Breaking News: Letter to Congress about Long COVID and Need for Research

Details

Last Updated: 05 December 2020 05 December 2020

MassME joined the Solve ME/CFS Initiative and 18 other leading chronic disease stakeholders in sending a powerful letter urging Congress to fund millions of dollars in new National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC) research into the post-viral health complications for long-term COVID-19 (Long COVID) survivors. According to Dr. Anthony Fauci, roughly 2.6 million Americans could be temporarily or permanently disabled by Long COVID symptoms. Congress must act now and fund new research into the health needs of this rapidly growing patient population.

'Tis the Season!

Details

Last Updated: 03 December 2020 03 December 2020

Dear Friend,

It is time for our annual funds appeal.  We need your donations to continue supporting people with ME/CFS and FM in Massachusetts and beyond. We had a busy 2020 building our support group program and improving our provider referral process, among other projects, and we have big plans for 2021. Please support us by becoming a member or donating now! Read on for more details about our 2020 activities, our 2021 plans, and why you should give today.

Read more: 'Tis the Season!

Annual Event 10/24. Register Now!

Details

Last Updated: 18 October 2020 18 October 2020

Contact Us to register for this special event on Saturday October 24th from 1 - 4 pm, “Research Update 2020 – Accomplishments, Goals & Clinical Connections,” presented in partnership with the Open Medicine Foundation, featuring researchers and clinicians from the Harvard ME/CFS Collaboration. Learn about the Harvard ME/CFS Collaboration’s promising research going on right here in the Boston area!

This virtual event will include an update on MassME Association activities, followed by brief presentations by three prominent researchers and clinicians from the Harvard ME/CFS Collaboration. A Question & Answer discussion will follow the presentations. You may submit questions in advance or during the meeting via Zoom’s chat feature. Registered attendees will receive a private link to the event a few days before the October 24th event. Download the flyer. If you are unable to attend the event itself, you may register for a recording.

We hope to “see” you soon!

New Strategic Plan!

Details

Last Updated: 18 July 2020 18 July 2020

We are excited to announce a new strategic plan for the Massachusetts ME/CFS & FM Association! We have spent the last year crafting a bold, ambitious and inclusive plan to guide our work in supporting people with ME/CFS and FM and their families, educating health care providers, advocating for social services and building a sustainable future for MassME. A big thank you to those who were introduced to, and who helped refine, the strategic plan during the small group meetings we held this past spring. And a big "Welcome!" to some of our new members who are already benefiting from initiatives described in the plan, such as our expanded support group program. A summary of the plan is included below. For those of you with the energy and interest to delve into the details, please find the full strategic plan here. Let us know what you think!

Read more: New Strategic Plan!