Sunday Conversations - May 15, 2022

"Fibromyalgia”

Presented by Paul Monach, M.D.

The presentation is specific to Fibromyalgia (FM), but many patients with chronic complex diseases have symptoms or also a diagnosis of FM.

Sunday, May 15, 2022, 4 p.m. ET – Please join us!

Register now

 

Paul Monach, M.D.

Paul Monach, M.D., is Chief of the Rheumatology Section in the Boston VA Healthcare System, and an Associate Professor at Harvard Medical School. He has a PhD in immunology and completed residency and a rheumatology fellowship at Brigham and Women’s Hospital (BWH) in Boston. He is a member of the Cooperative Studies Program Coordinating Center at Boston VA Healthcare System.

This is a virtual presentation via Zoom.

Register now 


 

Sunday Conversations - April 24, 2022

"Working with Your Healthcare Provider”

Presented by Alba Azola, M.D.

The presentation is relevant to ME/CFS, Fibromyalgia, Long Covid and Chronic Lyme Disease.

Sunday, April 24, 2022, 4 p.m. ET 

 

 

Alba Azola, M.D., is Assistant Professor in the Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, and Co-director of the PMR Post-Acute COVID-19 Team (JH PACT) Program.

Dr. Azola presented the physician's perspective: how patients can prepare for their visit, especially the initial visit, in a way that is most helpful for the physician to focus on the most important information so that the patient can get the most help from a limited time with the provider. She also discussed issues that providers experience in working with complex, chronic illness.

"Dave" and "Sue", parents of a teen with ME/CFS, shared the story of their challenges in finding and working with numerous providers to try to get help for their child.

Moderator: Karin Dove, MassME Patient Services Volunteer 

This is a virtual presentation via Zoom.

 

Links to video recordings:

Playlist: https://www.youtube.com/playlist?list=PLz31KwoUbYrGjlOUKA5Yz5dTMBKMDdolR

Full program: https://youtu.be/c7sACMrqsY0

Part 1 - Physician Perspective: https://youtu.be/5m1YadySvwA

Part 2 - Family Perspective: https://youtu.be/IFWMVNchb4g

Part 3 - Q&A: https://youtu.be/ZG3y_cBoVro

Slides

Resources for Working with your Healthcare Provider

 

 


 

NEW Art Therapy Group

Join us for a series of 5 bi-weekly art therapy classes featuring various creative exercises led by expressive art therapist, Kerry Lang, LMHC.  Kerry is a MA Licensed Mental Health Counselor with years of experience leading groups and workshops for those with chronic illness, specifically those with Lyme disease, and more recently Long-COVID and ME/CFS.

These 90-minute sessions will be a mix of fun, creativity, connection, vulnerability, and exploration. No experience with the arts is necessary- we welcome all levels of creative experience!

The group will meet on Zoom every other Thursday from 2:30 - 4:00 P.M.

The first session is Thursday, March 24th.

*Registration is open through March 14 for MassME members. Professional licensing requirements constrain us to offering this program to MA residents only. Class size is limited to 12 participants.  There is a $20 suggested donation to cover materials.

Click here for full details and registration information

 

 

Sunday Conversations - March 20, 2022

"A Functional Medicine Approach to Complex, Chronic Illnesses”

Presented by Andrew Lenhardt, M.D.

The presentation is relevant to ME/CFS, Fibromyalgia, Long Covid and Chronic Lyme Disease.

Sunday, March 20, 2022, 4 p.m. ET – Please join us!

 

Dr. Andrew Lenhardt

Andrew Lenhardt, M.D., is a board-certified family doctor with a background in functional and integrative medicine. He has long experience treating people with complex, chronic diseases. He practices in Beverly, MA.

He is the author of two books: The Best of Both Worlds and Emotional Intelligence in a Complex World. Dr. Lenhardt is on the faculty of Tufts Medical School, Endicott College and Yale University and has been teaching medical students and nurse practitioner students for over 15 years. He has developed the algorithms used for the RootFinder tool at Complex Health Solutions. In his personal life, he is married with three sons and two Pomeranians. His interests include pickleball, bridge and exotic travel.

Dr. Lenhardt presented his approach to evaluating and treating patients with complex, chronic diseases.

This is a virtual presentation via Zoom.

Video links:

Playlist: https://youtube.com/playlist?list=PLz31KwoUbYrEBZUVzD6OZb9GXJqoRWbPJ
Full event: https://youtu.be/21AwgCUT8fE
Part 1 - Intro to Functional Medicine: https://youtu.be/4oW8_YBL1ds
Part 2 - Patient Perspective: https://youtu.be/z6V1r1SWNBo
Part 3 - Q&A: https://youtu.be/i55KER2y06s

 


 

Request from Patient Services Coordinator

Dear fellow patient, family member, friend, or provider,

My name is Ken Casanova and I am the patient services coordinator for the Mass. ME/CFS & FM Association – and a fellow patient.

As you know, finding a physician or other health care provider knowledgeable about these illnesses is, next to the illness itself, one of the most daunting tasks a patient and family can face.

Our Association has compiled a database, largely based on patient reports, of physicians and other providers from which we can refer patients for illness evaluation and treatment. The database consists of infectious disease doctors, neurologists, endocrinologists, sleep specialists, pediatricians, primary care physicians, integrative physicians, psychologists/therapists - as well as alternative practitioners.

We recommend doctors who will document disability to Social Security or insurance companies.

We need to improve and update our database. Would you tell us of any physicians or other health care professionals who have provided knowledgeable evaluation and/or treatment of ME/CFS, fibromyalgia, long-covid, chronic-Lyme and similar conditions?

Which illness(es) did the provider diagnose and/or treat?  What was the specialty and treatment approach of the provider?  Was there improvement? How would you evaluate the provider(s), and would you recommend him or her for other patients?

I want to assure you that the information you give us will be kept strictly confidential and anonymous as it is entered into our database. We do not make our database public – it is strictly private. We also are careful not to send too many patients to any one doctor, so as not to discourage the doctor from seeing patients with these illnesses.

Also, if we have referred you to any providers in the past, we would appreciate any feedback on the referrals.

I realize responding will take some effort and energy, but any information you give us – of whatever length – will be of real benefit to other patients. If it’s easier for us to talk by phone, just write me back with your phone number and we will give you a call.

Please use our Provider Recommendation Form for referrals or Contact Us for more information.

On behalf of patients and our Association, Thank you.

Sincerely,

Ken Casanova,  Patient Services