Monthly Discussion Group: Looking at How ME CFS Research Might Apply to our Care
As a follow-up to our recent DIY Club, Sharon Simas will lead a new discussion group on how we can look at recent ME/CFS research and work with our healthcare providers to investigate this research and apply it to our care.
In the first session we will discuss a 2021 research paper initiated by the mother of an ME/CFS patient, Marian Lemke, who partnered with scientific researchers based on her initial idea: https://www.pnas.org/content/118/34/e2024358118
To help participants get comfortable with reading a scientific article we will use this paper to walk you thru the process and explore a laymen's description of the same paper by looking at Cort Johnson's explanation on his Health Rising blog: https://www.healthrising.org/blog/2021/08/21/free-radicals-chronic-fatigue-syndrome-long-covid-pasc/
We will consider how the theories in the paper might apply to us, and possible options we might explore with our own healthcare providers.
In order to have a fruitful discussion, please take the time to explore the web links on your own as best you can, and bring your questions to the discussion.
In case you are interested in learning about how the mom of an ME/CFS patient became involved with ME/CFS research, her story is here: https://www.mdlemle.com/about
*This monthly discussion group is free for members.
For Non-Members: The suggested donation for the 12-month series is $25 which includes membership to the MassME/CFS Association.
We care about you more than your money; if the suggested donation is a hardship the fee will be waived.
Please join us on Zoom from 5:00 - 6:30pm on the second Tuesday of each month. Your registration includes all meetings listed below.
Dec 14, Jan 11, Feb 8, Mar 8, Apr 12, May 10, Jun 14, Jul 12, Aug 9, Sep 13, Oct 11, and Nov 8
Please Note: There is a maximum number of participants, please join the waitlist if the class is full and we will notify you of any openings.
December 14th, 2021 5:00 PM