Paul Monach providing an overview of Fibromyalgia

📽 Watch the videos from our May Sunday conversation on Fibromyalgia

👩‍⚕️ Watch Dr. Alba Azola provide a physician's perspective on building a positive doctor-patient relationship

🗞 Read Leah Stagnone's article about ME/CFS and Long Covid awareness from the Concord Monitor

April 2022 Links:

📽 Watch the videos from our April Sunday Conversation: "Working With Your Healthcare Provider"

🏥 Read an article about Long Covid and gaslighting by physicians

📺 Watch MassME's Rivka Solomon talk about advocating for people with ME/CFS and Long COVID on the PBS NewsHour

📈 Read an article re-calculating the impact of ME/CFS in the wake of Long Covid

🍷 See Rivka Solomon quoted in an article about medically vulnerable people unable to participate in Passover celebrations in-person

📽 Watch the Q&A from our Sunday Conversation about functional medicine

🏠 Learn more about obtaining assistance for housing and other essential needs such as food and heat in Massachusetts

📑 Read an announcement on a new comprehensive government effort to address Long Covid

👨‍⚕️ Watch Dr. Lenhardt speak about the role functional medicine can play in treating people with complex chronic illness

👨‍👩‍👧‍👦 Tips on how you can support friends and loved ones with ME/CFS

March 2022 Links:

📽 Watch Sharon, a person with ME/CFS, describe how functional medicine has helped her and her family in our March Sunday Conversation

📜 Read about Tim Kaine's recent discussion of the CARE for Long Covid Act

📽 Watch the videos from our March Sunday Conversation: "A Functional Medicine Approach to Complex Chronic Illnesses"

🏛 Learn more about meeting with members of Congress during Advocacy Month in May

🏛 Información en español sobre el Mes de la Abogacía 2022 en Mayo

📃 Read a essay on being a mother with chronic illness

📽 Watch MassME member Bob Robitaille speak about his family's experience with applying for disability

📰 Read the Boston Globe's article about how people from BIPOC communities are less likely to receive Long Covid care

🎨 Learn more about our new art therapy group

📽 Watch Ron Beluso, Esq speak about an attorney's role in the process of applying for disability

📄 Read Time Magazine's article about solving the puzzle of Long Covid

🏥 Read about the Greater Boston Recovery Cohort, a collaboration of six Boston-area hospitals studying Long Covid

📰 Read the Boston Globe review of 'The Invisible Kingdom: Reimagining Chronic Illness"

📽 Watch Ken Casanova's Talk on Applying for Disability

February 2022 Links:

📽 Watch the videos from our February Sunday Conversation: "Applying for Social Security Benefits if You Have ME/CFS or Fibromyalgia"

💻 View additional resources and links from our February Sunday Conversation on applying for Social Security Disability benefits

📱 Follow us on Twitter!

🗞 Read the New York Times article about exercise intolerance in ME/CFS and Long Covid

🚴‍♂️ Watch Dr. David Systrom's talk on exercise intolerance in ME/CFS

📽 Watch our February 2021 book event for The Puzzle Solver

👨‍💼 Watch Dr. Ken Fridman discuss post-viral illnesses and the role that OT's and PT's can play in its management

⭐️ Recommend a health care provider to us

🙏 Read an appeal for health care provider recommendations from our Patient Care Coordinator

📰 Read an article about Dr. Ron Davis in the Times: "Could this scientist have the answer to long Covid?"

👩‍⚕️ Watch rehabilitation physician Dr. Alba Azola reflect on she has learned about ME/CFS

✡️ Read Rivka Solomon's interview with JewishBoston.com for Jewish Disability, Awareness, and Inclusion Month

📔 Watch or read an interview with #MEAction's Jaime Seltzer on ME/CFS and Long Covid in Infection Control Today

January 2022 Links:

👨‍💻 Watch occupational therapist Amy Mooney speak about the role of PT and OT in ME/CFS and Long Covid

😷 View resources for Long COVID/PASC patients

💙 Read our tribute to Dr. Ron Tompkins

🧠 Learn about Dr. Michael VanElzakker's study on neuroinflammation in Long Covid

📽 Watch the videos from our January Sunday Conversation: "Physical and Occupational Therapy for ME/CFS and Similar Chronic Illnesses"

📰 Read Jennie Spotila's opinion piece in the Philadelphia Inquirer: "I Have a Chronic Illness. During COVID, isn't My Life Worth Protecting?"

👨‍⚕️ Watch Dr. Anthony Komaroff's grand rounds presentation on ME/CFS

💬 Learn about 'Sunday Conversations,' our new monthly speaker series

📄 Read Cort Johnson's summary of our October annual meeting on his Health Rising blog

🚶‍♂️ Learn more about the January edition of Sunday Conversations: "Physical and Occupational Therapy for ME/CFS and Similar Chronic Illnesses"

📷 Read about authentic stock photos representing people with ME/CFS from the German Association for ME/CFS

👩‍💻 Watch an interview with MassME member Rivka Solomon on ME/CFS Alert

December 2021 Links:

📒 Read a summary of the most interesting ME/CFS research of 2021 by the ME/CFS Skeptic Michiel Tack

📽 Watch ''The Tangled Story of ME/CFS,' the newest film from Dialogues for ME/CFS

📖 Read the 1990 Newsweek article on ME/CFS

🎧 Listen to an NPR program discussing Long Covid as well as ME/CFS

💉 Learn about vaccination opportunities in Massachusetts for people with disabilities

👨‍⚕️ Watch Dr. Anthony Komaroff's grand rounds presentation on ME/CFS

👩🏿‍🎨 Read about Ijeoma Ogwuegbu, a Nigerian artist with fibromyalgia

🎥 Watch the videos from our event: 'Advances in Our Understanding of ME/CFS and the Effects of Long Covid'

📔 Read our primer for people who are newly diagnosed with ME/CFS

👥 Read about how people can be a true and helpful friends to someone with ME/CFS

📰 Read the article from The Atlantic: 'Even Health Care Workers With Long COVID Are Being Dismissed'

November 2021 Links:

👩‍💻 Learn more about our new monthly discussion group and register

📞 If you live in Massachusetts and would like to receive a physician referral, contact us

🎥 Watch the videos from our event: 'Advances in Our Understanding of ME/CFS and the Effects of Long Covid'

📒 View the MassME handbook on applying for disability

📖 Read the 1990 Newsweek article on ME/CFS

💻 Connect with us on LinkedIn!

🔬 Read about the ME/CFS research of Drs. Liisa Selin and Anna Gil at UMass Chan Medical School

October 2021 Links:

🌟 Learn more about our event 'Advances in Our Understanding of ME and the Effects of Long Covid'

🎥 Watch the video from our event 'Invisible Disabilities: Long COVID and other Post-Infectious Chronic Illnesses (click here to see a version with ASL interpretation)

💻 Read Cort Johnson's post about our upcoming annual meeting on Health Rising

👩‍💼 Read an article about Chronically Capable, a platform connecting people with chronic illness and disability with employment opportunities

September 2021 Links:

🌟 Learn more about our event 'Advances in Our Understanding of ME and the Effects of Long Covid'

👨‍💼 Learn more about job accommodations

📬 Read David Tuller's letter to the chief executive of NICE urging them to publish their new ME/CFS guidelines without delay

✏️ Sign the #CodeUsCountUsCureUs petition urging The U.S. National Center for Health Statistics to fix the coding for ME/CFS in the U.S. International Classification of Diseases

📽 Watch a promotional video with audio description for our event on post-infectious chronic illnesses with the Health and Disability Partnership at the Ma ssachusetts Department of Public Health

💊 Learn more about a Vitamin B3 study for Long Covid symptoms

📖 Read the new clinical guidelines for diagnosis and management of ME/CFS from the US ME/CFS Clinician Coalition in the Mayo Clinic Proceedings

📒 View the MassME handbook on applying for disability

August 2021 Links:

📽 Watch a promotional video with audio description for our event on post-infectious chronic illnesses with the Health and Disability Partnership at the Ma ssachusetts Department of Public Health

📔 Learn more about the proposal to add ME/CFS to the neurological chapter of the International Classification of Diseases (ICD-10-CM)

🧠 Learn more about a Fibromyalgia study at Spaulding Rehabilitation Hospital

📖 Read an article on severe ME/CFS, profiling three Association members, published in the journal 'Healthcare'

📆 Read about the history of the Massachusetts ME/CFS & FM Association

🦠 Article: How Long COVID Is Forcing a Reckoning with the Neglect of Post-Infectious Chronic Illnesses

July 2021 Links:

👨‍⚕️ Read Dr. Anthony Komaroff's short essay: "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: When Suffering is Multiplied"

👩‍⚕️ Nurse Patti's Blog Post #3: Links Between Long Covid and ME/CFS

June 2021 Links:

▶️ Watch Dr. Khosro Farhad's lecture on Fibromyalgia and Small Fiber Polyneuropathy

✈️ Travel tips for people with ME/CFS

🔬 Read about the role of mitochondrial dysfunction in ME/CFS

📑 Look at the CDC's new ME/CFS Resources

🏃‍♀️ Learn more about a Fibromylagia study at Spaulding Rehabilitation Hospital in Charlestown

👩‍⚕️ Nurse Patti's Blog Post #2 on mental health concerns for children with ME/CFS during lockdown

♿️Watch a panel about how interactive Zoom services make religious life accessible, featuring two MassME members

🗞 Read an article from The Guardian about how long Covid research has the potential to help people with ME/CFS

May 2021 Links:

👨‍💻 View video and materials from the second Interagency ME/CFS Working Group Meeting

📰 Read Rivka Solomon's Washington Post essay about how COVID has led to increased accessiblity for people with ME/CFS

👩‍⚕️ Read about Florence Nightingale's struggles with chronic illness

📜 Read about the history of ME/CFS and the condition's many names

👩‍⚕️ Nurse Patti's Inaugural Blog Post: The Role of School Nurses in Pediatric ME/CFS

April 2021 Links:

👨‍👩‍👧‍👦 Tips on how you can support friends and loved ones with ME/CFS

🧑🏿👩🏾👩🏽‍🦱👩🏿‍🦳 Read an article from Time Magazine about Black women who have become Long Covid advocates

📒 View the MassME handbook on applying for disability

👩‍⚕️ New Materials from the U.S. ME/CFS Clinician Coalition:

📺 Watch MassME's Rivka Solomon talk about advocating for people with ME/CFS and Long COVID on the PBS NewsHour

March 2021 Links:

📖 Read an article on severe ME/CFS, profiling three Association members, published in the journal 'Healthcare.'

🧪 Read about the new NIH research grant to awarded to UMass Medical School researchers Liisa Selin and Anna Gil

😷 View resources for Long COVID/PASC patients

February 2021 Links:

📽 Watch our book event for The Puzzle Solver

January 2021 Links:

😷 View resources for Long COVID/PASC patients