Sunday Conversations - January 22, 2023

Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig

Sunday, January 22, 2023, 4 p.m. EST

Headshots of Ryan Prior and Cynthia Adinig

Thank you for joining us as journalist and ME patient Ryan Prior read excerpts from his new book, The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, released November 2022 by Post Hill Press. He was joined by marketing specialist and Long COVID advocate Cynthia Adinig, whose experiences obtaining treatment are discussed in the book. Rivka Solomon, long-time ME/LC advocate and MassME member, hosted the meeting.

Following the readings, Ryan and Cynthia responded to questions and comments from Rivka and from the audience. The entire program lasted about 75 minutes.

Click here to view a recording of the presentation.


Read more: Sunday Conversations - January 22, 2023

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Jan 2023

Young Adult Support Group
for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness


Tuesday, Jan. 10th, at 3:30 P.M. ET

NEW! Saturday, Jan. 28th, at 10:30 A.M. ET

These drop-in Zoom Support Groups are interactive and provide a safe space for patients to share stories and experiences, ask questions, and offer one another support.

The groups are run by Kerry Lang, LMHC. Kerry is a MA licensed mental health counselor with experience leading groups and workshops for those with chronic illness, specifically those with Lyme disease, and more recently Long COVID and ME/CFS.

Please Note: Due to professional licensing requirements, we are only able to offer this program to Massachusetts residents.

What age is considered Young Adult?
Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.

This groups are free for members. You are welcome to register for one or both sessions. There is a $10 suggested donation for those that can afford to contribute. A contibution of $25 or more will include annual membership.





Sunday Conversations - November 20, 2022


Join MassME for another small group Sunday Conversation! We are looking forward to meeting you "in person"!

"Coping During the Holidays with ME/CFS, Long COVID, and Related Chronic Illness"

Read more: Sunday Conversations - November 20, 2022

MECFS and Long COVID: Emerging Similarities and Why it Matters


Massachusetts ME/CFS and FM Association Presents:
ME/CFS and Long COVID:  Emerging Similarities and Why it Matters 

Featuring Dr. Anthony L. Komaroff

Saturday, October 22, 2022
1:00 - 3:00 P.M. ET on Zoom

Dr. Komaroff will talk about “The Emerging Parallels Between ME/CFS and Long COVID”. He will describe not only how the symptoms are similar but also how the two conditions share many of the same physiologic abnormalities and the opportunity Long Covid provides to advance our understanding of ME/CFS and to support clinical trials.

Anthony Komaroff, MD, is the distinguished Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women’s Hospital in Boston. He has published over 230 research articles and two books. From 1997-2015 he was editor in chief of the Harvard Health Publications Division of Harvard Medical School, the division responsible for disseminating all of the medical school’s health information for the general public. He has been publishing research papers on myalgic encephalomyelitis (ME) since the late 1980s, and currently serves on the National Institutes of Health’s advisory council for ME/CFS research.

This event is a part of the Association's 2022 Annual Meeting of the Membership.


Recording of the Full Event


Recording of event in sections:

Welcome and Agenda

MassME Annual Report of the Membership

Dr. Komaroff's introduction and special tribute for his decades of service to the ME/CFS community

Dr. Komaroff - Main Presentation

Q & A with Dr. Komaroff

Wrap Up

Break Video - Letters to MassME


YouTube Playlist of All Sections