Invisible Disabilities: Long COVID and Other Post-Infectious Chronic Illnesses -- Videos

Details: Last Updated: 27 October 2021 27 October 2021

Imagine getting sick with a common cold or flu, or even an insect bite, and then never getting better. We present a diverse panel of people with post-infectious chronic illnesses, including Long COVID and Post-Lyme Disease, joined by a person with ME/CFS. Their personal stories are followed by a presentation from the former Medical Director of the Bureau of Infectious Disease and Laboratory Sciences, at the Massachusetts Department of Public Health: Alfred DeMaria, M.D. addresses the similarities between Long COVID, Post-Lyme, and ME/CFS.

This program was originally presented on September 15th, 2021, by the Health and Disability Partnership at the Massachusetts Department of Public Health, with the Massachusetts ME/CFS & FM Association.

Advances in our Understanding of ME/CFS and the Effects of Long COVID

Details: Last Updated: 22 September 2021 22 September 2021

Announcing Our 2021 Annual Meeting

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In Memoriam: Elizabeth (Libby) Potter and Heather Colman-McGill

Details: Last Updated: 15 January 2020 15 January 2020

We are deeply saddened to bring you news of two deaths in our Massachusetts ME/CFS community: Elizabeth (Libby) Potter and Heather Colman-McGill.

Annual Event 10/26/2019 -- Dr. Michael VanElzakker

Details: Last Updated: 19 October 2019 19 October 2019

Registration is now open for our Annual Event on Saturday, October 26th, 2019 from 1 to 4 pm at Newton-Wellesley Hospital, featuring Dr. Michael VanElzakker of MGH/Harvard Medical School. Please join us for a brief business meeting, a research presentation by Dr. VanElzakker, an update on the Harvard ME/CFS Collaboration, and a chance to meet fellow members of the Association. We look forward to seeing you! Register here.

Investigating ME/CFS at the intersection of the nervous and immune systems

Dr. Michael VanElzakker of MGH/Harvard Medical School

When: Saturday, October 26th, 2019 1:00 PM to 4:00 PM
Doors open at 12:30 p.m. for check-in
Location:
Shipley Auditorium, Bowles Conference Center
Newton Wellesley Hospital
2014 Washington St.
Newton, MA 02462

Park in the lot near the West (Main) Entrance. Directions from the parking areas to the Auditorium can be found here.

Join or renew your membership at the event! This program is open to the public and free to members of the Association, journalists, researchers and health care professionals; $15 voluntary donation for non-members.

Michael VanElzakker, PhD is a research fellow in the neurotherapeutics division of Massachusetts General Hospital / Harvard Medical School.

Dr. VanElzakker will discuss some challenges and opportunities in using brain scans to study communication between the immune and nervous systems. He will describe two ongoing studies that seek to elucidate autonomic dysfunction and possible neuroinflammation in ME/CFS. He will also give an update on the OMF-funded Harvard ME/CFS Collaboration.

Download the event flyer here! Please distribute widely.

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