News
MECFS and Long COVID: Emerging Similarities and Why it Matters
- Details
- Last Updated: 06 November 2022 06 November 2022
Massachusetts ME/CFS and FM Association Presents:
ME/CFS and Long COVID: Emerging Similarities and Why it Matters
Featuring Dr. Anthony L. Komaroff
Saturday, October 22, 2022
1:00 - 3:00 P.M. ET on Zoom
Dr. Komaroff will talk about “The Emerging Parallels Between ME/CFS and Long COVID”. He will describe not only how the symptoms are similar but also how the two conditions share many of the same physiologic abnormalities and the opportunity Long Covid provides to advance our understanding of ME/CFS and to support clinical trials.
Anthony Komaroff, MD, is the distinguished Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women’s Hospital in Boston. He has published over 230 research articles and two books. From 1997-2015 he was editor in chief of the Harvard Health Publications Division of Harvard Medical School, the division responsible for disseminating all of the medical school’s health information for the general public. He has been publishing research papers on myalgic encephalomyelitis (ME) since the late 1980s, and currently serves on the National Institutes of Health’s advisory council for ME/CFS research.
This event is a part of the Association's 2022 Annual Meeting of the Membership.
Recording of event in sections:
MassME Annual Report of the Membership
Dr. Komaroff's introduction and special tribute for his decades of service to the ME/CFS community
Dr. Komaroff - Main Presentation
Break Video - Letters to MassME
YouTube Playlist of All Sections
Sunday Conversations - February 19, 2023
- Details
- Last Updated: 28 February 2023 28 February 2023
Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life
Sunday, February 19, 2023, 4 p.m. EST
Amy Mooney, MS OTR/L
Sallie Rediske, MPT
Melinda Maxwell, PT
Amy Mooney, MS OTR/L, joined us to present an occupational therapist's perspective of pacing for PEM. Amy described the essential strategies of pacing for PEM and created a framework to analyze activity and tasks within the limitations of PEM. Offering the physical therapist perspective, Melinda Maxwell and Sallie Rediske discussed physiological biofeedback strategies of pacing. This OT/PT team offered examples of how the pacing for PEM framework can support pwME and Long COVID as they engage in redefined meaningful and purposeful activities of daily living.
Following the discussion, the panelists responded to questions from the audience. The entire program lasted about 90 minutes.
Materials from the presentation:
- Amy Mooney slides: Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life
- Sallie Rediske and Melinda Maxwell slides: Whispers vs. Screams: Listening with Heart Rate Biofeedback Pacing for ME/CFS
- Full video: https://www.youtube.com/watch?v=62mIuvabII0 (This version contains chapter headings for easier viewing)
Read more: Sunday Conversations - February 19, 2023
Announcing Nurse Patti's Blog!
- Details
- Last Updated: 19 July 2021 19 July 2021
We are delighted to announce that Patti Purcell, M.Ed. BSN, RN, will be writing a blog for our website on children and ME/CFS. She brings 30 years of experience, 26 years as a school nurse, to the topic. Check out her latest posts.
U.S. Congressmen Visit ME/CFS/Long Covid Researchers at UMass Chan Medical School
- Details
- Last Updated: 09 June 2022 09 June 2022
Congressmen Jim McGovern (D-Massachusetts) and Jamie Raskin (D-Maryland) visited with researchers studying ME/CFS (myaglic encephalomyelitis/chronic fatigue syndrome) and Long Covid (LC) at the University of Massachusetts Chan Medical School in Worcester, Massachusetts on June 1, 2022.
This exciting visit was organized by the Selin Lab at UMass and ME advocate Rivka Solomon, in conjunction with the Massachusetts ME/CFS & FM Association. Fourteen people attended this private meeting, both virtually and in-person.
Read more: U.S. Congressmen Visit ME/CFS/Long Covid Researchers at UMass Chan Medical School
Sunday Conversations - January 22, 2023
- Details
- Last Updated: 28 January 2023 28 January 2023
Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig
Sunday, January 22, 2023, 4 p.m. EST
Thank you for joining us as journalist and ME patient Ryan Prior read excerpts from his new book, The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, released November 2022 by Post Hill Press. He was joined by marketing specialist and Long COVID advocate Cynthia Adinig, whose experiences obtaining treatment are discussed in the book. Rivka Solomon, long-time ME/LC advocate and MassME member, hosted the meeting.
Following the readings, Ryan and Cynthia responded to questions and comments from Rivka and from the audience. The entire program lasted about 75 minutes.
Click here to view a recording of the presentation.
Read more: Sunday Conversations - January 22, 2023