Association News & Events
Sunday Conversations - August 21, 2022
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- Last Updated: 08 August 2022 08 August 2022
Join MassME for a Special Edition of Sunday Conversations! We are looking forward to meeting you "in person"!
We will gather together in small groups for conversations about topics of interest to our community. When you register, you can select one or two topics that you would like to explore with others. After a short welcome and introduction, we'll go to breakout rooms, hosted by MassME volunteers, for 20 minutes. After a brief break, we'll return to the breakout rooms for another 20 minutes. You can choose to stay in the same group or choose a different topic for the second session. We'll return to the full group for a brief "de-brief" before signing off.
Summer is a time for informal gatherings and socializing. Let's get to know one another, and have a chance to ask questions and share experiences!
This is a virtual event via Zoom. This program will not be recorded.
CHOOSE YOUR TOPIC(S) when you register!
(You can change your mind later.)
Tentative topics (depending on interest) are:
- Pacing and energy management
- Coping with chronic illness
- Disability and social services support
- Relationships with family and friends
- Seniors/aging with chronic illness
- Young adults (20's and 30's)
- Children and adolescents
- Caregivers/partners
- Parents
CHOOSE YOUR TOPIC(S) when you register!
(You can change your mind later.)
Resource lists for conversation topics
Disability and social services support Resource List
"Applying for Social Security Disability if you have ME/CFS or Fibromyalgia" Video
Relationships with family and friends
Seniors/aging with chronic illness
U.S. Congressmen Visit ME/CFS/Long Covid Researchers at UMass Chan Medical School
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- Last Updated: 09 June 2022 09 June 2022
Congressmen Jim McGovern (D-Massachusetts) and Jamie Raskin (D-Maryland) visited with researchers studying ME/CFS (myaglic encephalomyelitis/chronic fatigue syndrome) and Long Covid (LC) at the University of Massachusetts Chan Medical School in Worcester, Massachusetts on June 1, 2022.
This exciting visit was organized by the Selin Lab at UMass and ME advocate Rivka Solomon, in conjunction with the Massachusetts ME/CFS & FM Association. Fourteen people attended this private meeting, both virtually and in-person.
Read more: U.S. Congressmen Visit ME/CFS/Long Covid Researchers at UMass Chan Medical School
Sunday Conversations - June 19, 2022
- Details
- Last Updated: 27 July 2022 27 July 2022
"A whole-person health approach to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Lessons for Post-COVID conditions”
Whole-person health is the term the NIH uses for Integrative medicine approaches.
Presented by Maria Vera Nunez, M.D.
Sunday, June 19, 2022, 4 p.m. ET
This program was presented jointly with the New Jersey ME/CFS Association.
Dr. Maria Vera Nunez has been specializing in the treatment of people living with ME/CFS for more than 20 years, having originally worked with Dr. Nancy Klimas at Nova Southeastern University’s Institute for Neuro-Immune Medicine for 7 years. Dr. Vera uses a whole-person health approach to evaluate patients with chronic, multi-system conditions, including ME/CFS and Long COVID. She uses advanced functional medicine testing to personalize treatments. She strives to create a partnership with her patients, considering their preferences and empowering them to acquire skills to support their healing process.
Dr. Vera is a Board-certified Internal Medicine and Integrative Medicine physician, a Certified Functional Medicine Practitioner, and has a Master of Science degree in Medical Informatics. She was an Assistant Professor at Nova Southeastern University’s Institute for Neuro-Immune Medicine, a national referral center for ME/CFS cases, for 7 years. Currently, she is an attending physician at the Whole Psychiatry and Brain Recovery Center in Maryland and a Research Assistant Professor at the Medical University of South Carolina.
This is a virtual presentation via Zoom.
Video links:
Full event
Whole Person Health
Patient Perspective
Q&A
Sunday Conversations - May 15, 2022
- Details
- Last Updated: 31 May 2022 31 May 2022
"Fibromyalgia”
Presented by Paul Monach, M.D.
The presentation is specific to Fibromyalgia (FM), but many patients with chronic complex diseases have symptoms or also a diagnosis of FM.
Sunday, May 15, 2022, 4 p.m. ET
Paul Monach, M.D., is Chief of the Rheumatology Section in the Boston VA Healthcare System, and an Associate Professor at Harvard Medical School. He has a PhD in immunology and completed residency and a rheumatology fellowship at Brigham and Women’s Hospital (BWH) in Boston. He is a member of the Cooperative Studies Program Coordinating Center at Boston VA Healthcare System.
This is a virtual presentation via Zoom.
Video links:
Playlist: https://youtube.com/playlist?list=PLz31KwoUbYrE9Uk71UjIDLGy2v6QVjwcN
Full event: https://youtu.be/cJxJLs1zLWM
Part 1-Fibromyalgia overview: https://youtu.be/PXkznGEg0ak
Part 2-Patient voices: https://youtu.be/IIFwzB-1CJQ
Part 3-Q&A: https://youtu.be/Ej7Ozno4oHo
Resources:
Fibromyalgia Resources
FM Medications (arricle summary)