In Memoriam: Elizabeth (Libby) Potter and Heather Colman-McGill

We are deeply saddened to bring you news of two deaths in our Massachusetts ME/CFS community: Elizabeth (Libby) Potter and Heather Colman-McGill.

Read more: In Memoriam: Elizabeth (Libby) Potter and Heather Colman-McGill

Annual Event 10/26/2019 -- Dr. Michael VanElzakker

Registration is now open for our Annual Event on Saturday, October 26th, 2019 from 1 to 4 pm at Newton-Wellesley Hospital, featuring Dr. Michael VanElzakker of MGH/Harvard Medical School. Please join us for a brief business meeting, a research presentation by Dr. VanElzakker, an update on the Harvard ME/CFS Collaboration, and a chance to meet fellow members of the Association. We look forward to seeing you! Register here

Investigating ME/CFS at the intersection of the nervous and immune systems

Dr. Michael VanElzakker of MGH/Harvard Medical School

When:           Saturday, October 26th, 2019 1:00 PM to 4:00 PM
                     Doors open at 12:30 p.m. for check-in
Location:
                    Shipley Auditorium, Bowles Conference Center
                    Newton Wellesley Hospital
                    2014 Washington St.
                    Newton, MA 02462

                    Park in the lot near the West (Main) Entrance. Directions from the parking areas to the Auditorium can be found here.

Join or renew your membership at the event! This program is open to the public and free to members of the Association, journalists, researchers and health care professionals; $15 voluntary donation for non-members.

Michael VanElzakker, PhD is a research fellow in the neurotherapeutics division of Massachusetts General Hospital / Harvard Medical School.

Dr. VanElzakker will discuss some challenges and opportunities in using brain scans to study communication between the immune and nervous systems. He will describe two ongoing studies that seek to elucidate autonomic dysfunction and possible neuroinflammation in ME/CFS.  He will also give an update on the OMF-funded Harvard ME/CFS Collaboration.

Download the event flyer here!  Please distribute widely.

2018 Fall conference - A Conversation with David Tuller

How Investigative Journalism Succeeds in a Hostile Medical Environment: A Conversation with David Tuller

DrPH and investigative journalist

David Tuller has been writing since 2015 about the controversial PACE study, which purported to "prove" that Graded Exercise Therapy and Cognitive Behavioral Therapy could cure ME/CFS. Top researchers who have reviewed the study say it is fraught with indefensible methodological problems. Building on the work of ME/CFS advocates and researchers, Tuller exposed these flaws in a series of carefully researched articles. In addition to his work on PACE, he has written articles about ME/CFS for the New York Times and other publications.

Learn first-hand how journalism can advance science and public awareness of a devastating disease.

Saturday, Nov. 3, 2018, 1 - 3:30 p.m.

Newton Wellesley Hospital, Newton MA

 Download the flyer

 


 

ME/CFS educational events - Fall 2018

Get details of all ME/CFS educational events Fall 2018 in Massachusetts.

  • September 12 – Massachusetts General Hospital, Boston, MA. Sponsored by the Russell Museum.
  • October 10 – Tsai Performance Center, Boston University, Boston, MA. Sponsored by Sargent College Alumni Association. Video.
  • October 16 – Geisel School of Medicine at Dartmouth, Hanover, NH.
  • October 30 – Northeastern University School Health Academy, N.U. School of Nursing, Burlington, MA. Contact hours credit for nurses and Professional Development Points for school professionals. More information.
  • November 3 – "How Investigative Journalism Succeeds in a Hostile Medical Environment: A Conversation with David Tuller," Mass ME/CFS Annual Meeting and Conference, Newton Wellesley Hospital, Newton, MA.