About Us
About Our Association
- Details
- Last Updated: 02 December 2022 02 December 2022
The Massachusetts ME/CFS and FM Association is a 501c3 non-profit registered in the state of Massachusetts.
Phone: 617-471-5559 | Tax ID: 04-3014644 | PO Box 690305 | Quincy, MA 02269-0305
MISSION
The Association supports people living with ME/CFS and their families by connecting them to supportive resources and each other, and by educating and advocating to expand the ME/CFS healthcare and social service infrastructure in Massachusetts.
Mutual Support
We are a “home base” for people affected by ME/CFS, providing opportunities for members to support one another and share knowledge, advice, information and hope.
Medical Education
We raise awareness of ME/CFS among healthcare professionals with the goal of increasing the pool of knowledgeable providers available to diagnose and treat individuals in Massachusetts.
Service Advocacy
We build relationships with support service agencies so that we can effectively advocate for the needs of our members and increase the service providers’ capacity, willingness and effectiveness in working with ME/CFS patients.
More about us
Accomplishments of our Association
How you can get involved
Contact Us
- Details
- Last Updated: 30 August 2018 30 August 2018
How to reach us
We encourage you to contact us whether you’re a patient in need of service, a member with a suggestion or request, or an individual looking for general information about the Association.
If you are a patient requesting information or support services and are unfamiliar with the Association, please read more about our Services.
To recommend a physician or other health care provider
One of the most requested services is Physician Referral. Depending on your needs, we can provide one or more names of physicians or other health care providers who have been recommended by other patients.
We are always looking for health care provider information to add to our database. If you wish to recommend a physician or other health care provider who has helped you, please fill out our online Provider Recommendation Form. Alternatively, you may download and print the more detailed Health Care Provider Information Questionnaire, fill in as much information as you know, and mail it in to the address at the top of the form.
Information you provide will be used to assist other patients. This is a very important way that you can help.
Contact Us Online
You are welcome to submit questions, comments, and requests online. Although we do our best to respond as quickly as possible, requests are handled by patient volunteers so it may be a day or two before you receive a response. Your personal information will always be kept private.
Mailing address
To reach us by mail, please use the following address:
Massachusetts ME/CFS & FM Association
P.O. Box 690305
Quincy, MA 02269-0305, USA
Information line
In addition to our On-Line Contact Us feature, our Information Line serves as a gateway for access to Association services and support. When you call the Information Line, please leave a message with your name, phone number, and the best times to call and a volunteer will get back to you. Your personal information will always be kept private.
Information line: (617) 471- 5559
Patient Services
- Details
- Last Updated: 11 January 2023 11 January 2023
Introduction
When people find themselves with a new diagnosis and don’t know which way to turn, or perhaps do not even know where to get a diagnosis, or need answers to new issues or problems that have developed, it is very reassuring to know that credible information and guidance is only an email or phone call away.
We at the Massachusetts ME/CFS & FM Association understand just how difficult this situation can be. We offer several types of support services.
We can:
- Assist with patient referrals to healthcare providers
- Give guidance on disability process and issues—please see the Disability Handbook available on our website
- Provide information about active support groups or other sources of support
- Respond to general questions about these illnesses
To obtain services, please fill out the Contact Us form or call our Information Line.
Contact Us Online
You are welcome to submit questions, comments, and requests online. Although we do our best to respond as quickly as possible, requests are handled by patient volunteers so it may be a day or two before you receive a response. Your personal information will always be kept private.
Mailing address
To reach us by mail, please use the following address:
Massachusetts ME/CFS & FM Association
P.O. Box 690305
Quincy, MA 02269-0305, USA
Information line
In addition to our On-Line Contact Us feature, our Information Line serves as a gateway for access to Association services and support. When you call the Information Line, please leave a message with your name, phone number, and the best times to call and a volunteer will get back to you. Your personal information will always be kept private.
Information line: (617) 471- 5559
To recommend a physician or other health care provider
Read a special letter of request from Ken Casanova, Patient Services Coordinator
One of the most requested services is Physician Referral. Depending on your needs, we can provide one or more names of physicians or other health care providers who have been recommended by other patients. We can provide more detailed information on providers in Massachusetts. If you live in another state, please see Links to lists of health care providers outside of Massachusetts.
We are always looking for health care provider information to add to our database. If you wish to recommend a physician or other health care provider who has helped you, please fill out our online Provider Recommendation Form. Alternatively, you may download and print the more detailed Doctor Recommendation Form, fill in as much information as you know, and mail it in to the address at the top of the form.
Information you provide will be used to assist other patients. This is a very important way that you can help.
Support Groups
We provide several different kinds of support groups to our members, free of charge. Currently, all of our support groups meet virtually. If you would like to receive information about how to register for available support groups, please Join the Association. If you are unsure of your membership status, please use the contact us form to get in touch.
Stay Informed
Every month we send out an e-newsletter filled with the latest and most up-to-date information. Your email address will be kept private and used only for this purpose.
Important Note: We do not charge for our services. But if you support our work or receive help from us, then please consider becoming a member or making a donation of whatever amount you can afford to make it possible for us to continue providing these services.