- Last Updated: 28 November 2023 28 November 2023
"What Sociology and the Illness Narratives Can Teach Us About Living with Chronic Illness"
Helen McGunnigle is a graduate of Hampshire College where she studied pre-medical sciences and conducted an ethnographic study of college students living with contested chronic illness (including chronic or post-treatment Lyme disease syndrome, ME/CFS, and fibromyalgia) for her senior thesis. In this Sunday Conversation, Helen highlighted the findings from this research project, exploring the early histories of these illnesses and what exactly makes them so contested. Following the discussion, she lead a conversation on the impacts of living with chronic illness.
- Last Updated: 13 September 2023 13 September 2023
CANCELLED !! (as of 9/13)
"Understanding Long COVID: Clinical Approaches and Relationship to ME/CFS"
Jason Maley, MD
Program Director, Critical Illness and COVID-19 Survivorship Program
In this edition of Sunday Conversations with MassME, Jason Maley will discuss what is known to date about the biology of long COVID, the approaches taken in caring for long COVID care in existing clinics, and what is known about the overlap between ME/CFS and long COVID. A recording will be available after the event.
Jason Maley is an Assistant Professor of Medicine at Harvard Medical School and is a Lecturer at the Massachusetts Institute of Technology. He works as a pulmonary and critical care physician and is director of the Critical Illness and COVID-19 Survivorship Program at Beth Israel Deaconess Medical Center in Boston.
The Critical Illness and COVID-19 Survivorship Program was launched in 2021 and is one of only a few in the country to integrate a broad multi-disciplinary team of medical experts to treat patients with persistent symptoms, which are also described as "long-COVID" or "post-acute sequelae of COVID-19 (PASC)." The program is open to anyone experiencing long-COVID symptoms regardless of where they were treated for their initial COVID-19 illness. Patients are initially scheduled for a telehealth visit, and eventually an individual plan is developed for each baptient based on their main deficiencies. More information can be found at the program website at https://www.bidmc.org/centers-and-departments/pulmonary-critical-care-and-sleep-medicine/services-and-programs/critical-illness-survivorship-program
This event has been cancelled due to a conflict. There will be no Sunday conversations on Sunday 9/17. Please stay posted for an updated date for Dr. Maley's presentation!
- Last Updated: 30 August 2023 30 August 2023
Join MassME for an August Sunday Conversation! We are looking forward to meeting you on Zoom. Summer is a time for informal gatherings and socializing. Let's get to know one another, and have a chance to ask questions and share experiences!
After a brief welcome and introduction, we will gather together in small groups for moderated conversations about two topics of interest to our community.
- “Living with chronic illness: How to you find meaning in your life?”
- “Pacing: Personal approaches and what works for you?”
When you register, you can select which topic that you would like to explore with others. All are welcome - come to learn, share or just listen.
Based on your previous feedback, we will allow 40-45 minutes for a group discussion on your chosen topic. We'll return to the full group for a brief "de-brief" before signing off.
This is a live event via Zoom. It will not be recorded.
Living with Chronic Illness
Sunday, August 20, 2023
4 - 5 p.m. Eastern Time
This event is over.
- Last Updated: 22 November 2023 22 November 2023
"ZOOM through 40 years of ME/CFS with MassME!"
In this edition of Sunday Conversations with MassME, members of the association discussed how it has stayed strong and relevant throughout 40 years. An overview was given for each of the past four decades, each bringing important changes for this misunderstood and stigmatized disease. Learn about our unique patient-led organization that has influenced progress and now helps patients more than ever.
This presentation kicked off MassME's 40-year anniversary celebration. Stay tuned for more events to follow!
Materials from the presentation:
- Slides from the presentation
- Full recording (This version contains chapter headings for easier viewing)