- Last Updated: 23 June 2017 23 June 2017
The long-awaited Pediatric ME/CFS Primer, written by an international group of pediatric ME/CFS expert clinicians, is now published and freely available.
Lead author Peter Rowe states, “Three years ago, Ken Friedman, Alan Gurwitt, and Rosemary Underhill invited an international group of experienced ME/CFS clinicians to write a comprehensive guide to the diagnosis and management of ME/CFS in adolescents and young adults. The IACFSME had published a guide for adults, but there was no similar publication to help clinicians manage the unique aspects of ME/CFS in children and adolescents.”
Not only does the Primer contain a wealth of practical clinical advice, it also includes facts sheets and sections on working with schools and a sample physician’s letter to the school, authored by Faith Newton, Ed. D. It is a valuable guide for health care providers, parents and families, and school personnel. We urge you, especially if you are a young person with ME/CFS, or a parent, to print out a copy and take it to your doctors and school officials.
Many thanks to all the contributors for this wonderful and important work.
View the Pediatric Primer online - there is also a link to download a PDF version
Announcing June 29-30, 2017 CFSAC Meeting (Webinar)
June 29, 2017 - June 30, 2017, from 12 noon to 5 p.m. ET
The dial-in Information for the upcoming CFSAC webinar meeting is:
Call in Number 1-888-788-9429
Participant Passcode: 4510479
There will be reports from two Work Groups, the Pediatric Education Work Group and the Medical Education Work Group, as well aspresentations from the new Liaison Organizations, Simmaron Research Inc, Massachusetts CFIDS/ME & FM Association, and #MEAction. There will also be discussion of the CFSAC Standard Operating Procedures. For the full agenda, see https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/2017-06-29/index.html.