Thank You!

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Last Updated: 06 December 2022 06 December 2022

On behalf of the Massachusetts ME/CFS & FM Association, THANK YOU FOR YOUR SUPPORT. You will receive an email detailing your contribution.

As you may know, the Massachusetts ME/CFS & FM Association is one of the oldest all-volunteer patient organizations in the United States. Founded in 1985, our Association is committed to serving the needs of ME/CFS and Fibromyalgia patients, their families, and their loved ones. All donations received are used to provide the resources needed in order to accomplish this important work.

Membership benefits include support groups, free entrance to all events and lectures sponsored by the Association, and travel support for advocacy and conferences. Additionally, members automatically receive our e-newsletter which is generally published on a monthly basis.

As a member, please feel free to Contact Us at any time with any questions or issues you might have.  In the event you need patient services, we will refer your request to one of the volunteers who work so hard to help our members as best they can.

We are always looking for volunteers to help, for as little as two hours per month.  If you have an interest in this area, please visit our website's Volunteer page and let us know how you or your family members can participate.

Again, thank you for your support of the Association.

Together We Can Make A Difference!

Our EIN is 04-3014644. All contributions are tax-deductible to the extent provided by law. No goods or services were provided in return for a contribution. A printed copy of your emailed receipt can serve as receipt for tax purposes.

Living with Chronic Illness: Sunday Conversations - August 20, 2023

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Last Updated: 30 August 2023 30 August 2023

 
Join MassME for an August Sunday Conversation! We are looking forward to meeting you on Zoom. Summer is a time for informal gatherings and socializing. Let's get to know one another, and have a chance to ask questions and share experiences!

After a brief welcome and introduction, we will gather together in small groups for moderated conversations about two topics of interest to our community.

• “Living with chronic illness: How to you find meaning in your life?”
• “Pacing: Personal approaches and what works for you?”

When you register, you can select which topic that you would like to explore with others. All are welcome - come to learn, share or just listen.

Based on your previous feedback, we will allow 40-45 minutes for a group discussion on your chosen topic. We'll return to the full group for a brief "de-brief" before signing off.

This is a live event via Zoom. It will not be recorded.

Living with Chronic Illness
Sunday, August 20, 2023
4 - 5 p.m. Eastern Time

This event is over. 

ME/CFS: Changing the Narrative - Recording Available

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Last Updated: 03 November 2023 03 November 2023

Ed Yong is a celebrated science journalist who cares deeply about accurate, nuanced, and empathetic reporting; clear and vivid storytelling; and social equality. His coverage of ME/CFS and Long COVID for The Atlantic has been groundbreaking, and has contributed to a changing public perception of these illnesses, moving us toward a public health agenda that recognizes the serious nature and commonalities of infection-associated chronic conditions, and supports advances in research and clinical care.

Mr. Yong shared with us how he came to the subject of ME/CFS and long COVID and what has motivated him to dig so deeply and tenaciously into them.  He explained how he chose sources to interview and how he prepares for those interviews.  We heard his thoughts on what is yet to be explored about ME/CFS from a journalistic perspective, and how science journalism contributes to changing perceptions.  

Mr. Yong is a Pulitzer Prize-winning science journalist on staff at The Atlantic.  In addition to his work for The Atlantic, Yong’s writing has been featured in National Geographic, The New Yorker, Wired, The New York Times, Nature, New Scientist and Scientific American.   He is the author of two New York Times bestsellers—An Immense World, about the extraordinary sensory worlds of other animals; and I Contain Multitudes, about the amazing partnerships between animals and microbes.  

Visit Ed Yong's website to learn more and sign up for his newsletter.

This event was part of the Association's 2023 Annual Meeting of the Membership.

Read more: ME/CFS: Changing the Narrative - Recording Available

In Memoriam - Ronald G. Tompkins

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Last Updated: 03 February 2022 03 February 2022

It is with great sadness that we learned of the sudden passing of Ron Tompkins, MD, ScD. The Massachusetts ME/CFS & FM Association was fortunate to be able to collaborate on a number of projects with Ron, and he was always extraordinarily generous with advice and guidance. The Massachusetts ME/CFS community has lost a strong ally and a good friend.

Read more: In Memoriam - Ronald G. Tompkins

Sunday Conversations - June 18, 2023

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Last Updated: 22 November 2023 22 November 2023

"ZOOM through 40 years of ME/CFS with MassME!"

Sunday, June 18, 2023, 4 p.m. Eastern Time

 

In this edition of Sunday Conversations with MassME, members of the association discussed how it has stayed strong and relevant throughout 40 years. An overview was given for each of the past four decades, each bringing important changes for this misunderstood and stigmatized disease. Learn about our unique patient-led organization that has influenced progress and now helps patients more than ever.

This presentation kicked off MassME's 40-year anniversary celebration. Stay tuned for more events to follow!

Materials from the presentation:

• Slides from the presentation
• Full recording (This version contains chapter headings for easier viewing)

Read more: Sunday Conversations - June 18, 2023