- Last Updated: 15 February 2017 15 February 2017
"What happens when you have a disease doctors can't diagnose," film-maker and ME/CFS advocate Jen Brea's TED talk, was filmed in June 2016 and has recently been made available for viewing (subtitles in 10 languages!). This is 17 minutes of gripping power. Watch it now!
- Last Updated: 08 December 2016 08 December 2016
The video of "ME/CFS: A Surge of Interest and Knowledge", the lecture by Dr. Anthony Komaroff, Harvard Medical School Professor, Clinician and Researcher, presented to Massachusetts CFIDS/ME & FM Association on Nov. 5, 2016, is now posted.
The lecture is 63 minutes.
The Q&A is 34 minutes.
- Last Updated: 02 December 2016 02 December 2016
Eleven patient organizations, including Massachusetts CFIDS/ME & FM Association, and 52 individual advocates have called for CDC to remove recommendations for GET (Graded Exercise Therapy) and CBT (Cognitive Behavioral Therapy) from the CDC's ME/CFS website.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.