Association News & Events
ME/CFS: Changing the Narrative
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- Last Updated: 27 September 2023 27 September 2023
Ed Yong is a celebrated science journalist who cares deeply about accurate, nuanced, and empathetic reporting; clear and vivid storytelling; and social equality. His coverage of ME/CFS and Long COVID for The Atlantic has been groundbreaking, and has contributed to a changing public perception of these illnesses, moving us toward a public health agenda that recognizes the serious nature and commonalities of infection-associated chronic conditions, and supports advances in research and clinical care.
Mr. Yong will share with us how he came to the subject of ME/CFS and long COVID and what has motivated him to dig so deeply and tenaciously into them. He will explain how he chooses sources to interview and how he prepares for those interviews. We will hear his thoughts on what is yet to be explored about ME/CFS from a journalistic perspective, and how science journalism contributes to changing perceptions. Mr. Yong’s presentation will be followed by an audience question and answer period.
Mr. Yong is a Pulitzer Prize-winning science journalist on staff at The Atlantic. In addition to his work for The Atlantic, Yong’s writing has been featured in National Geographic, The New Yorker, Wired, The New York Times, Nature, New Scientist and Scientific American. He is the author of two New York Times bestsellers—An Immense World, about the extraordinary sensory worlds of other animals; and I Contain Multitudes, about the amazing partnerships between animals and microbes.
Visit Ed Yong's website to learn more and sign up for his newsletter.
This event is a part of the Association's 2023 Annual Meeting of the Membership.
The fee for this event is $10 for Non-Members.
The meeting will be recorded for later viewing.
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Fall Session 2023
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- Last Updated: 08 September 2023 08 September 2023
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness
*Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group.
Join us on Monday nights @ 7:00 pm and Wednesday afternoons @ 3:30 pm ET.
This drop-in Virtual Support Group is interactive and provides a safe space for patients to share stories and experiences, ask questions, and offer one another support.
In an effort to streamline the registration process, we are offering one registration for the entire Fall Session. Once registered, you are welcome to attend as many meetings as you like.
Fall Session Dates:
Monday, September 11th, @ 7:00 pm
Wednesday, September 20th @ 3:30 pm
Monday, October 2nd @ 7:00 pm
Wednesday, October 18th @ 3:30 pm
Monday, November 13th, @ 7:00 pm
Wednesday, November 29th @ 3:30 pm
This group is free for members, with any donations to offset costs welcome. A contribution of $25 or more will include annual membership.
What age is Young Adult?
Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.
To Register, please fill in the form or confirm your pre-filled information below, and then click the Register button.
| REGISTER FOR THE YOUNG ADULT GROUP - FALL SESSION |
Sunday Conversations - September 17, 2023
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- Last Updated: 13 September 2023 13 September 2023
CANCELLED !! (as of 9/13)
"Understanding Long COVID: Clinical Approaches and Relationship to ME/CFS"
Sunday, September 17, 2023, 4 p.m. Eastern Time
Jason Maley, MD
Program Director, Critical Illness and COVID-19 Survivorship Program
In this edition of Sunday Conversations with MassME, Jason Maley will discuss what is known to date about the biology of long COVID, the approaches taken in caring for long COVID care in existing clinics, and what is known about the overlap between ME/CFS and long COVID. A recording will be available after the event.
Jason Maley is an Assistant Professor of Medicine at Harvard Medical School and is a Lecturer at the Massachusetts Institute of Technology. He works as a pulmonary and critical care physician and is director of the Critical Illness and COVID-19 Survivorship Program at Beth Israel Deaconess Medical Center in Boston.
The Critical Illness and COVID-19 Survivorship Program was launched in 2021 and is one of only a few in the country to integrate a broad multi-disciplinary team of medical experts to treat patients with persistent symptoms, which are also described as "long-COVID" or "post-acute sequelae of COVID-19 (PASC)." The program is open to anyone experiencing long-COVID symptoms regardless of where they were treated for their initial COVID-19 illness. Patients are initially scheduled for a telehealth visit, and eventually an individual plan is developed for each baptient based on their main deficiencies. More information can be found at the program website at https://www.bidmc.org/centers-and-departments/pulmonary-critical-care-and-sleep-medicine/services-and-programs/critical-illness-survivorship-program
This event has been cancelled due to a conflict. There will be no Sunday conversations on Sunday 9/17. Please stay posted for an updated date for Dr. Maley's presentation!
Living with Chronic Illness: Sunday Conversations - August 20, 2023
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- Last Updated: 30 August 2023 30 August 2023
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Join MassME for an August Sunday Conversation! We are looking forward to meeting you on Zoom. Summer is a time for informal gatherings and socializing. Let's get to know one another, and have a chance to ask questions and share experiences!
After a brief welcome and introduction, we will gather together in small groups for moderated conversations about two topics of interest to our community.
- “Living with chronic illness: How to you find meaning in your life?”
- “Pacing: Personal approaches and what works for you?”
When you register, you can select which topic that you would like to explore with others. All are welcome - come to learn, share or just listen.
Based on your previous feedback, we will allow 40-45 minutes for a group discussion on your chosen topic. We'll return to the full group for a brief "de-brief" before signing off.
This is a live event via Zoom. It will not be recorded.
Living with Chronic Illness
Sunday, August 20, 2023
4 - 5 p.m. Eastern Time
This event is over.