A monthly speaker series on a wide variety of topics

Please join us on the 3rd Sunday of each month at 4:00 P.M. ET on Zoom

Free and open to everyone

Presentations will be recorded for later viewing

Sunday Conversations - November 20, 2022, 4:00 - 5:00 P.M. ET

"Coping During the Holidays with ME/CFS, Long COVID, and Related Chronic Illness"

Join MassME for another small group Sunday Conversation!

Our November Sunday Conversation will provide an opportunity to talk about how to navigate the issues and difficulties of the holidays for people with chronic illness. Most of us have some concerns about the upcoming holidays. Let's share experiences and tips for making the most of festive times!

We will gather in small groups of 8 - 10.

You can choose: Celebrating the holidays with family or company, or Celebrating without family or while alone.

The videos, slides, and other resources from past events are available on the
Sunday Conversations Page.

We have a variety of volunteer opportunities for you to share your unique talents.  Visit our Volunteer Page for more information.

NIH RECOVER Research Study Seeking Participants

NIH is seeking participants for the RECOVER study  (in Spanish) on the long-term health effects of COVID-19. People who currently have COVID-19, people who have had COVID-19 in the past, and people who have never had COVID-19 are welcome to apply.

Participants will answer questionnaires, have simple check up exams and possibly be asked to give samples (blood, urine, spit or stool). The project aims to enroll 20,000 people and follow them for 4 years. This is not a treatment study and participants can stop at any time. Learn more and find a study site near you. 

Axios: Long COVID Workforce Impact

There's been a surge of about 900,000 people with disabilities into the U.S. workforce since 2020, and it's likely because of the increase in Americans with long COVID, according to new research published by the Federal Reserve Bank of New York, Axios' Emily Peck reports.

By the numbers: There are 1.7 million more working-age Americans with disabilities now compared to the beginning of 2020 (see the chart below), according to data compiled by Richard Deitz, an economist at the NYFed.

"The majority [of the newly disabled] deal with fatigue and brain fog, the hallmarks of long COVID," he writes.

Each month we will feature a story from a MassME member. We will hear from patients, caregivers, and those who help people who live with ME/CFS and FM. It is our hope that through sharing our experiences, we will gain connection, validation, and perhaps feel a little less isolated.

We would love to hear from you!  If you would like to share your story, please email us.