Sunday Conversations - May 15, 2022

"Fibromyalgia”

Presented by Paul Monach, M.D.

The presentation is specific to Fibromyalgia (FM), but many patients with chronic complex diseases have symptoms or also a diagnosis of FM.

Sunday, May 15, 2022, 4 p.m. ET – Please join us!

Register now

 

Paul Monach, M.D.

Paul Monach, M.D., is Chief of the Rheumatology Section in the Boston VA Healthcare System, and an Associate Professor at Harvard Medical School. He has a PhD in immunology and completed residency and a rheumatology fellowship at Brigham and Women’s Hospital (BWH) in Boston. He is a member of the Cooperative Studies Program Coordinating Center at Boston VA Healthcare System.

This is a virtual presentation via Zoom.

Register now 


 

Sunday Conversations - April 24, 2022

"Working with Your Healthcare Provider”

Presented by Alba Azola, M.D.

The presentation is relevant to ME/CFS, Fibromyalgia, Long Covid and Chronic Lyme Disease.

Sunday, April 24, 2022, 4 p.m. ET 

 

 

Alba Azola, M.D., is Assistant Professor in the Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, and Co-director of the PMR Post-Acute COVID-19 Team (JH PACT) Program.

Dr. Azola presented the physician's perspective: how patients can prepare for their visit, especially the initial visit, in a way that is most helpful for the physician to focus on the most important information so that the patient can get the most help from a limited time with the provider. She also discussed issues that providers experience in working with complex, chronic illness.

"Dave" and "Sue", parents of a teen with ME/CFS, shared the story of their challenges in finding and working with numerous providers to try to get help for their child.

Moderator: Karin Dove, MassME Patient Services Volunteer 

This is a virtual presentation via Zoom.

 

Links to video recordings:

Playlist: https://www.youtube.com/playlist?list=PLz31KwoUbYrGjlOUKA5Yz5dTMBKMDdolR

Full program: https://youtu.be/c7sACMrqsY0

Part 1 - Physician Perspective: https://youtu.be/5m1YadySvwA

Part 2 - Family Perspective: https://youtu.be/IFWMVNchb4g

Part 3 - Q&A: https://youtu.be/ZG3y_cBoVro

Slides

Resources for Working with your Healthcare Provider

 

 


 

Sunday Conversations - March 20, 2022

"A Functional Medicine Approach to Complex, Chronic Illnesses”

Presented by Andrew Lenhardt, M.D.

The presentation is relevant to ME/CFS, Fibromyalgia, Long Covid and Chronic Lyme Disease.

Sunday, March 20, 2022, 4 p.m. ET – Please join us!

 

Dr. Andrew Lenhardt

Andrew Lenhardt, M.D., is a board-certified family doctor with a background in functional and integrative medicine. He has long experience treating people with complex, chronic diseases. He practices in Beverly, MA.

He is the author of two books: The Best of Both Worlds and Emotional Intelligence in a Complex World. Dr. Lenhardt is on the faculty of Tufts Medical School, Endicott College and Yale University and has been teaching medical students and nurse practitioner students for over 15 years. He has developed the algorithms used for the RootFinder tool at Complex Health Solutions. In his personal life, he is married with three sons and two Pomeranians. His interests include pickleball, bridge and exotic travel.

Dr. Lenhardt presented his approach to evaluating and treating patients with complex, chronic diseases.

This is a virtual presentation via Zoom.

Video links:

Playlist: https://youtube.com/playlist?list=PLz31KwoUbYrEBZUVzD6OZb9GXJqoRWbPJ
Full event: https://youtu.be/21AwgCUT8fE
Part 1 - Intro to Functional Medicine: https://youtu.be/4oW8_YBL1ds
Part 2 - Patient Perspective: https://youtu.be/z6V1r1SWNBo
Part 3 - Q&A: https://youtu.be/i55KER2y06s

 


 

Sunday Conversations - February 2022, Applying for Social Security Disability

"Applying for Social Security Disability Benefits if You Have ME/CFS or Fibromyalgia”

The presentation is also relevant to Long Covid and Chronic Lyme Disease.

Sunday, February 20, 2022, 4 p.m. ET 

The Conversation discusses when and how to apply for benefits, qualification requirements, the application process, and how to medically-document your disability – as well as how to optimize your chances for approval.

An experienced disability and worker’s compensation attorney discusses the role of an attorney in the disability process and the need for legal representation at hearings. A parent of an ME/CFS patient will discuss how he assisted his daughter win her benefits.

Links for this program

Playlist 
Full event video 
Part 1: Applying for Disability 
Part 2: Patient Experience 
Part 3: An Attorney's Role  
Part 4: Q&A   

Speaker slides

More resources 

Featured speakers

Atty. Ron Belluso, attorney specializing in disability at Keches Law Group, and a MassME Board member. Ron has successfully represented many ME/CFS and other disabled patients through the disability process and at Administrative Hearings and is a member of the National Organization of Social Security Claimant’s Representatives (NOSSCR).

Ken Casanova, MassME member and Disability Counselor. Ken is the primary author of the Association’s Disability Handbook, “How to Apply for Social Security if You Have ME/CFS,” and has guided nearly 100 people through the disability process over the years. He has been the Association's president twice, and has been a social worker, community organizer, and legislative advocate.

Bob Robitaille, MassME member and volunteer. Bob assisted his daughter win her Disability benefits and now provides guidance to others as a member of our Patient Services team.

Moderator: Karin Dove, MassME Patient Services Volunteer