Sunday Conversations - February 19, 2023

Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life

Sunday, February 19, 2023, 4 p.m. EST

 

Amy Mooney, MS OTR/L

Sallie Rediske, MPT

Melinda Maxwell, PT

 

Please join us as Amy Mooney, MS OTR/L, presents an occupational therapist's perspective of pacing for PEM. Amy will describe the essential strategies of pacing for PEM and create a framework to analyze activity and tasks within the limitations of PEM. Offering the physical therapist perspective, Melinda Maxwell and Sallie Rediske will discuss physiological biofeedback strategies of pacing. This OT/PT team will offer examples of how the pacing for PEM framework can support pwME and Long COVID as they engage in redefined meaningful and purposeful activities of daily living.

Following the discussion, the panel will respond to questions from the audience. The entire program is expected to last about 75 minutes. A recording of the presentation will be available on the Mass ME website after the event.

 

Register for the February 19 Sunday Conversations

Read more: Sunday Conversations - February 19, 2023


Sunday Conversations - January 22, 2023

Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig

Sunday, January 22, 2023, 4 p.m. EST

Headshots of Ryan Prior and Cynthia Adinig

Thank you for joining us as journalist and ME patient Ryan Prior read excerpts from his new book, The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, released November 2022 by Post Hill Press. He was joined by marketing specialist and Long COVID advocate Cynthia Adinig, whose experiences obtaining treatment are discussed in the book. Rivka Solomon, long-time ME/LC advocate and MassME member, hosted the meeting.

Following the readings, Ryan and Cynthia responded to questions and comments from Rivka and from the audience. The entire program lasted about 75 minutes.

Click here to view a recording of the presentation.

 

Read more: Sunday Conversations - January 22, 2023


Sunday Conversations - November 20, 2022

 

Join MassME for another small group Sunday Conversation! We are looking forward to meeting you "in person"!

"Coping During the Holidays with ME/CFS, Long COVID, and Related Chronic Illness"

Read more: Sunday Conversations - November 20, 2022


Sunday Conversations - September 18, 2022

 

 

 

Traditional Chinese Medicine/TCM is a rich and complex medical system originating over three thousand years ago. Its extensive history has developed intricate diagnostic systems focused on assessing the whole person. It also encompasses an in-depth theory of disease patterns and a multitude of therapies and specialties. This multifaceted system provides explanations and treatments for symptoms experienced by those with multi-systemic, invisible and post-viral illnesses within its medical theories and diagnostics.

Traditional Chinese Medicine is rooted in performing an in-depth intake of each patient which includes gathering detailed information on organ systems, physical strengths and weakness, mental and emotional health, environmental factors, and external pathogens that have influenced one's health in order to create a treatment plan that aligns with the specific needs of the individual.

Slides from the event

Recording of the event

Read more: Sunday Conversations - September 18, 2022