News

Run/Walk/Roll for ME and the Long Haul with Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9

Details: Last Updated: 10 April 2024 10 April 2024

Run/walk/roll for ME and the Long Haul!

Join Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9

Run for ME! Run for the Long Haul! Help us to raise awareness of ME/CFS and Long COVID, and to fund MassME's ongoing information and support programs.

Register as a participant

We know that 5K is a marathon — or beyond — for many with ME or LC. Ask healthy friends or family members to run on your behalf with Team MassME using this link. The 5K course will be accessible to wheelchairs, including motorized devices, and anyone needing assistance to participate can be accompanied by up to two support members who do not need to register.

The registration process is simple. The fee to register is $40 (plus a $4 processing fee).* Each participant will have their own fundraising page associated with Team MassME.

Support our team

You can donate at our main team page, or choose one of our team members to support their efforts! All donations will help us continue to bring you information and support programs. Together, we are stronger!

If you have any questions, please contact Susan Buckley.

*If the fee is a financial hardship, please let us know..

You can support Team MassME by clicking here. No amount is too small!

Sunday Conversations - April 21, 2024

Details: Last Updated: 11 April 2024 11 April 2024

“Got Mold? How Our Homes Impact Our Health”

Sunday, April 21, 2024, 4 p.m. Eastern Time

Michael Rubino

Michael Rubino is the co-founder and chair of Change the Air Foundation, a non-profit giving every person the knowledge, resources, and support to achieve better health by breathing safe indoor air. In this edition of Sunday Conversations with MassME, Michael will discuss air quality, mold, bacteria, symptoms of living with water damage, tests for mold and air quality, and the steps we can take to make our homes safer.

Young Adult Support Group - Spring 2024

Details: Last Updated: 29 March 2024 29 March 2024

Click here to register for the Spring session of our Young Adult Support Group

Sunday Conversations - March 17, 2024

Details: Last Updated: 28 March 2024 28 March 2024

“Dysautonomias 101: More Than Just POTS”

Sunday, March 17, 2024, 4 p.m. Eastern Time

Peter Cariani, Ph.D.

Hayla Sluss, Ph.D

“Dysautonomias” refers to the generic term encompassing all disorders of the autonomic nervous system. In this edition of Sunday Conversations, Peter Cariani, Ph.D., gave a brief overview of the autonomic nervous system and what can go wrong. He also described the role of dysautonomias in ME/CFS, FM, and other chronic conditions, what causes these conditions to be self-sustaining, what medical specialties treat dysautonomias, and added his own thoughts about diagnosis and treatment. Hayla Sluss, Ph.D., presented symptoms and accommodations.

Sunday Conversations - February 18, 2024

Details: Last Updated: 10 February 2024 10 February 2024

Sunday Conversation for February:

Small Group Discussions

"Living with co-morbidities or other serious illnesses"

Sunday, February 18, 2024, 4 p.m. Eastern Time

Please join us for small group discussions on living with ME/CFS and common co-morbidities or other serious illnesses. We will divide into groups based on age/stage of life: Young Adult, Adult, Seniors/Aging, or Ally/Caregiver, wherever you think you fit!

This topic was suggested by several respondents in our recent survey!

**Registration closes one hour before the event begins, so register now!**