More resources

“For Those Who Care About Someone with ME/CFS” is a two page fact sheet from the Solve ME/CFS Initiative (2013).

“Information for Friends, Family and Caregivers” is a two page fact sheet from the New Jersey Chronic Fatigue Syndrome Association (Steefel, 2009).

"Planning Ahead for the Next School Year" contains tips from a parent and gives resources for those looking ahead to postsecondary education.

“Social Beings” is an article from The CFIDS Chronicle with tips for parents to help their children maintain social connections (Robinson, 2006).

“Taking the Caregiver into Account” is an article from The CFIDS Chronicle urging caregivers to take care of themselves, too (Layzell, 2008).

The Youth Page at the Solve ME/CFS Initiative website has several useful articles, including “Tips for Parents” and “Improving Communication with Your Healthcare Provider.”

Note: CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome) is an older name for ME/CFS.