Sunday Conversations - May 19, 2024

“Are You M.A.D.? 

An axis awry of
Mast cell activation disease,
Autonomic neuropathy and
Disorders of connective tissue"

Sunday, May 19, 2024, 4 p.m. Eastern Time


Dr. Anne Maitland

A growing body of evidence is linking heritable disorders of connective tissue, such as Ehlers Danlos Variants, with dysautonomia and mast cell dysfunction, which lead to chronic fatigue, brain fog, irritable bowel symptoms and pain syndromes. Dr. Maitland will present a brief review of the diagnosis and relationships of this clinical triad, MCAD, Autonomic dysfunction, and Disorders of connective tissue or hEDS. A better understanding of these relationships should lead to multi-disciplinary clinical therapies to help right this trio of modern day epidemics.

Bio: 

Director, Allergy & Immunology Services
Metrodora Institute

Asst Professor, Icahn School of Medicine, at Mt. Sinai, Department of Medicine- Division of Allergy & Clinical Immunology

Dr. Maitland is board-certified in allergy & immunology and internal medicine. As an allergy/immunology specialist at Metrodora Institute, Dr. Maitland’s clinical and research efforts are focused on increasing access to allergy and immunology specialty care. She is also one of the country’s top experts in immune-mediated disorders, including mast cell disease (MCD). She also serves on the scientific faculty for the Mast Cell Disease Society, the Ehlers-Danlos Society’s International Consortium and the Chiari-Syringomyelia Foundation.

She previously served as the medical director of Comprehensive Allergy & Asthma Care in New York and Assistant Professor in the Department of Medicine, Allergy and Clinical Immunology at the Icahn School of Medicine at Mount Sinai.

She received her MD and PhD at the University of Pennsylvania, and copleted her residency in Internal Medicine at Brigham and Women’s Hospital. She completed a Fellowship in Allergy & Immunology at Brigham and Women’s Hospital and Mount Sinai Hospital.

Run/Walk/Roll for ME and the Long Haul with Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9

Copy of 5K JoinDonate Graphic for website

 

Run/walk/roll for ME and the Long Haul!

Join Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9

Run for ME! Run for the Long Haul! Help us to raise awareness of ME/CFS and Long COVID, and to fund MassME's ongoing information and support programs. 

 

Register as a participant

We know that 5K is a marathon — or beyond — for many with ME or LC. Ask healthy friends or family members to run on your behalf with Team MassME using this link. The 5K course will be accessible to wheelchairs, including motorized devices, and anyone needing assistance to participate can be accompanied by up to two support members who do not need to register. 

The registration process is simple. The fee to register is $40 (plus a $4 processing fee).*  Each participant will have their own fundraising page associated with Team MassME.

 

Support our team

You can donate at our main team page, or choose one of our team members to support their efforts! All donations will help us continue to bring you information and support programs. Together, we are stronger!

If you have any questions, please contact Susan Buckley.

*If the fee is a financial hardship, please let us know..

 

You can support Team MassME by clicking here. No amount is too small!

 

 

Sunday Conversations - April 21, 2024

“Got Mold? How Our Homes Impact Our Health”

Sunday, April 21, 2024, 4 p.m. Eastern Time


Michael Rubino

Michael Rubino is the co-founder and chair of Change the Air Foundation, a non-profit giving every person the knowledge, resources, and support to achieve better health by breathing safe indoor air. In this edition of Sunday Conversations with MassME, Michael discussed air quality, mold, bacteria, symptoms of living with water damage, tests for mold and air quality, and the steps we can take to make our homes safer.

Read more: Sunday Conversations - April 21, 2024


Sunday Conversations - March 17, 2024

“Dysautonomias 101: More Than Just POTS”

Sunday, March 17, 2024, 4 p.m. Eastern Time

 
Peter Cariani, Ph.D.
 
Hayla Sluss, Ph.D

“Dysautonomias” refers to the generic term encompassing all disorders of the autonomic nervous system. In this edition of Sunday Conversations, Peter Cariani, Ph.D., gave a brief overview of the autonomic nervous system and what can go wrong. He also described the role of dysautonomias in ME/CFS, FM, and other chronic conditions, what causes these conditions to be self-sustaining, what medical specialties treat dysautonomias, and added his own thoughts about diagnosis and treatment. Hayla Sluss, Ph.D., presented symptoms and accommodations.

Read more: Sunday Conversations - March 17, 2024