Video of "ME/CFS: A Surge of Interest and Knowledge"

The video of "ME/CFS: A Surge of Interest and Knowledge", the lecture by Dr. Anthony Komaroff, Harvard Medical School Professor, Clinician and Researcher, presented to Massachusetts CFIDS/ME & FM Association on Nov. 5, 2016, is now posted.

The lecture is 63 minutes.

The Q&A is 34 minutes.

To CDC: Remove GET and CBT from website!

Eleven patient organizations, including Massachusetts CFIDS/ME & FM Association, and 52 individual advocates have called for CDC to remove recommendations for GET (Graded Exercise Therapy) and CBT (Cognitive Behavioral Therapy) from the CDC's ME/CFS website.

Read more.

Read the community letter.

 

Fibromyalgia Research Study - 2016

This study is still recruiting patients as of October 2016.

This is a brain imaging study of pain responses. The study includes 5-14 assessment visits, lasting from 2-3 hours each. You may be eligible if you are 18-65 years old, are either generally healthy or have fibromyalgia, do not have a serious heart condition or certain other medical conditions, are not taking certain types of medications, and are not pregnant. There is no cost to you for any of the procedures and compensation up to $500.00 is provided.

For more details, see the study flyer.

The research takes place at the Brigham & Women’s Pain Management Center, 850 Boylston St, Chestnut Hill, and at the MGH Martinos Center
for Biomedical Imaging. For further information, please contact the study coordinator Olivia Franceschelli at 617-732-9718 or by email at ofranceschelli :at: partners.org.

Millions Missing Massachusetts


September 27, 2016

There were two Millions Missing events in Massachusetts on Sept. 27, one in Boston and one in Northampton.

In Boston, a small but intrepid group chatted with passers-by and handed out lots of ME/CFS Fact Sheets.

In Northampton, the mayor came out to greet the demonstrators and pledged to issue a City Proclamation for ME Awareness.



Photos from Boston.

 

 

 


Photos from Northampton. We expect the mayor of Northampton to issue a City Proclamation for ME Awareness soon.

 

 

 

 

 

Photos from Northampton.