👋 Become a member of the Massachusetts ME/CFS & FM Association
🤝 Explore the patient services we offer
📬 Sign up for our newsletter to learn more about Association activities
💵 Support the Massachusetts ME/CFS & FM Association
▶️ Visit the Massachusetts ME/CFS & FM Association YouTube channel
👨⚕️ Refer a Doctor
April Links:
March Links:
🙋 Massachusetts Residents, Call to action: Fill out our Advocacy Contact Form
February Links:
📄 Read the Februaury Newsletter
January 2024 Links:
December 2023 Links:
📄 Read the December Newsletter
November 2023 Links:
📄 Read the November Newsletter
📽️Watch Now! Sunday Conversations "What Sociology and the Illness Narratives Can Teach Us About Living with Chronic Illness"
October 2023 Links:
👥 Register for MassME Annual Event: "ME/CFS: Changing the Narrative" featuring Ed Yong"
September 2023 Links:
📄 Read the September Newsletter
📰 Read the Boston Globe article catching up with Massachusetts Long Haulers
✏️ Take the 2023 Massachusetts Dept of Public Health Community Health Equity Survey
August 2023 Links:
👥 Register for Sunday Conversations: Living with Chronic Illness - August 20, 2023
July 2023 Links:
📽️Watch MassME Turns 40! Kickoff event: ZOOM through 40 years of ME/CFS with MassME!" Sunday, June 18, 2023, 4 p.m. Eastern Time
June 2023 Links:
May 2023 Links:
April 2023 Links:
March 2023 Links:
February 2023 Links:
📰 Read about how Long Covid's affects the ability of patients to work in the New York Times
👥 Register for our young adult support groups on February 7th and February 18th
📄 Read the Februrary newsletter
January 2023 Links:
📽️ Watch the video from our Sunday Conversation on 'The Long Haul' with Ryan Prior and Cynthia Adinig
🩺 Learn more about our need for healthcare provider recommendations
🧑⚕️ Recommend a healthcare provider to MassME
📰 Read an article about the practice of pacing in the Boston Globe
📄 Read 'Long COVID: major findings, mechanisms, and recommendations' from Nature Reviews Microbiology
👨⚕️ Watch Dr. Anthony Komaroff's grand rounds presentation on ME/CFS
📃 Read an excerpt from Ryan Prior's new book in Newsweek magazine
December 2022 Links:
💵 Support our work with a year-end donation!
👨⚕️ Watch Dr. Anthony Komaroff's talk on ME/CFS and Long Covid from our 2022 Annual Meeting
📖 Read about the update to medical coding of ME/CFS in the United States
🚴 Watch Dr. David Systrom discuss the pathophysiology of exercise intolerance in ME/CFS
📄 Read our updated resources on applying for Social Security Disability
🙋 Learn more about volunteer opportunities with MassME!
📽 Watch Dr. Khosro Farhad's talk on Small Fiber Polyneuropathy in Fibromyalgia
🦠 Read Time Magazine's article on post-viral illness
👨⚕️ Watch Dr. Anthony Komaroff address questions from the audience during our 2022 Annual Meeting
🗞 Read an article about about Brain Fog in the Washington Post
📰 Read about racial disparities in receiving care for ME/CFS and Long Covid in the Boston Globe
November 2022 Links:
⚓️ Learn more about why our logo is the Sankaty Head Lighthouse
💰 Learn more about becoming the MassME treasurer and apply!
📺 Watch ABC News Live's segment on Long Covid
🎙️ Listen to an interview with Ryan Prior on #MEAction's Chronically Complex podcast
🗂️ Read about new rules regarding free, digital access to your health records
💻 Read a write-up on our annual meeting from Health Rising by Cort Johnson
October 2022 Links:
📽 Watch a video on how Traditional Chinese Medicine can help those with ME/CFS and Long Covid
📽 Watch a video on how ME/CFS and Long Covid are viewed in Traditional Chinese Medicine
📰 Read the Boston Globe's article on how Long Covid impacts patients financially
🦠 Read the Boston Globe's resource guide for Boston-area Long Haulers
🤝 Explore the patient services we offer
📽 Watch the videos from our September Sunday conversation on Traditional Chinese Medicine
✋ Learn about volunteer opportunities with MassME
📖 Read about the update to medical coding of ME/CFS in the United States
September 2022 Links:
🗞 Read Ed Yong's article on ME/CFS and Long Covid in The Atlantic
💻 See Senator Markey's post about Ed Yong's article on ME/CFS and Long Covid in The Atlantic
👨⚕️ Watch Dr. Anthony Komaroff's grand rounds presentation on ME/CFS
🌅 Learn more about the new 5-session course "Coping with ME/CFS," and register
🏛 Read coverage of the #MillionsMissing protest in Washington, D.C. from The Hill
🎥 Watch the video from our event 'Invisible Disabilities: Long COVID and other Post-Infectious Chronic Illnesses' (click here to see a version with ASL interpretation)
🗺 Read the MassME strategic plan
📰 Read Dr. Wes Ely's Boston Globe opinion piece about the effects of Long Covid
📽 Watch Dr. Khosro Farhad's talk on Small Fiber Polyneuropathy in Fibromyalgia
🦠 Read Miriam Tucker's WebMD article on ME/CFS and Long Covid
🧠 Watch Dr. Michael VanElzakker's talk on ME/CFS at the Intersection of the Nervous & Immune Systems
August 2022 Links:
⚕️ Read Health Rising's dive into Dr. Ian Lipkin's latest research paper
📽 Watch Dr. Ian Lipkin's Talk: 'An Interim Report on Solving the Mysteries of ME/CFS'
🔬 Read an interview with Dr. Avindra Nath about research into Long Covid and ME/CFS
🙋 Express interest in joining the MassME Board
🦸 Learn more about joining the MassME Board
📽 Watch a PSA about Long Covid from the Solve ME/CFS Initiative
⏳ Learn more about the 'How Long?' campaign from the Solve ME/CFS Initiative
📆 Read about the history of the Massachusetts ME/CFS & FM Association
🩺 Learn more about the CNE course about ME/CFS for school nurses and register
🖍 Browse our back to school resources for educators and school nurses
📽 Watch a panel discussion of the film 'Unrest' filmed in 2018 at the Mass Dept of Public Health
🧑⚕️ Read about how ME/CFS is gaining new respect as researchers realize its similarities to Long Covid
👥 Register for the August Sunday Conversation!
🧠 Watch Dr. Michael VanElzakker discuss the effects of ME/CFS on the nervous system
July 2022 Links:
🚴 Watch Dr. David Systrom discuss the pathophysiology of exercise intolerance in ME/CFS
⚓️ Learn more about why our logo is the Sankaty Head Lighthouse
♿️ Read the Proclamation on the Anniversary of the Americans with Disabilities Act
📽 Watch Dr. Donna Felstenstein give an overview of the clinical aspects of ME/CFS
☀️ Watch the CBS Sunday morning segment about Long Covid
📽 Watch Dr. Vera answer questions about whole person health approach to ME/CFS and Long Covid
June 2022 Links:
📽 Watch Dr. Vera's presentation on the whole person health approach to ME/CFS and Long Covid
🚌 Read about the need to plan for students with Long Covid in the coming school year
📽 Watch the Empower M.E. Roundtable event with state advocates from the Solve ME/CFS Initiative
📖 Read about the update to medical coding of ME/CFS in the United States
📢 Watch #MEAction's #MillionsMissing 2022 Global Event
📽 Watch the Q&A from our recent Sunday Conversation on fibromyalgia
🏳️🌈 Help people with disabilities and chronic illness keep safe during Pride Month
🏫 Read about Congressmen McGovern and Raskin's visit to UMass Chan Medical School
📽 Watch a video of two patients describing their experiences with Fibromyalgia
May 2022 Links:
📽 Watch a video of Dr. Paul Monach providing an overview of Fibromyalgia
📽 Watch the videos from our May Sunday conversation on Fibromyalgia
🗞 Read Leah Stagnone's article about ME/CFS and Long Covid awareness from the Concord Monitor
April 2022 Links:
📽 Watch the videos from our April Sunday Conversation: "Working With Your Healthcare Provider"
🏥 Read an article about Long Covid and gaslighting by physicians
📈 Read an article re-calculating the impact of ME/CFS in the wake of Long Covid
📽 Watch the Q&A from our Sunday Conversation about functional medicine
📑 Read an announcement on a new comprehensive government effort to address Long Covid
👨👩👧👦 Tips on how you can support friends and loved ones with ME/CFS
March 2022 Links:
📜 Read about Tim Kaine's recent discussion of the CARE for Long Covid Act
🏛 Learn more about meeting with members of Congress during Advocacy Month in May
🏛 Información en español sobre el Mes de la Abogacía 2022 en Mayo
📃 Read a essay on being a mother with chronic illness
📽 Watch MassME member Bob Robitaille speak about his family's experience with applying for disability
🎨 Learn more about our new art therapy group
📽 Watch Ron Beluso, Esq speak about an attorney's role in the process of applying for disability
📄 Read Time Magazine's article about solving the puzzle of Long Covid
📰 Read the Boston Globe review of 'The Invisible Kingdom: Reimagining Chronic Illness"
📽 Watch Ken Casanova's Talk on Applying for Disability
February 2022 Links:
🗞 Read the New York Times article about exercise intolerance in ME/CFS and Long Covid
🚴♂️ Watch Dr. David Systrom's talk on exercise intolerance in ME/CFS
📽 Watch our February 2021 book event for The Puzzle Solver
⭐️ Recommend a health care provider to us
🙏 Read an appeal for health care provider recommendations from our Patient Care Coordinator
👩⚕️ Watch rehabilitation physician Dr. Alba Azola reflect on she has learned about ME/CFS
January 2022 Links:
👨💻 Watch occupational therapist Amy Mooney speak about the role of PT and OT in ME/CFS and Long Covid
😷 View resources for Long COVID/PASC patients
💙 Read our tribute to Dr. Ron Tompkins
🧠 Learn about Dr. Michael VanElzakker's study on neuroinflammation in Long Covid
📰 Read Jennie Spotila's opinion piece in the Philadelphia Inquirer: "I Have a Chronic Illness. During COVID, isn't My Life Worth Protecting?"
👨⚕️ Watch Dr. Anthony Komaroff's grand rounds presentation on ME/CFS
💬 Learn about 'Sunday Conversations,' our new monthly speaker series
📄 Read Cort Johnson's summary of our October annual meeting on his Health Rising blog
👩💻 Watch an interview with MassME member Rivka Solomon on ME/CFS Alert
December 2021 Links:
📒 Read a summary of the most interesting ME/CFS research of 2021 by the ME/CFS Skeptic Michiel Tack
📽 Watch ''The Tangled Story of ME/CFS,' the newest film from Dialogues for ME/CFS
📖 Read the 1990 Newsweek article on ME/CFS
🎧 Listen to an NPR program discussing Long Covid as well as ME/CFS
💉 Learn about vaccination opportunities in Massachusetts for people with disabilities
👨⚕️ Watch Dr. Anthony Komaroff's grand rounds presentation on ME/CFS
👩🏿🎨 Read about Ijeoma Ogwuegbu, a Nigerian artist with fibromyalgia
📔 Read our primer for people who are newly diagnosed with ME/CFS
👥 Read about how people can be a true and helpful friends to someone with ME/CFS
📰 Read the article from The Atlantic: 'Even Health Care Workers With Long COVID Are Being Dismissed'
November 2021 Links:
👩💻 Learn more about our new monthly discussion group and register
📞 If you live in Massachusetts and would like to receive a physician referral, contact us
📒 View the MassME handbook on applying for disability
📖 Read the 1990 Newsweek article on ME/CFS
💻 Connect with us on LinkedIn!
🔬 Read about the ME/CFS research of Drs. Liisa Selin and Anna Gil at UMass Chan Medical School
October 2021 Links:
🌟 Learn more about our event 'Advances in Our Understanding of ME and the Effects of Long Covid'
🎥 Watch the video from our event 'Invisible Disabilities: Long COVID and other Post-Infectious Chronic Illnesses (click here to see a version with ASL interpretation)
💻 Read Cort Johnson's post about our upcoming annual meeting on Health Rising
September 2021 Links:
🌟 Learn more about our event 'Advances in Our Understanding of ME and the Effects of Long Covid'
👨💼 Learn more about job accommodations
📽 Watch a promotional video with audio description for our event on post-infectious chronic illnesses with the Health and Disability Partnership at the Massachusetts Department of Public Health
💊 Learn more about a Vitamin B3 study for Long Covid symptoms
📒 View the MassME handbook on applying for disability
August 2021 Links:
📽 Watch a promotional video with audio description for our event on post-infectious chronic illnesses with the Health and Disability Partnership at the Massachusetts Department of Public Health
🧠 Learn more about a Fibromyalgia study at Spaulding Rehabilitation Hospital
📆 Read about the history of the Massachusetts ME/CFS & FM Association
🦠 Article: How Long COVID Is Forcing a Reckoning with the Neglect of Post-Infectious Chronic Illnesses
July 2021 Links:
👩⚕️ Nurse Patti's Blog Post #3: Links Between Long Covid and ME/CFS
June 2021 Links:
▶️ Watch Dr. Khosro Farhad's lecture on Fibromyalgia and Small Fiber Polyneuropathy
✈️ Travel tips for people with ME/CFS
🔬 Read about the role of mitochondrial dysfunction in ME/CFS
📑 Look at the CDC's new ME/CFS Resources
🏃♀️ Learn more about a Fibromylagia study at Spaulding Rehabilitation Hospital in Charlestown
👩⚕️ Nurse Patti's Blog Post #2 on mental health concerns for children with ME/CFS during lockdown
♿️Watch a panel about how interactive Zoom services make religious life accessible, featuring two MassME members
May 2021 Links:
👨💻 View video and materials from the second Interagency ME/CFS Working Group Meeting
👩⚕️ Read about Florence Nightingale's struggles with chronic illness
📜 Read about the history of ME/CFS and the condition's many names
👩⚕️ Nurse Patti's Inaugural Blog Post: The Role of School Nurses in Pediatric ME/CFS
April 2021 Links:
👨👩👧👦 Tips on how you can support friends and loved ones with ME/CFS
🧑🏿👩🏾👩🏽🦱👩🏿🦳 Read an article from Time Magazine about Black women who have become Long Covid advocates
📒 View the MassME handbook on applying for disability
👩⚕️ New Materials from the U.S. ME/CFS Clinician Coalition:
March 2021 Links:
😷 View resources for Long COVID/PASC patients
February 2021 Links:
📽 Watch our book event for The Puzzle Solver
January 2021 Links: