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Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Fall Session 2023
- Details
- Last Updated: 08 September 2023 08 September 2023
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness
*Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group.
Join us on Monday nights @ 7:00 pm and Wednesday afternoons @ 3:30 pm ET.
This drop-in Virtual Support Group is interactive and provides a safe space for patients to share stories and experiences, ask questions, and offer one another support.
In an effort to streamline the registration process, we are offering one registration for the entire Fall Session. Once registered, you are welcome to attend as many meetings as you like.
Fall Session Dates:
Monday, September 11th, @ 7:00 pm
Wednesday, September 20th @ 3:30 pm
Monday, October 2nd @ 7:00 pm
Wednesday, October 18th @ 3:30 pm
Monday, November 13th, @ 7:00 pm
Wednesday, November 29th @ 3:30 pm
This group is free for members, with any donations to offset costs welcome. A contribution of $25 or more will include annual membership.
What age is Young Adult?
Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.
To Register, please fill in the form or confirm your pre-filled information below, and then click the Register button.
| REGISTER FOR THE YOUNG ADULT GROUP - FALL SESSION |
Sunday Conversations - September 17, 2023
- Details
- Last Updated: 13 September 2023 13 September 2023
CANCELLED !! (as of 9/13)
"Understanding Long COVID: Clinical Approaches and Relationship to ME/CFS"
Sunday, September 17, 2023, 4 p.m. Eastern Time
Jason Maley, MD
Program Director, Critical Illness and COVID-19 Survivorship Program
In this edition of Sunday Conversations with MassME, Jason Maley will discuss what is known to date about the biology of long COVID, the approaches taken in caring for long COVID care in existing clinics, and what is known about the overlap between ME/CFS and long COVID. A recording will be available after the event.
Jason Maley is an Assistant Professor of Medicine at Harvard Medical School and is a Lecturer at the Massachusetts Institute of Technology. He works as a pulmonary and critical care physician and is director of the Critical Illness and COVID-19 Survivorship Program at Beth Israel Deaconess Medical Center in Boston.
The Critical Illness and COVID-19 Survivorship Program was launched in 2021 and is one of only a few in the country to integrate a broad multi-disciplinary team of medical experts to treat patients with persistent symptoms, which are also described as "long-COVID" or "post-acute sequelae of COVID-19 (PASC)." The program is open to anyone experiencing long-COVID symptoms regardless of where they were treated for their initial COVID-19 illness. Patients are initially scheduled for a telehealth visit, and eventually an individual plan is developed for each baptient based on their main deficiencies. More information can be found at the program website at https://www.bidmc.org/centers-and-departments/pulmonary-critical-care-and-sleep-medicine/services-and-programs/critical-illness-survivorship-program
This event has been cancelled due to a conflict. There will be no Sunday conversations on Sunday 9/17. Please stay posted for an updated date for Dr. Maley's presentation!
Living with Chronic Illness: Sunday Conversations - August 20, 2023
- Details
- Last Updated: 30 August 2023 30 August 2023
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Join MassME for an August Sunday Conversation! We are looking forward to meeting you on Zoom. Summer is a time for informal gatherings and socializing. Let's get to know one another, and have a chance to ask questions and share experiences!
After a brief welcome and introduction, we will gather together in small groups for moderated conversations about two topics of interest to our community.
- “Living with chronic illness: How to you find meaning in your life?”
- “Pacing: Personal approaches and what works for you?”
When you register, you can select which topic that you would like to explore with others. All are welcome - come to learn, share or just listen.
Based on your previous feedback, we will allow 40-45 minutes for a group discussion on your chosen topic. We'll return to the full group for a brief "de-brief" before signing off.
This is a live event via Zoom. It will not be recorded.
Living with Chronic Illness
Sunday, August 20, 2023
4 - 5 p.m. Eastern Time
This event is over.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.