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Dr. Bell's review of the poor condition of some patients was sobering. More positive was the new work on XMRV and the oxidative-stress theory, because these might offer new insight into the illness and lead to more effective treatments.

Dr. Bell also had positive things to say about even the sickest patients. "I'd like to write a book about the incredible accomplishments of those with CFIDS," he said, citing the example of author Laura Hillenbrand; she wrote the best-selling book Seabiscuit while housebound (and mostly bed-bound). The acclaim she's received is unusual, but the way she chose to do something constructive, despite her limitations, was not.

“People learn how to treasure their good time and make something of it," Bell said. "They discover something that gives their life meaning."