- Last Updated: 17 March 2021 17 March 2021
Massachusetts ME/CFS & FM Association is thrilled to announce that the NIH has awarded a $2.5 million grant to the two-woman UMass Medical School research team of Liisa Selin, MD, PhD, and Anna Gil, PhD, for their work on ME/CFS.
For more details, read the MassME press release.
MassME is pleased to have supported this research team over the years, including notifying our newsletter recipients that these innovative researchers had received the Ramsey award and needed blood donations. People responded enthusiastically, allowing Drs. Selin and Gil to move this necessary research forward.
Additionally, the UMass Medical School researchers met with our Research Club and shared their cutting-edge findings. You can view a video excerpt of that meeting, and the research is summarized on this poster. It is also exciting to us that this money is coming to a Massachusetts institution. After all, Massachusetts is a medical hub for the world, and it should also be that for ME/CFS. This grant builds on the research this team did with a seed grant from the Solve ME/CFS Initiative's Ramsay Program.
Thanks, Liisa Selin and Anna Gil, for all your hard work for our community!
- Last Updated: 05 December 2020 05 December 2020
MassME joined the Solve ME/CFS Initiative and 18 other leading chronic disease stakeholders in sending a powerful letter urging Congress to fund millions of dollars in new National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC) research into the post-viral health complications for long-term COVID-19 (Long COVID) survivors. According to Dr. Anthony Fauci, roughly 2.6 million Americans could be temporarily or permanently disabled by Long COVID symptoms. Congress must act now and fund new research into the health needs of this rapidly growing patient population.
- Last Updated: 03 December 2020 03 December 2020
It is time for our annual funds appeal. We need your donations to continue supporting people with ME/CFS and FM in Massachusetts and beyond. We had a busy 2020 building our support group program and improving our provider referral process, among other projects, and we have big plans for 2021. Please support us by becoming a member or donating now! Read on for more details about our 2020 activities, our 2021 plans, and why you should give today.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.