On November 15, 2012, the Food and Drug Administration (FDA) held a webinar for the ME/CFS community on “Working Together for Change.” Jennie Spotila, creator and moderator of Occupy CFS, provides a summary of the FDA webinar highlights at her blog as well as thoughts about what the patient community needs to do for a successful outcome. Permission was granted by J. Spotila to link to articles/posts at Occupy CFS.