The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 03 April 2016 03 April 2016
Up to 60% of Fibromyalgia patients in some studies show evidence of Small Fiber Polyneuropathy (SFPN), a condition which shares many symptoms with Fibromyalgia and which may be treatable. Dr. Khosro Farhad spoke about this topic and reviewed recent research on SFPN at a public talk sponsored by the Massachusetts CFIDS/ME & FM Association on Nov. 14, 2015 at Newton-Wellesley Hospital, Newton, Massachusetts.
- Video of the talk is posted here and video of the Q&A is posted here.
- Dr. Farhad's slides are posted here.
- The chart for diagnosing Fibromyalgia according to the 2011 criteria from the American College of Rheumatology is posted here.
- A list of blood and other test to consider for diagnosing Small Fiber Polyneuropathy is posted here.
Disclaimer: There materials are provided only for convenience so that you can print them out and take them to discuss with your health care provider.
Please note this correction from Dr. Farhad: "When I spoke about the diagnosis of fibromyalgia based on American College of Rheumatology criteria, there was a mistake in my explanation. The patients need to answer “yes” to the first question and “no” to the second question in the third box [questions 4 and 5, see slide 3]. I mentioned patients should answer yes to both questions, which is not correct."
- Last Updated: 06 January 2016 06 January 2016
Jo M. Solet, MS, EdM, PhD, OTR/L was the keynote speaker at the Massachusetts CFIDS/ME & FM Association's Spring Lecture held on April 6, 2013. Dr. Solet's talk was on "The Science of Sleep." The event was co-sponsored by the Massachusetts Department of Public Health and held at the Hinton State Laboratory Institute Auditorium in Jamaica Plain, MA.
A video of the lecture is now available at YouTube.
YouTube links (YouTube versions can be only be accessed from this site or from the direct links; the videos are not searchable on YouTube):
Read a written summary of her talk, The Science of Sleep. Also available are Dr. Solet's list of Tips for Sleep and Fatigue Management in CFIDS/ME & FM.
Dr. Solet is a Clinical Instructor at Harvard Medical School, a member of the Harvard Medical School Division of Sleep Medicine, and the Department of Medicine at Cambridge Health Alliance. She is the co-author of sleep disruption studies and is clinically trained in occupational therapy and behavioral medicine. Dr. Solet brought a unique perspective on sleep and how it impacts our health.
Dr. Solet introduced us to the science of sleep and help us understand how sleep is structured and how it changes throughout our life cycle. She explained adverse effects of poor sleep, sleep debt and describe some ways sleep may be enhanced. She highlighted research findings on sleep abnormalities uncovered in CFIDS/ME and FM. Dr. Solet's lecture helped to uncover the many internal physiological changes and activities that happen during sleep and how it becomes disrupted.
- Last Updated: 16 January 2016 16 January 2016
Byron Hyde, M.D. was the featured speaker at the Massachusetts CFIDS/ME & FM (Chronic Fatigue and Immune Dysfunction Syndrome/Myalgic Encephalomyelitis and Fibromyalgia) Association's October 27, 2012, lecture. His topic was “Why Doctors Can’t Diagnose and What Tests Should be Considered.”
Videos of Dr. Hyde's talk are now posted on YouTube. YouTube links are on a private channel and can be accessed from the direct links; the videos are not searchable on YouTube:
- Part 1 - General Information and Chronic Fatigue Syndrome (51 minutes)
- Part 2 - Fibromyalgia (48 minutes)
- Part 3 - Questions (24 minutes)
A written summary of this lecture is now available at Dr. Byron Hyde 2012 Fall Lecture Summary.
Dr. Hyde, an internationally recognized ME/CFIDS physician and researcher, is one of the few physicians worldwide whose practice has consisted solely of the study and treatment of ME and CFS patients since 1984. He is the founder of the Nightingale Research Foundation, Ottawa, Canada (www.nightingale.ca), which is dedicated to the study and treatment of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (CFS) and related illnesses.
One of the biggest issues for patients is getting a physician to RUN tests, then having them KNOW what the results mean, and finally what to try for TREATMENT.ÂÂ Dr. Hyde has a long history of international research expertise in ME, known in the U.S. as Chronic Fatigue Syndrome (CFS) or CFIDS. His interest also extends to Fibromyalgia-type illnesses. He will explore the reasons physicians aren’t able to do their jobs, the patient suffering as a result, and which tests would point the physician in the correct direction. ÂÂ
In 1984, Dr. Hyde switched from family practice medicine to the study of post-infectious Myalgic Encephalomyelitis. He travelled around the world for five years investigating ME epidemics and has a command of all the incarnations of various names of this illness going as far back as Florence Nightingale, for which his foundation was named. While many physicians in North America were unaware of ME, England had an established diagnostic criteria for ME. In 1992, in collaboration with leading ME/CFS authorities, Dr. Hyde published the first, comprehensive medical textbook about ME and CFS, The Clinical and Scientific Basis of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.
Today, the Nightingale Research Foundation’s priorities are individual patient-based research with total body/brain investigation of ME and CFS patients, as well as the development of a sophisticated database to consolidate these findings for analysis and publication.
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.