- Last Updated: 26 August 2016 26 August 2016
More than ever before, 2015 has been a year that has brought fresh hope to Myalgic Encephalomyelitis (ME) patients. The Institute of Medicine (IOM) and NIH Pathways to Prevention (P2P) reports confirmed the neglect and disbelief that have held the disease hostage for decades and strongly recommended action to improve patient care. Publications from Stanford, Columbia and Haukeland (Norway) Universities brought new insights into the biology. World-renowned scientists have joined the fight. Stories about severely ill patients like Ron Davis's son have created more public awareness. And the Tuller series brought greater exposure to the concerns with the PACE trial and psychogenic theories.
For the first time, there is a sense that we have huge opportunities to change the future for ME patients. And just as importantly, there is a sense that if we want to turn those opportunities into reality, then we need to find new ways to work together across the community to increase the impact of our voices.
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Documents used in Congress visits March 2016