News
In Memoriam - Ronald G. Tompkins
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- Last Updated: 03 February 2022 03 February 2022
It is with great sadness that we learned of the sudden passing of Ron Tompkins, MD, ScD. The Massachusetts ME/CFS & FM Association was fortunate to be able to collaborate on a number of projects with Ron, and he was always extraordinarily generous with advice and guidance. The Massachusetts ME/CFS community has lost a strong ally and a good friend.
Read more: In Memoriam - Ronald G. Tompkins
Sunday Conversations with MassME
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- Last Updated: 01 May 2024 01 May 2024
A monthly speaker series
3rd Sunday of each month at 4 p.m. ET
Free and open to everyone
“Sunday Conversations with MassME” is a monthly speaker series with discussion on a wide variety of topics. These sessions are appropriate for patients, family members/caregivers, and health care professionals. Sunday Conversations take place via Zoom on the 3rd Sunday of each month at 4 p.m. ET, and are free and open to anyone. Presentations are recorded for later viewing. Registration is required.
Sunday Conversation for May:
Sunday, May 19, 2024, 4 p.m. ET - "Are You M.A.D.?
An axis awry of
Mast cell activation disease,
Autonomic neuropathy and
Disorders of connective tissue"
Dr. Anne Maitland
Anne Maitland, M.D., Ph.D., is board-certified in allergy & immunology and internal medicine. As an allergy/immunology specialist at Metrodora Institute, Dr. Maitland’s clinical and research efforts are focused on increasing access to allergy and immunology specialty care. She is also one of the country’s top experts in immune-mediated disorders, including mast cell disease (MCD). She also serves on the scientific faculty for the Mast Cell Disease Society, the Ehlers-Danlos Society’s International Consortium and the Chiari-Syringomyelia Foundation. Read more about this event.
REGISTER NOW
Links to recordings, slides, and other resources from past events:
- "Got Mold? How Our Homes Impact Our Health", with Michael Rubino, April 21, 2024
- "Dysautonomias 101: More Than Just POTS", March 17, 2024
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"Living with co-morbidities or other serious illnesses: Small Group Discussions" February 18, 2024. This event was not recorded.
- "It's Not All In Your Head" with Judy Tsafrir, M.D., January 21, 2024
- "What Sociology and the Illness Narratives Can Teach Us About Living with Chronic Illness" November 19, 2023
- "Living with Chronic Illness: Small Group Discussions" August 20, 2023. This event was not recorded.
- "Zoom through 40 years of ME/CFS history with MassME" June 18, 2023
- "Using wearable technology to measure and manage Long COVID and ME/CFS". May 21, 2023
- "What Every Provider Should Know About ME/CFS (and how their patients can help them learn)" April 16, 2023
- "The Broken Mishkan: Performance and Community Conversation" with Sara Nesson" March 19, 2023. A recording will be made available to registrants for a limited time after the performance.
- "Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life" February 19, 2023.
- "Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig" January 22, 2023.
- "Coping During the Holidays with ME/CFS, Long COVID, and Related Chronic Illness" November 20, 2022. This was a small group conversation event and was not recorded.
- There was no Sunday Converstion in October. At our Annual Meeting on October 22, Dr. Anthony Komaroff presented "MECFS and Long COVID: Emerging Similarities and Why it Matters". For full coverage of the meeting, visit our Youtube playlist.
- "How Those Living with Long Covid and ME/CFS can Enhance Their Quality of Life by Integrating Traditional Chinese Medicine Into Their Healthcare Plan" September 18, 2022
- Sunday Conversations: Special Edition - August 21, 2022 Small group conversations about a variety of topics. This program was not recorded.
- "A whole-person health approach to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Lessons for Post-COVID conditions." June 19, 2022
- "Fibromyalgia" May 15, 2022
- "Working with Your Healthcare Provider" April 24, 2022
- "A Functional Medicine Approach to Complex Chronic Illnesses" March 20, 2022
- "Applying for Social Security Disability if you have ME/CFS or Fibromyalgia" February 20 2022
- "Physical and Occupational Therapy for ME/CFS and Similar Chronic Illnesses" January 16, 2022
Click to see all events in a list format.
Sunday Conversation - January 2022
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- Last Updated: 25 February 2022 25 February 2022
January 2022: Physical/Occupational Therapy for ME/CFS and Similar Chronic Illnesses
Sunday, January 16, 4:00 - 5:00 ET via Zoom
Featuring Kenneth J. Friedman, Ph.D.
Adjunct Associate Professor of Medicine,
School of Osteopathic Medicine of Rowan University, Stratford, NJ
Discussants:
Alba Azola, MD
Assistant Professor
Co-director of the PMR Post-Acute COVID-19 Team (JH PACT) Program
Department of Physical Medicine and Rehabilitation
Johns Hopkins University School of Medicine
Amy Mooney, MS OTR/L
Licensed Occupational Therapist
Mom of a severely ill daughter with ME/CFS
The overlap of symptoms in ME/CFS, long-haul COVID, and other post-infectious illnesses suggests that the symptoms are not unique to the individual conditions. Rather, they represent a common response, most likely with similar underlying pathophysiologies. Guiding principles of patient management are then set forward for all healthcare providers including physical and occupational therapists.
Video of the full event
Playlist
Dr. Friedman video
Dr. Friedman's slides
Dr Azola video
Dr. Azola's slides
Amy Mooney video
Amy Mooney's slides
Dr. Friedman has contributed to three nationally-recognized primers on ME/CFS, written numerous articles about the disease in peer-reviewed journals, participated in the U.S. Department of Health’s Chronic Fatigue Syndrome Advisory Committee, and edited three medical journal issues focused on ME/CFS. His research suggests ME/CFS is one of many post-infectious illnesses with similar symptoms and pathophysiologies, and that advances in one illness could benefit others.
Dr. Azola offers her perspective as a clinician working with over 900 patients in a Long Covid clinic; 30 - 35% meet the criteria for ME/CFS.
Amy Mooney, MS OTR/L, offers her comments about the unique perspective and guidance that Occupational Therapy offers.
The Moderator for this event is Kerry Lang, LMHC, an expressive art therapist and the Wellness and Mental Health Program Manager at the Dean Center for Tick Borne Illness at Spaulding Rehabilitation Hospital in Boston, MA. She also leads support groups for Long Covid patients.
New Monthly Discussion Group: Looking at How ME/CFS Research Might Apply to our Care
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- Last Updated: 02 December 2021 02 December 2021
On Tuesday, December 14, from 5-6:30pm we are launching a new monthly zoom discussion group entitled:
Looking at How ME/CFS Research Might Apply to our Care.