U.S. Congressmen Visit ME/CFS/Long Covid Researchers at UMass Chan Medical School

 

Cong. McGovern and Raskin
Congressmen Jamie Raskin (D-MD) (left) and  Jim McGovern (D-MA) (right) meeting with researchers and patient advocates at Univ. of Massachusetts Chan Medical School, June 1, 2022

 

Congressmen Jim McGovern (D-Massachusetts) and Jamie Raskin (D-Maryland) visited with researchers studying ME/CFS (myaglic encephalomyelitis/chronic fatigue syndrome) and Long Covid (LC) at the University of Massachusetts Chan Medical School in Worcester, Massachusetts on June 1, 2022.

This exciting visit was organized by the Selin Lab at UMass and ME advocate Rivka Solomon, in conjunction with the Massachusetts ME/CFS & FM Association. Fourteen people attended this private meeting, both virtually and in-person.

Read more: U.S. Congressmen Visit ME/CFS/Long Covid Researchers at UMass Chan Medical School


Sunday Conversations - June 19, 2022

"A whole-person health approach to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Lessons for Post-COVID conditions”

Whole-person health is the term the NIH uses for Integrative medicine approaches.

Presented by Maria Vera Nunez, M.D.

Sunday, June 19, 2022, 4 p.m. ET

This program was presented jointly with the New Jersey ME/CFS Association. 

 

  

Dr. Maria Vera Nunez has been specializing in the treatment of people living with ME/CFS for more than 20 years, having originally worked with Dr. Nancy Klimas at Nova Southeastern University’s Institute for Neuro-Immune Medicine for 7 years. Dr. Vera uses a whole-person health approach to evaluate patients with chronic, multi-system conditions, including ME/CFS and Long COVID. She uses advanced functional medicine testing to personalize treatments. She strives to create a partnership with her patients, considering their preferences and empowering them to acquire skills to support their healing process.

Dr. Vera is a Board-certified Internal Medicine and Integrative Medicine physician, a Certified Functional Medicine Practitioner, and has a Master of Science degree in Medical Informatics. She was an Assistant Professor at Nova Southeastern University’s Institute for Neuro-Immune Medicine, a national referral center for ME/CFS cases, for 7 years. Currently, she is an attending physician at the Whole Psychiatry and Brain Recovery Center in Maryland and a Research Assistant Professor at the Medical University of South Carolina.

This is a virtual presentation via Zoom.

 

Video links:
Full event
Whole Person Health
Patient Perspective
Q&A

Slides

Resources

 


 

Sunday Conversations - May 15, 2022

"Fibromyalgia”

Presented by Paul Monach, M.D.

The presentation is specific to Fibromyalgia (FM), but many patients with chronic complex diseases have symptoms or also a diagnosis of FM.

Sunday, May 15, 2022, 4 p.m. ET 

 

 

Paul Monach, M.D.

Paul Monach, M.D., is Chief of the Rheumatology Section in the Boston VA Healthcare System, and an Associate Professor at Harvard Medical School. He has a PhD in immunology and completed residency and a rheumatology fellowship at Brigham and Women’s Hospital (BWH) in Boston. He is a member of the Cooperative Studies Program Coordinating Center at Boston VA Healthcare System.

This is a virtual presentation via Zoom.

Video links:

Playlist: https://youtube.com/playlist?list=PLz31KwoUbYrE9Uk71UjIDLGy2v6QVjwcN
Full event: https://youtu.be/cJxJLs1zLWM
Part 1-Fibromyalgia overview: https://youtu.be/PXkznGEg0ak
Part 2-Patient voices: https://youtu.be/IIFwzB-1CJQ
Part 3-Q&A: https://youtu.be/Ej7Ozno4oHo

Slides

Resources:

Fibromyalgia Resources 
FM Medications (arricle summary)


 

Sunday Conversations - April 24, 2022

"Working with Your Healthcare Provider”

Presented by Alba Azola, M.D.

The presentation is relevant to ME/CFS, Fibromyalgia, Long Covid and Chronic Lyme Disease.

Sunday, April 24, 2022, 4 p.m. ET 

 

 

Alba Azola, M.D., is Assistant Professor in the Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, and Co-director of the PMR Post-Acute COVID-19 Team (JH PACT) Program.

Dr. Azola presented the physician's perspective: how patients can prepare for their visit, especially the initial visit, in a way that is most helpful for the physician to focus on the most important information so that the patient can get the most help from a limited time with the provider. She also discussed issues that providers experience in working with complex, chronic illness.

"Dave" and "Sue", parents of a teen with ME/CFS, shared the story of their challenges in finding and working with numerous providers to try to get help for their child.

Moderator: Karin Dove, MassME Patient Services Volunteer 

This is a virtual presentation via Zoom.

 

Links to video recordings:

Playlist: https://www.youtube.com/playlist?list=PLz31KwoUbYrGjlOUKA5Yz5dTMBKMDdolR

Full program: https://youtu.be/c7sACMrqsY0

Part 1 - Physician Perspective: https://youtu.be/5m1YadySvwA

Part 2 - Family Perspective: https://youtu.be/IFWMVNchb4g

Part 3 - Q&A: https://youtu.be/ZG3y_cBoVro

Slides

Resources for Working with your Healthcare Provider

 

 


 

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