Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Fall Session 2023

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Last Updated: 08 September 2023 08 September 2023

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness

*Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group.

Join us on Monday nights @ 7:00 pm and Wednesday afternoons @ 3:30 pm ET.

This drop-in Virtual Support Group is interactive and provides a safe space for patients to share stories and experiences, ask questions, and offer one another support.

In an effort to streamline the registration process, we are offering one registration for the entire Fall Session.  Once registered, you are welcome to attend as many meetings as you like.

Fall Session Dates:

Monday, September 11th, @ 7:00 pm

Wednesday, September 20th @ 3:30 pm

Monday, October 2nd @ 7:00 pm

Wednesday, October 18th @ 3:30 pm

Monday, November 13th, @ 7:00 pm

Wednesday, November 29th @ 3:30 pm

This group is free for members, with any donations to offset costs welcome. A contribution of $25 or more will include annual membership.  

What age is Young Adult?

Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.

To Register, please fill in the form or confirm your pre-filled information below, and then click the Register button.

New Monthly Discussion Group: Looking at How ME/CFS Research Might Apply to our Care

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Last Updated: 02 December 2021 02 December 2021

 On Tuesday, December 14, from 5-6:30pm we are launching a new monthly zoom discussion group entitled: 

Looking at How ME/CFS Research Might Apply to our Care.

Click here for more details!

Sunday Conversations - May 21, 2023

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Last Updated: 26 May 2023 26 May 2023

"Using wearable technology to measure and manage Long COVID and ME/CFS"

Sunday, May 21, 2023, 4 p.m. Eastern Time

Harry Leeming
Co-founder and CEO, Visible

A former engineer, Harry Leeming has worked at multiple early-stage start-ups in Silicon Valley as well as in Formula 1. Harry founded the company Visible (https://www.makevisible.com/), an activity tracking platform for Long COVID and ME/CFS, as a result of his own health condition, and aims to use the platform to help increase our understanding of complex chronic illness.

In this edition of Sunday Conversations with MassME, Harry gave a brief overview of the application, with descriptions of the team, their HRV-centered philosophy, and their plans for the rollout of their own wearable device specifically for pacing and symptom tracking. He then took questions from the Zoom audience about the timeline of future releases and features, cost and geographic availability of the premium service, the potential for use in research, various user interface ideas and suggestions, and much more.

View the recording: Sunday Conversations May 2023 - Wearable technology with Harry Leeming of Visible

Slides

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Summer Session

Details

Last Updated: 04 June 2023 04 June 2023

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Summer Session

NEW TIMES! Join us on Monday nights @ 7pm and Wednesday afternoons @ 3:30pm! 

This drop-in Virtual Support Group is interactive and provides a safe space for patients to share stories and experiences, ask questions, and offer one another support.

In an effort to streamline the registration process, we are offering one registration for the entire Summer Session.  Once registered, you are welcome to attend as many meetings as you like.

Summer Session Dates:

Monday, June 12th, @ 7:00 P.M. ET 

Wednesday, June 28th @ 3:30 P.M. ET

Monday, July 10th, @ 7:00 P.M. ET 

Wednesday, July 26th @ 3:30 P.M. ET

Monday, August 14th, @ 7:00 P.M. ET 

Wednesday, August 30th @ 3:30 P.M. ET

Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group.

Sunday Conversations with MassME

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Last Updated: 03 April 2024 03 April 2024

A monthly speaker series
3rd Sunday of each month at 4 p.m. ET
Free and open to everyone

“Sunday Conversations with MassME” is a monthly speaker series with discussion on a wide variety of topics. These sessions are appropriate for patients, family members/caregivers, and health care professionals. Sunday Conversations take place via Zoom on the 3rd Sunday of each month at 4 p.m. ET, and are free and open to anyone. Presentations are recorded for later viewing. Registration is required.

Sunday Conversation for April:

Sunday, April 21, 4 p.m. ET - "Got Mold?
How Our Homes Impact Our Health"

Michael Rubino, Founder and Co-Chair
Change the Air Foundation

Michael Rubino is the co-founder and chair of Change the Air Foundation, a non-profit giving every person the knowledge, resources, and support to achieve better health by breathing safe indoor air. In this edition of Sunday Conversations with MassME, Michael will discuss air quality, mold, bacteria, symptoms of living with water damage, tests for mold and air quality, and the steps we can take to make our homes safer.  Read more about this event.

REGISTER NOW

Links to recordings, slides, and other resources from past events:

• "Dysautonomias 101: More Than Just POTS",  March 17, 2024

• "Living with co-morbidities or other serious illnesses: Small Group Discussions" February 18, 2024. This event was not recorded.

• "It's Not All In Your Head" with Judy Tsafrir, M.D., January 21, 2024 

• "What Sociology and the Illness Narratives Can Teach Us About Living with Chronic Illness" November 19, 2023
• "Living with Chronic Illness: Small Group Discussions" August 20, 2023. This event was not recorded.
  
  
• "Zoom through 40 years of ME/CFS history with MassME" June 18, 2023
• "Using wearable technology to measure and manage Long COVID and ME/CFS".  May 21, 2023
• "What Every Provider Should Know About ME/CFS (and how their patients can help them learn)" April 16, 2023
• "The Broken Mishkan: Performance and Community Conversation" with Sara Nesson" March 19, 2023. A recording will be made available to registrants for a limited time after the performance.
• "Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life" February 19, 2023.
• "Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig" January 22, 2023.
• "Coping During the Holidays with ME/CFS, Long COVID, and Related Chronic Illness" November 20, 2022. This was a small group conversation event and was not recorded.
• There was no Sunday Converstion in October. At our Annual Meeting on October 22, Dr. Anthony Komaroff presented "MECFS and Long COVID: Emerging Similarities and Why it Matters". For full coverage of the meeting, visit our Youtube playlist.
• "How Those Living with Long Covid and ME/CFS can Enhance Their Quality of Life by Integrating Traditional Chinese Medicine Into Their Healthcare Plan" September 18, 2022
• Sunday Conversations: Special Edition - August 21, 2022 Small group conversations about a variety of topics. This program was not recorded.
• "A whole-person health approach to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Lessons for Post-COVID conditions."  June 19, 2022
• "Fibromyalgia" May 15, 2022
• "Working with Your Healthcare Provider" April 24, 2022
• "A Functional Medicine Approach to Complex Chronic Illnesses" March 20, 2022
• "Applying for Social Security Disability if you have ME/CFS or Fibromyalgia" February 20 2022
• "Physical and Occupational Therapy for ME/CFS and Similar Chronic Illnesses" January 16, 2022

Click to see all events in a list format.